{"id":4586,"date":"2021-06-22T12:17:41","date_gmt":"2021-06-22T10:17:41","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=4586"},"modified":"2024-01-19T09:25:04","modified_gmt":"2024-01-19T08:25:04","slug":"virtuelles-gruppentreffen-am-03-06-2021","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/virtuelles-gruppentreffen-am-03-06-2021","title":{"rendered":"Virtual group meeting on June 3, 2021"},"content":{"rendered":"<p>Hello dear readers,<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>The \u201eCorona era\u201c does not yet allow personal meetings, and so we held our meeting virtually again with a few Alphas, 6 people.<\/p>\n<p>With some others<span class=\"Apple-converted-space\">\u00a0 <\/span>We maintain constant contact with members of our self-help group through a WhatsApp group, as virtual participation via laptop or mobile phone is not possible.<span class=\"Apple-converted-space\">\u00a0 <\/span>it doesn&#039;t work or the devices are not available.<\/p>\n<p>Regarding WhatsApp, there was a suggestion to switch to &quot;Signal&quot; or &quot;Telegram&quot;\u201e<span class=\"Apple-converted-space\">\u00a0 <\/span>This may be necessary due to the terms of use, however, it is a personal decision of the individual user.<\/p>\n<p>Petra Netzel provided information from the virtual group leader meeting of May 11, 2021, noting that further information can be found online at [website address]. <a href=\"https:\/\/alpha1-deutschland.org\/en\/\">www.alpha1-deutschland.org<\/a> can be found. Specifically, this concerns various studies on the topic of Alpha1.<\/p>\n<p>Naturally, we are looking for &quot;alphas&quot; who participate in studies, and some group members have already participated in studies or are currently doing so. It is always important to thoroughly research the content of the presented study and then decide for yourself whether it is a good fit for you personally.<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>Another point was the use of additional information from our homepage. <span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>Peter H\u00fcbner showed the way to the homepage and<span class=\"Apple-converted-space\">\u00a0 <\/span>clicked on some topics, such as lectures about AlphaCare or lung exercise and movement in everyday life, <span class=\"Apple-converted-space\">\u00a0 <\/span>above<span class=\"Apple-converted-space\">\u00a0 <\/span>YouTube, or the information<span class=\"Apple-converted-space\">\u00a0 <\/span>e.g. Alpha1 Information Day 2021 including a large anniversary celebration from September 24th to September 26th, 2021.<\/p>\n<p>Speaking of which<span class=\"Apple-converted-space\">\u00a0 <\/span>Information day in September in Kassel. More specific details will follow. Preparations are currently in full swing. We can already announce that the liver examination will be offered again. There will be many interesting presentations and a raffle, but we still need donations of items. If you have anything you can contribute, please contact the group leader by email or phone, or inform Marion Wilkens directly.<\/p>\n<p>An information board about SHG with pictures would also be a welcome addition!<\/p>\n<p>Alpha1 Germany e.V. would like to create a new book with patient stories. They also request that anyone with information about the beginnings of the Alpha1 association please send it to the group leader or the board by mid-June 2021.<\/p>\n<p>Our virtual evening was rich in content, and many personal matters concerning the Alpha1 liver study and prolastin substitution were addressed. This led to a lively exchange of ideas, with advice and support offered. A vibrant discussion permeated our evening.<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>Finally, Peter H\u00fcbner suggested that the next meeting in August should be held outdoors or in a restaurant. The prerequisites being that...<span class=\"Apple-converted-space\">\u00a0 <\/span>\u201eAllow the &quot;corona rules&quot; that will then apply.<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>All group members will be involved in the decision and informed promptly.<\/p>\n<p>Have a great holiday and stay healthy, all Alphas!<\/p>\n<p>Signed: Petra Netzel<\/p>","protected":false},"excerpt":{"rendered":"<p>Hello dear readers, the &quot;Corona era&quot; still doesn&#039;t allow for in-person gatherings, so we held our meeting virtually again with a small group of Alphas, 6 people. With some\u2026<\/p>","protected":false},"author":7,"featured_media":3640,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,8,87],"tags":[],"class_list":["post-4586","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-gruppentreffen","category-shg-berlin"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Virtuelles Gruppentreffen am 03.06.2021 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/virtuelles-gruppentreffen-am-03-06-2021\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Virtuelles Gruppentreffen am 03.06.2021 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"og:description\" content=\"Hallo liebe Leserinnen und Leser,\u00a0 die \u201eCorona Zeit\u201c l\u00e4sst pers\u00f6nliche Zusammenk\u00fcnfte noch nicht zu und somit f\u00fchrten wir unser Meeting mit wenigen Alphas, 6 Personen, virtuell wieder durch. Mit einigen...