{"id":3008,"date":"2019-05-13T13:21:09","date_gmt":"2019-05-13T11:21:09","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=3008"},"modified":"2020-03-10T15:53:16","modified_gmt":"2020-03-10T14:53:16","slug":"gesunderhaltung-bei-alpha-1-rueckschluesse-zum-fragebogen-2018","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/gesunderhaltung-bei-alpha-1-rueckschluesse-zum-fragebogen-2018","title":{"rendered":"Maintaining health in Alpha-1: Conclusions from the 2018 questionnaire"},"content":{"rendered":"
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Maintaining health in Alpha-1: Conclusions from the 2018 questionnaire<\/span><\/h1>\n<\/div>\n\n\n\n
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Michaela Frisch<\/strong>, Scientific Advisor<\/p>\n<\/div>\n\n\n\n

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Alpha1 Germany's motto for 2018 was resilience. This means strengthening one's own resources to avoid experiencing any (psychological) health consequences despite negative external influences. Accordingly...
\nIndividual resilience represents one's own capacity to resist and maintain one's health, in addition to medication-based treatment options. Besides family and friends, this includes physical activity, pulmonary exercise, mobility, rehabilitation, membership in the self-help organization Alpha1 Germany, and participation in regional group meetings.<\/p>\n

The questionnaire used at the 2018 information day in G\u00f6ttingen also focused on these areas. This yielded a few results that warranted closer examination and numerous discussions, including at the group leaders' meeting.
\nThe 2018 meeting in Darmstadt brought with it several questions focusing on the topic of sports, specifically pulmonary exercise. The extremely encouraging news was the survey result regarding the activity and athleticism of the Alpha1 members.<\/p>\n<\/div>\n\n\n\n

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This result definitely deserves applause, with the added comment: keep it up!! Likewise, the answers to the question about the frequency of exercise:<\/p>\n<\/div>\n<\/div>\n\n\n\n

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Discussions then arose regarding the questions directed solely at those affected by PiZZ: Do you attend a pulmonary exercise group?<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n

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There are many possible interpretations when searching for the reasons why more affected people do not participate in pulmonary exercise.<\/p>\n

One explanation certainly lies in the clinical picture of Alpha-1: not every Alpha has a correspondingly affected and restricted lung function, so participation in a pulmonary exercise group to carry out personal sporting activity is not really useful for every Alpha.<\/p>\n

If you wish to participate in pulmonary exercise, your general practitioner or pulmonologist can prescribe pulmonary exercise with 50 sessions over 18 months or 120 sessions over 36 months using form 56. The doctor's prescription must then be submitted to your health insurance provider for approval and reimbursement. If your doctor has not already recommended a group, including its address, when issuing the prescription, the database on the AG-Lungensport website (www.lungensport.org<\/a>) with over 1,500 groups now offering support in the search.<\/p>\n

Unfortunately, not all existing groups have yet registered in the database. In addition to local self-help groups, health insurance companies can also assist with providing contact information. Compared to cardiac rehabilitation, there is still no comprehensive network of pulmonary rehabilitation groups; there is much work to be done in this area. Many group activities also take place during the day, making participation difficult for working people.<\/p>\n

When asked about problems with the approval process, the result was pleasing:<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n

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To avoid problems in the future, here are a few tips for new or subsequent prescriptions. Often, you can prevent problems altogether by using the correct form. It's available on the Alpha1 Germany website. Unfortunately, errors in filling out the form are often a reason for rejection, so here's an example of how it should look:<\/p>\n<\/div>\n

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Should there still be problems with the approval: don't be afraid to file an appeal! It's worthwhile in most cases. The only important thing is:<\/p>\n