{"id":2800,"date":"2019-01-25T11:21:32","date_gmt":"2019-01-25T10:21:32","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?page_id=2800"},"modified":"2023-08-24T14:47:13","modified_gmt":"2023-08-24T12:47:13","slug":"politik-gremien-verbaende","status":"publish","type":"page","link":"https:\/\/alpha1-deutschland.org\/en\/politik-gremien-verbaende","title":{"rendered":"Politics, committees, associations"},"content":{"rendered":"
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News from the fields of politics, committees, and associations<\/span><\/h1>\n
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Below you will find the latest articles on the topic of \u201cPolitics, Committees, Associations\u201d:<\/p>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t

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policy<\/a><\/div><\/div>
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EU petition on the SoHO Regulation \u2013 Update March and April 2024<\/span><\/a>

EU petition on the SoHO Regulation \u2013 Update March and April 2024<\/span><\/h3>March 26, 2024<\/span><\/span><\/div><\/div><\/div><\/div>
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Testing for alpha-1 antitrypsin deficiency (AATD) is an essential part of COPD diagnostics.<\/span><\/a>

Testing for alpha-1 antitrypsin deficiency (AATD) is an essential part of COPD diagnostics.<\/span><\/h3>March 4, 2024<\/span><\/span><\/div><\/div><\/div><\/div>
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From initiative to recognition: The path to including AATM screening in national COPD guidelines<\/span><\/a>

From initiative to recognition: The path to including AATM screening in national COPD guidelines<\/span><\/h3>October 13, 2023<\/span><\/span><\/div><\/div><\/div><\/div>
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EU petition on the SoHO regulation<\/span><\/a>

EU petition on the SoHO regulation<\/span><\/h3>September 19, 2023<\/span><\/span><\/div><\/div><\/div><\/div>
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What do guidelines and disease management programs (DMPs) mean for the patient?<\/span><\/a>

What do guidelines and disease management programs (DMPs) mean for the patient?<\/span><\/h3>August 23, 2018<\/span><\/span><\/div><\/div><\/div><\/div><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Politics, committees, associations<\/span><\/h2>\n

European Reference Networks (ERN)<\/span><\/h3>\n

What are ERNs? \u201cEuropean Reference Networks (ERNs) are virtual networks of healthcare providers across Europe. Their aim is to address complex or rare diseases or health problems that require highly specialized treatment and the pooling of knowledge and resources. ERN coordinators convene a virtual advisory board of specialists from various fields to review a patient's diagnosis and treatment. They utilize a dedicated IT platform and telemedicine tools. In this way, only the medical expertise travels, not the patients, who can remain at home in their familiar surroundings.\u201e (Source: ERN information brochure)<\/p>\n

Further helpful links on relevant political topics<\/span><\/h3>\n