{"id":4247,"date":"2020-12-30T18:28:47","date_gmt":"2020-12-30T17:28:47","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=4247"},"modified":"2024-01-19T09:26:29","modified_gmt":"2024-01-19T08:26:29","slug":"treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020","title":{"rendered":"SHG Alpha-1 Berlin-Brandenburg meeting on February 14, 2020"},"content":{"rendered":"
<\/div><\/div><\/div>
\n\t
\n\t\t
\n\t\t\t
\n\t\t\t\t\n
\n\t

SHG Alpha-1 Berlin-Brandenburg meeting on February 14, 2020<\/span><\/h1>\n<\/div>\n\n\n\n
<\/div><\/div>
<\/span><\/span>

Author<\/h4><\/span><\/span>\n<\/div>\n
\n\t

Petra Netzel<\/strong><\/p>\n<\/div>\n\n\n\n

<\/div><\/div>\n
\n\t

Our group leader Peter H\u00fcbner wrote in the invitation: \u201cEven though it feels like we are already in the middle of the new year, we hope you have had a good start and would like to wish you all the best, especially good health for 2020!\u201c<\/p>\n

Almost all of our members attended the meeting; unfortunately, some members were unable to participate in the first meeting of our self-help group due to illness.<\/p>\n

Before the discussions began, our guest, Ms. Anje B., who lives in Berlin, introduced herself to our group. Ms. B. is interested in a self-help group for Alpha 1, as she has been diagnosed with an as-yet-undefined Alpha 1 condition.<\/p>\n

Following this, a summary was given of a specialist forum organized by the Tagesspiegel newspaper on the topic: "Rare Diseases: Empowering Small Numbers," which our group leader was able to attend on February 13, 2020. The written report is interesting; we hope to make it available soon on our support group's website at Alpha 1 Germany, so that other interested parties can also read it.<\/p>\n

Our self-help group is interested in another event organized by AOK\/NORD\/OST on March 5, 2020, on the topic of volunteering and its work. The group leader and Ms. Rosi K. will be present. Ms. Netzel informed interested parties that the M\u00e4rkische Sozialverein e.V. (M\u00e4rkische Social Association) is hosting a self-help day on Saturday, February 29, 2020, in Oranienburg, with the theme: "Giving a Voice to the Rare.".<\/p>\n

All group members present received the data protection information and each member signed the data protection form. Mr. H\u00fcbner will forward these forms to board member Thomas Heimann.<\/p>\n

Ask:<\/u><\/p>\n

Is it still possible to have liver function tests performed at Campus Benjamin Franklin, Charit\u00e9, Hindenburgdamm 30, in 12203 Berlin Steglitz?<\/p>\n

Answer:<\/u> Yes, appointments can be made via email. gastro-ambulanz@charite.de<\/a>\u00a0or by telephone via direct dial 0308445 4603.<\/p>\n

The information day in G\u00f6ttingen was mentioned, as well as the registration for participation in the liver study.<\/p>\n

It was decided that the 2nd meeting of the self-help group in May would be cancelled and rescheduled for June 5th, 2020.<\/p>\n

The discussions among ourselves were interesting, and we members realized that we make a good team. Let's keep it that way!<\/p>\n

Signed: Petra Netzel<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 AutorIn Petra Netzel Unser Gruppenleiter Peter H\u00fcbner formulierte in der Einladung: \u201cAuch wenn wir gef\u00fchlt schon wieder mitten im neuen Jahr sind, hoffen wir,...","protected":false},"author":7,"featured_media":3638,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,87],"tags":[],"class_list":["post-4247","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-shg-berlin"],"yoast_head":"\nTreffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:published_time\" content=\"2020-12-30T17:28:47+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-01-19T08:26:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"SHG Berlin-Brandenburg\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"SHG Berlin-Brandenburg\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\"},\"author\":{\"name\":\"SHG Berlin-Brandenburg\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\"},\"headline\":\"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020\",\"datePublished\":\"2020-12-30T17:28:47+00:00\",\"dateModified\":\"2024-01-19T08:26:29+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\"},\"wordCount\":526,\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag.jpg\",\"articleSection\":[\"Allgemein\",\"SHG Berlin\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\",\"name\":\"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag.jpg\",\"datePublished\":\"2020-12-30T17:28:47+00:00\",\"dateModified\":\"2024-01-19T08:26:29+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag.jpg\",\"contentUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag.jpg\",\"width\":1920,\"height\":1080,\"caption\":\"Vortrag mit Pr\u00e4sentation\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Startseite\",\"item\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"name\":\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/alpha1-deutschland.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\",\"name\":\"SHG Berlin-Brandenburg\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/en\\\/author\\\/shg-berlin-brandenburg\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/alpha1-deutschland.org\/en\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\/","og_locale":"en_GB","og_type":"article","og_title":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte","og_url":"https:\/\/alpha1-deutschland.org\/en\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020\/","og_site_name":"Ihr Online Portal f\u00fcr Mitglieder und Interessierte","article_published_time":"2020-12-30T17:28:47+00:00","article_modified_time":"2024-01-19T08:26:29+00:00","og_image":[{"width":1920,"height":1080,"url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg","type":"image\/jpeg"}],"author":"SHG Berlin-Brandenburg","twitter_misc":{"Written by":"SHG Berlin-Brandenburg","Estimated reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#article","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020"},"author":{"name":"SHG Berlin-Brandenburg","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7"},"headline":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020","datePublished":"2020-12-30T17:28:47+00:00","dateModified":"2024-01-19T08:26:29+00:00","mainEntityOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020"},"wordCount":526,"image":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg","articleSection":["Allgemein","SHG Berlin"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020","url":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020","name":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage"},"image":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg","datePublished":"2020-12-30T17:28:47+00:00","dateModified":"2024-01-19T08:26:29+00:00","author":{"@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7"},"breadcrumb":{"@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#primaryimage","url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg","contentUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag.jpg","width":1920,"height":1080,"caption":"Vortrag mit Pr\u00e4sentation"},{"@type":"BreadcrumbList","@id":"https:\/\/alpha1-deutschland.org\/treffen-shg-alpha-1-berlin-brandenburg-am-14-02-2020#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Startseite","item":"https:\/\/alpha1-deutschland.org\/"},{"@type":"ListItem","position":2,"name":"Treffen SHG Alpha-1 Berlin-Brandenburg am 14.02.2020"}]},{"@type":"WebSite","@id":"https:\/\/alpha1-deutschland.org\/#website","url":"https:\/\/alpha1-deutschland.org\/","name":"Your online portal for members and interested parties","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/alpha1-deutschland.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Person","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7","name":"SHG Berlin-Brandenburg","url":"https:\/\/alpha1-deutschland.org\/en\/author\/shg-berlin-brandenburg"}]}},"_links":{"self":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4247","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/comments?post=4247"}],"version-history":[{"count":0,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4247\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media\/3638"}],"wp:attachment":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media?parent=4247"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/categories?post=4247"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/tags?post=4247"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}