{"id":48,"date":"2012-01-31T21:48:50","date_gmt":"2012-01-31T21:48:50","guid":{"rendered":"http:\/\/www.alpha1-deutschland.org\/press\/?page_id=48"},"modified":"2026-06-17T20:26:10","modified_gmt":"2026-06-17T18:26:10","slug":"wissenschaftlicher-beirat-und-vorstand","status":"publish","type":"page","link":"https:\/\/alpha1-deutschland.org\/en\/wissenschaftlicher-beirat-und-vorstand","title":{"rendered":"Unser Vorstand & Beirat"},"content":{"rendered":"
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Our Alpha1 board, patient and affected persons advisory board<\/span><\/h1>\n<\/div>\n
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The board members and advisory board members are happy to provide information and are available for an exchange of experiences. Unfortunately, medical advice is not possible.
\nWe kindly ask you to respect our privacy and refrain from making calls after 8 p.m. Thank you for your understanding.<\/p>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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Alpha1 Board<\/h2>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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1. Chairperson<\/h5>

Marion Wilkens<\/h3>

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Service number 0800 \u2013 5894662 (free of charge)
\nTel. 06258 \u2013 1329714
\nEmail: marion.wilkens@alpha1-deutschland.org<\/p>\n

1. Chairperson
\nSelf-help groups, contact telephone for adults, national and international contacts

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2nd Chairman<\/h5>

Thomas Heimann<\/h3>

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Email: Thomas.Heimann@alpha1-deutschland.org<\/p>\n

Member of the Board
\nMember administration, internal IT, event organization, data protection officer

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treasurer<\/h5>

Peter H\u00fcbner<\/h3>

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Email: Peter.Huebner@alpha1-deutschland.org<\/p>\n

treasurer
\nFinance management, fundraising

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Team Office & Support<\/h2>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Katrin Fell<\/h4>
Office Support & Events<\/div>

Tel. 06133 573 83 26
\nEmail Katrin.fell@alpha1-deutschland.org<\/p><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t

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Annkatrin Siegl<\/h4>
Communication and Social Media<\/div>

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Petra Objartel<\/h4>
Service telephone<\/div>

Tel: 0800-589 4662<\/p><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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Alpha1 Patient and Affected Persons Advisory Board<\/h2>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Uwe Deter<\/h4>
Technical advice for oxygen, transplantation<\/div>

Tel. 05828 968674
\nEmail uwe.deter@alpha1-deutschland.org<\/p><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t

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Gabi Niethammer<\/h4>
Counseling and support for children and adolescents, as well as their parents<\/div>

Tel. 040 7889 1320
\nEmail gabi.niethammer@alpha1-deutschland.org<\/p><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t

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Nicole Scherhag<\/h4>
Support with legal and social issues<\/div>

Tel. 06732 96 59 827
\nMobile: 0179 69 33 068
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Scientific Advisory Board<\/h2>\n

You have the option of contacting our scientific advisory board directly with any questions.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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Rehabilitation and Lung Area<\/h5>

Prof. Dr. med. Andreas Rembert Koczulla<\/h3>

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Chief Physician for Pulmonology and Head of the Specialist Center for Pulmonology, Allergology and Sleep Medicine at the Sch\u00f6n Clinic Berchtesgadener Land, Professor of Pulmonary Rehabilitation Philipps University Marburg
\nEmail: RKoczulla@schoen-kliniken.de
\nTelephone: 08652 93-1540 (Secretariat)
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Lung area and rare mutations<\/h5>

Prof. Dr. med. Timm Greulich<\/h3>

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Senior Physician \/ Head of Department Alpha-1 Antitrypsin Center \/ University Hospital Marburg and practicing pulmonologist at PneumoPraxis-Marburg
\nPlease contact us initially via email:
\nalpha1@med.uni-marburg.de
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Liver area<\/h5>

Univ Prof. Dr. med. Pavel Strnad<\/h3>

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Clinic Director, Specialist in Internal Medicine & Gastroenterology
\nMedical University of Lausitz \u2013 Carl Thiem, Cottbus
\nFor initial contact, please use email: P.Strnad@mul-ct.de
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Lung, Imaging and Gender Medicine<\/h5>

Prof. Dr. Franziska Trudzinski<\/h3>

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I am a senior consultant at the Thorax Clinic of Heidelberg University Hospital and a specialist in pulmonology with additional qualifications in intensive care medicine and infectious diseases. I completed my medical training at Saarland University in Homburg\/Saar. As a Principal Investigator at the German Center for Lung Research (DZL) in the COPD Disease Area, my clinical and scientific focus lies in COPD, intensive care and respiratory medicine, as well as in the research of biomarkers, comorbidities, and sex and gender aspects in chronic lung diseases. I head the Heidelberg Alpha-1 Center and am the national coordinator of the EARCO network (European Alpha-1 Research Collaboration). Another focus of my work is in the field of clinical health services research, particularly in the PRiVENT project, which develops strategies for the prevention and weaning of patients from long-term mechanical ventilation. Within the German Society for Pneumology (DGP) Section A2 - COPD, I am the deputy spokesperson. Furthermore, I am committed to networking research and clinical practice, as well as promoting young scientists in pulmonology.<\/p>\n