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/virtuelles-gruppentreffen-am-03-06-2021\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:published_time\" content=\"2021-06-22T10:17:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-01-19T08:25:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"SHG Berlin-Brandenburg\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"SHG Berlin-Brandenburg\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021\"},\"author\":{\"name\":\"SHG Berlin-Brandenburg\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\"},\"headline\":\"Virtuelles Gruppentreffen am 03.06.2021\",\"datePublished\":\"2021-06-22T10:17:41+00:00\",\"dateModified\":\"2024-01-19T08:25:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021\"},\"wordCount\":461,\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag-Alpha1-Deutschland.jpg\",\"articleSection\":[\"Allgemein\",\"Gruppentreffen\",\"SHG Berlin\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021\",\"name\":\"Virtuelles Gruppentreffen am 03.06.2021 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag-Alpha1-Deutschland.jpg\",\"datePublished\":\"2021-06-22T10:17:41+00:00\",\"dateModified\":\"2024-01-19T08:25:04+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag-Alpha1-Deutschland.jpg\",\"contentUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Vortrag-Alpha1-Deutschland.jpg\",\"width\":1920,\"height\":1080,\"caption\":\"Vortrag mit Pr\u00e4sentation\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/virtuelles-gruppentreffen-am-03-06-2021#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Startseite\",\"item\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Virtuelles Gruppentreffen am 03.06.2021\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"name\":\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/alpha1-deutschland.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/885ac67bed1eb5e6c1508b4d88d44ce7\",\"name\":\"SHG Berlin-Brandenburg\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/en\\\/author\\\/shg-berlin-brandenburg\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Virtual group meeting on June 3, 2021 - Your online portal for members and interested parties","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/alpha1-deutschland.org\/en\/virtuelles-gruppentreffen-am-03-06-2021\/","og_locale":"en_GB","og_type":"article","og_title":"Virtuelles Gruppentreffen am 03.06.2021 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte","og_description":"Hallo liebe Leserinnen und Leser,\u00a0 die \u201eCorona Zeit\u201c l\u00e4sst pers\u00f6nliche Zusammenk\u00fcnfte noch nicht zu und somit f\u00fchrten wir unser Meeting mit wenigen Alphas, 6 Personen, virtuell wieder durch. Mit einigen...","og_url":"https:\/\/alpha1-deutschland.org\/en\/virtuelles-gruppentreffen-am-03-06-2021\/","og_site_name":"Ihr Online Portal f\u00fcr Mitglieder und Interessierte","article_published_time":"2021-06-22T10:17:41+00:00","article_modified_time":"2024-01-19T08:25:04+00:00","og_image":[{"width":1920,"height":1080,"url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg","type":"image\/jpeg"}],"author":"SHG Berlin-Brandenburg","twitter_misc":{"Written by":"SHG Berlin-Brandenburg","Estimated reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#article","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021"},"author":{"name":"SHG Berlin-Brandenburg","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7"},"headline":"Virtuelles Gruppentreffen am 03.06.2021","datePublished":"2021-06-22T10:17:41+00:00","dateModified":"2024-01-19T08:25:04+00:00","mainEntityOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021"},"wordCount":461,"image":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg","articleSection":["Allgemein","Gruppentreffen","SHG Berlin"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021","url":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021","name":"Virtual group meeting on June 3, 2021 - Your online portal for members and interested parties","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage"},"image":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg","datePublished":"2021-06-22T10:17:41+00:00","dateModified":"2024-01-19T08:25:04+00:00","author":{"@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7"},"breadcrumb":{"@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#primaryimage","url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg","contentUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Vortrag-Alpha1-Deutschland.jpg","width":1920,"height":1080,"caption":"Vortrag mit Pr\u00e4sentation"},{"@type":"BreadcrumbList","@id":"https:\/\/alpha1-deutschland.org\/virtuelles-gruppentreffen-am-03-06-2021#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Startseite","item":"https:\/\/alpha1-deutschland.org\/"},{"@type":"ListItem","position":2,"name":"Virtuelles Gruppentreffen am 03.06.2021"}]},{"@type":"WebSite","@id":"https:\/\/alpha1-deutschland.org\/#website","url":"https:\/\/alpha1-deutschland.org\/","name":"Your online portal for members and interested parties","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/alpha1-deutschland.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Person","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/885ac67bed1eb5e6c1508b4d88d44ce7","name":"SHG Berlin-Brandenburg","url":"https:\/\/alpha1-deutschland.org\/en\/author\/shg-berlin-brandenburg"}]}},"_links":{"self":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4586","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/comments?post=4586"}],"version-history":[{"count":0,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4586\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media\/3640"}],"wp:attachment":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media?parent=4586"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/categories?post=4586"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/tags?post=4586"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}