{"id":2062,"date":"2017-11-05T09:38:56","date_gmt":"2017-11-05T08:38:56","guid":{"rendered":"http:\/\/www.alpha1-deutschland.org\/?p=2062"},"modified":"2023-11-16T16:20:15","modified_gmt":"2023-11-16T15:20:15","slug":"bericht-aus-koeln","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/bericht-aus-koeln","title":{"rendered":"Report from Cologne"},"content":{"rendered":"<div id=\"fws_6aa7c98cdf2ce\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"3%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: calc(100vw * 0.03); padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h1><span style=\"color: #004267;\">Report from Cologne<\/span><\/h1>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"height: 50px;\" class=\"divider\"><\/div><\/div><div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"cmsms_post_content entry-content\">\n<div id=\"cmsms_row_5e6623c0d0790\" class=\"cmsms_row cmsms_color_scheme_default\">\n<div class=\"cmsms_row_outer_parent\">\n<div class=\"cmsms_row_outer\">\n<div class=\"cmsms_row_inner\">\n<div class=\"cmsms_row_margin cmsms_11\">\n<div class=\"cmsms_column one_first\">\n<div class=\"cmsms_text fadeInUp animated\" data-animation=\"fadeInUp\" data-delay=\"0\">\n<p><strong>Bernd Dobbert<\/strong>, as published in Alpha1 Journal 2\/2017<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"cl\"><\/div>\n<\/div>\n<footer class=\"cmsms_post_footer entry-meta\"><\/footer>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Our meeting on November 4th was a great success. We had over 30 participants and a lively discussion ensued. Our doctor, Dr. Prickartz, had to cancel at short notice because his car broke down on a ferry, but he was able to send a substitute who did a fantastic job.<\/p>\n<p>Peter Kukry then led us in an exercise session using Alpha-1 resistance bands, and with his extensive knowledge of the secondary respiratory muscles, he encouraged everyone to participate in pulmonary exercise. I will also be joining pulmonary exercise classes starting in January. There were 20 of us at the subsequent meal, and it was a very pleasant time. Many thanks to Alpha1 Germany for covering the costs. Membership in Cologne is now around 80. My deputy, Barbara Pixa, and I would reach 100 next year if two members hadn&#039;t decided to start a new group. More on that in the new year. Nevertheless, our long-term goal remains 100 members.<\/p>\n<p>Since I am very interested in the European level, I translated the European brochure \u201eTime to Get Better\u201c into German and handed it over to Frank Willersinn.<\/p>\n<p>I am continuing to work on establishing a contact for the implementation of a very exciting YouTube project \u2013 more on that in 2018.<\/p>\n<p>Incidentally, I&#039;ve become a patient advocate for ERN liver disease. ERNs are networks for the exchange of medical personnel at the European level, dedicated to addressing the needs of patients with rare diseases. This naturally requires patients who are actively involved in ERN circles. I applied for the Alpha-1 group, which focuses on metabolic liver diseases, but I also pointed out that I travel very frequently and won&#039;t be able to participate in all national and international activities.<\/p>\n<p>All the best, warm regards and see you soon!<\/p>\n<p>Bernd Dobbert, as appeared in\u00a0<a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2017<\/a>.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Report from Cologne by Bernd Dobbert, published in Alpha1 Journal 2\/2017: Our meeting on November 4th was a great success. We had over 30 participants and a lively discussion ensued. Our...","protected":false},"author":1,"featured_media":3768,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,20],"tags":[],"class_list":["post-2062","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-shg-koeln"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Bericht Mitgliedstreffen der Alpha-1 Selbsthilfegruppe K\u00f6ln<\/title>\n<meta name=\"description\" content=\"Lesen Sie hier, was die SHG K\u00f6ln bei ihrem letzten Treffen bewegt hat und welche Ideen f\u00fcr die Zukunft geplant sind. 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