{"id":1579,"date":"2017-03-31T15:07:05","date_gmt":"2017-03-31T13:07:05","guid":{"rendered":"http:\/\/www.alpha1-deutschland.org\/?p=1579"},"modified":"2020-03-09T15:10:22","modified_gmt":"2020-03-09T14:10:22","slug":"shg-koeln-erstes-alpha1-gruppentreffen-am-11-3-2017","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/shg-koeln-erstes-alpha1-gruppentreffen-am-11-3-2017","title":{"rendered":"SHG Cologne: First Alpha1 group meeting on March 11, 2017"},"content":{"rendered":"<div id=\"fws_6aa8fda479c58\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"3%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: calc(100vw * 0.03); padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h1><span style=\"color: #004267;\">SHG Cologne: First Alpha1 group meeting on March 11, 2017<\/span><\/h1>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"height: 50px;\" class=\"divider\"><\/div><\/div><div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"cmsms_post_content entry-content\">\n<div id=\"cmsms_row_5e664e103d5da\" class=\"cmsms_row cmsms_color_scheme_default\">\n<div class=\"cmsms_row_outer_parent\">\n<div class=\"cmsms_row_outer\">\n<div class=\"cmsms_row_inner\">\n<div class=\"cmsms_row_margin cmsms_11\">\n<div class=\"cmsms_column one_first\">\n<div class=\"cmsms_text fadeInUp animated\" data-animation=\"fadeInUp\" data-delay=\"0\">\n<p><strong>Barbara Pixa and Bernd Dobbert<\/strong><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<footer class=\"cmsms_post_footer entry-meta\"><\/footer>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>The first group meeting took place on March 11, 2017, at the community center in Cologne-Ehrenfeld. The community center has rooms of varying sizes, and we (Barbara Pixa and I) rented one of the smaller rooms, which accommodates 20 people.<\/p>\n<p>Because there was great interest and also some (still) non-members present, the hall was almost bursting at the seams.<\/p>\n<p>Over cold and warm drinks and two delicious homemade cakes, a lively exchange quickly developed between the individual participants.<\/p>\n<p>After the initial exchange, the group leader informed the members about further plans for this year and also asked about the particular interests of each member.<\/p>\n<p>The following possible activities were therefore proposed for the next meetings:<\/p>\n<ul>\n<li>Breathing Techniques and Lung Exercises (Peter Kukry)<\/li>\n<li>Demonstration of the correct use of Flutter and Cornet (possibly at Ruhrland Clinic Essen)<\/li>\n<li>Invitation from an ecotrophologist for nutritional counseling<\/li>\n<li>Fibro-Scan only for Cologne members (University Hospital Aachen)<\/li>\n<li>Invitation from the responsible medical professionals for the planned new Alpha1 centers in North Rhine-Westphalia<\/li>\n<li>Possible screening of a film about the production of Prolastin<\/li>\n<li>A children&#039;s event combined with an afternoon of cooking<\/li>\n<li>Creating a semi-annual newsletter with special topics (e.g. Eurordis and initiatives to promote medical centers for rare diseases such as Alpha1)<\/li>\n<\/ul>\n<p>The sales representatives from Grifols and CLS-Behring, Ms. Tina Patrias and Mr. Peter Lipka, who were also present, then answered individual questions and proposed an event for our Cologne members, to be jointly sponsored by both companies. This offer was gladly accepted.<\/p>\n<p>The highlight and conclusion of the event was the presentation by Dr. Karim Hamesch from Aachen University Hospital on the effects of alpha-1 antithyroid deficiency on the liver. Dr. Hamesch very clearly explained the additional diagnostic options available at the university hospital. Aachen has recently become a European center of excellence for alpha-1 liver diseases, and due to its proximity to Cologne, a special examination appointment for our Cologne members will soon be offered at the Cologne-Merheim Clinic.<\/p>\n<p>Overall, it was a very intensive and stimulating event, for which we have already received a great deal of positive feedback.\u00a0<strong>The next event is on June 10, 2017<\/strong>\u00a0have received.<\/p>\n<p>Barbara Pixa and Bernd Dobbert<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Cologne Self-Help Group: First Alpha1 Group Meeting on March 11, 2017. Authors: Barbara Pixa and Bernd Dobbert. The first group meeting took place on March 11, 2017, at the Cologne-Ehrenfeld Community Center. The Ehrenfeld Community Center has rooms of varying sizes and...","protected":false},"author":1,"featured_media":3768,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,8,20],"tags":[],"class_list":["post-1579","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-gruppentreffen","category-shg-koeln"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha1 Deutschland: Erstes Gruppentreffen der SHG K\u00f6ln<\/title>\n<meta name=\"description\" content=\"Das erste Gruppentreffen der SHG K\u00f6ln von Alpha1 Deutschland am 11.3.2017 fand im B\u00fcrgerzentrum K\u00f6ln-Ehrenfeld statt. 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