Please contact us by email: franziska.trudzinski@med.uni-heidelberg.de

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Area of illness management<\/h5>

Monika Tempel<\/h3>

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CL physician specializing in psychosomatic medicine at the Donaustauf Clinic (until 2018)<\/p>\n

Focus on psychopneumology
\nwww.psychopneumologie.de
\nPlease contact us initially by email: info@monikatempel.de
\nTelephone: 0941-208 59 52

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Research and rare cases area<\/h5>

Prof. Dr. Sabina Janciauskiene<\/h3>

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Department of Pneumology and German Center for Lung Research (DZL), Hannover Medical School<\/p>\n

Telephone consultation Monday and Friday 2:00 PM \u2013 4:00 PM:
\nTel: +49-511-532-7297
\nFax: +49-511-532-7294
\nEmail: janciauskiene.sabina@mh-hannover.de

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Lungs and smoking cessation<\/h5>

Dr. med. Alexander Rupp<\/h3>

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Specialist in Internal Medicine & Pulmonology, Allergology, Addiction Medicine, Emergency Medicine
\nFor initial contact, please use email: info@lunge-stuttgart.de
\nTel. 0711-887825-0
\nFax: 0711-887825-15
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Rehabilitation, sports, therapy<\/h5>

Dr. Inga Jarosch<\/h3>

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Diploma in Sports Science
\nDoctor of Medical Sciences
\nFor initial contact, please use email: ijarosch@schoen-klinik.de
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Areas of rehabilitation, sports, respiratory\/physiotherapy<\/h5>

Dr. Tessa Schneeberger<\/h3>

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\n <\/polyline>\n <\/svg><\/span> <\/a><\/span><\/div><\/div>\n
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MSC Sports Physiotherapy
\nRespiratory physiotherapist
\nDoctor of Medical Sciences
\nFor initial contact, please use email: TSchneeberger@schoen-klinik.de
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Area of pulmonary rehabilitation, training, mobility, activity<\/h5>

Michaela Frisch<\/h3>

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For initial contact, please use email: michaela.frisch@alpha1-deutschland.org
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Children's area<\/h5>

Dr. med. R\u00fcdiger Kardorff<\/h3>

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Pediatrician, pediatric gastroenterologist, DEGUM III, Helios St. Johannes Clinic in Alt-Hamborn
\nInitial contact can be made via email: Ruediger.Kardorff@helios-gesundheit.de
\nFor other appointments: Secretariat Tel. 0203 546 32201
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Children's section, Register<\/h5>

Dr. med. David Katzer<\/h3>

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Children's section \/ Focus on registers for children and young people
\nDr. med. David Katzer
\nPediatrician, pediatric gastroenterologist
\nContact: alpha1kinderzentrum@ukbonn.de
\nFurther information: alpha1bonn.de
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Children's section, Register<\/h5>

Dr. med. Alexander Weigert<\/h3>

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\n <\/polyline>\n <\/svg><\/span> <\/a><\/span><\/div><\/div>\n
<\/div>\n
Children's section \/ Focus on registers for children and young people
\nDr. med. Alexander Weigert
\nPediatrician, pediatric gastroenterologist
\nContact: alpha1kinderzentrum@ukbonn.de
\nFurther information: alpha1bonn.de
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\n\t\t\t\t\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Unser Alpha1-Vorstand, Patienten- und Betroffenenbeirat Die Mitglieder des Vorstandes und die Fachbeir\u00e4te geben gerne Auskunft und stehen f\u00fcr einen Erfahrungsaustausch zur Verf\u00fcgung. Eine medizinische Beratung ist leider nicht m\u00f6glich. Wir...","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"open","template":"","meta":{"footnotes":""},"class_list":["post-48","page","type-page","status-publish"],"yoast_head":"\nDer Vorstand des Alpha1 Deutschland e.V. stellt sich vor<\/title>\n<meta name=\"description\" content=\"Hier stellen sich die Mitglieder des Vorstandes sowei der Fachbeir\u00e4te von Alpha1 Deutschland e.V. vor. Ebenfalls hier: Kontaktm\u00f6glichkeiten zum Vorstand\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/wissenschaftlicher-beirat-und-vorstand\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Der Vorstand des Alpha1 Deutschland e.V. stellt sich vor\" \/>\n<meta property=\"og:description\" content=\"Hier stellen sich die Mitglieder des Vorstandes sowei der Fachbeir\u00e4te von Alpha1 Deutschland e.V. vor. Ebenfalls hier: Kontaktm\u00f6glichkeiten zum Vorstand\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/wissenschaftlicher-beirat-und-vorstand\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:modified_time\" content=\"2026-06-17T18:26:10+00:00\" \/>\n<meta name=\"twitter:label1\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"9 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wissenschaftlicher-beirat-und-vorstand\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wissenschaftlicher-beirat-und-vorstand\",\"name\":\"Der Vorstand des Alpha1 Deutschland e.V. stellt sich vor\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\"},\"datePublished\":\"2012-01-31T21:48:50+00:00\",\"dateModified\":\"2026-06-17T18:26:10+00:00\",\"description\":\"Hier stellen sich die Mitglieder des Vorstandes sowei der Fachbeir\u00e4te von Alpha1 Deutschland e.V. vor. 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