{"id":3171,"date":"2019-09-30T12:51:35","date_gmt":"2019-09-30T10:51:35","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=3171"},"modified":"2020-03-10T15:44:08","modified_gmt":"2020-03-10T14:44:08","slug":"lets-talk-about-alpha-1-wenn-das-leben-dazwischenfunkt","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/lets-talk-about-alpha-1-wenn-das-leben-dazwischenfunkt","title":{"rendered":"\u201e"Let's talk about Alpha-1" \u2013 When life gets in the way\u2026"},"content":{"rendered":"
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\u201e"Let's talk about Alpha-1" \u2013 When life gets in the way\u2026<\/span><\/h1>\n<\/div>\n\n\n\n
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Author<\/h4><\/span><\/span>\n<\/div>\n
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Monika Tempel<\/strong>, Scientific Advisory Board (area of illness management, psyche, relatives)<\/p>\n<\/div>\n\n\n\n

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What began at the 2018 information day with 27 dedicated family members was intended to continue at the 2019 information day with two offerings for all interested caregivers. But then life intervened\u2026 and the \u201eDIY workshop\u201c and the \u201eAlpha 1 family consultation\u201c unfortunately had to be cancelled this year in G\u00f6ttingen.<\/p>\n

What a shame! The toolbox for the workshop "You Can Learn How to Help Properly!" was already well-stocked. Here's a look at the planned contents: Hopefully, we can unpack and try out these tools together at the next information day. Unfortunately, that's still quite a while away... So, what do you think about at least taking a theoretical look at one or two of the tools right now?<\/p>\n

7 Myths (Misconceptions) about Feelings<\/h2>\n

Dealing with emotions is important for the joint stress management of patients and relatives, because the "caregiver journey" is sometimes a rollercoaster of emotions.<\/p>\n

These feelings depend on many factors \u2013 and they in turn influence these very factors, for example: How do I feel in light of the many demands that come with living with Alpha-1? What feelings do I have towards "my" Alpha-1 patient? How competent do I feel in the caregiver role?<\/p>\n

It's not easy to cope with all these feelings. Myths about emotions are a particular obstacle to dealing with them appropriately. Here you can find out if you, too, might be influenced by common misconceptions about emotions.<\/p>\n

Do any of these myths sound familiar? Then try formulating counter-arguments to the seven myths. Here's an example for myth 2:
\nFeelings are neither good nor bad \u2013 feelings simply exist. Do you see how this works?<\/p>\n<\/div>\n\n\n\n

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Immediate help with caregiving stress<\/span><\/h2>\n

Life with Alpha-1 is rarely easy \u2013 but sometimes an additional, acute burden arises. In such cases, caregivers need immediate relief from stress. The "STOP" exercise is a key that quickly and effectively unlocks the door to a stress-free space at any time. However, it requires that you practice the "STOP" exercise daily in relaxed situations so that it can be accessed automatically when needed.<\/p>\n

\u201eSTOP\u201c is an acronym for:
\nStop
\nT \u2013 take a deep breath
\nO \u2013 watch out\u2026 for thoughts,
\nFeelings, bodily sensations
\nP \u2013 to be present<\/p>\n

Stop:<\/h3>\n

Stop what you are doing for one minute.<\/p>\n

Take a deep breath:<\/h3>\n

Take a few slow, conscious breaths. Follow your breath as it flows \u2013 without trying to change it. Your breath is an anchor that brings you into the present moment.<\/p>\n

Pay attention... to thoughts, feelings, bodily sensations:<\/h3>\n

Observe what is going on inside you \u2013 without trying to change it. Ask yourself the following questions:<\/p>\n