{"id":4817,"date":"2022-03-02T17:07:01","date_gmt":"2022-03-02T16:07:01","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=4817"},"modified":"2024-04-02T13:46:03","modified_gmt":"2024-04-02T11:46:03","slug":"01-2022-alpha1-deutschland-e-v-zeichnet-who-luftqualitaetsleitlinien-2021-mit","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/01-2022-alpha1-deutschland-e-v-zeichnet-who-luftqualitaetsleitlinien-2021-mit","title":{"rendered":"01\/2022: Alpha1 Deutschland eV signs WHO air quality guidelines 2021"},"content":{"rendered":"
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Alpha1 Germany eV.<\/b><\/p>\n<\/div>\n\n\n\n

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This time we are putting the Corona news at the end of the newsletter, because we should give more space to other things in life.<\/p>\n

During the dreary months, we diligently worked behind the scenes to raise awareness and prepare for the future.<\/p>\n<\/div>\n\n\n\n

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In late autumn of last year, Alpha1 Germany launched the \u201eWHO Air Quality Guidelines 2021 \u2013 Healthier air for all: A joint statement by medical professionals, health professionals, scientific societies and patient representatives<\/a>\u201csigned. We can all feel daily that air quality clearly has an impact on our lives as people with lung disease. Therefore, we are committed to improving the air we breathe.\u201d.<\/p>\n<\/div>\n\n\n\n

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Discussion: Advantages and disadvantages of telemedicine<\/span><\/h2>\n<\/div>\n\n\n\n
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Together with the German Respiratory League (Deutsche Atemwegsliga e. V.), the Federal Association of Pulmonologists (Bundesverband der Pneumologen, BdP), the Association of Pulmonary Clinics (Verband Pneumologischer Kliniken e. V., VPK), the Working Group on Lung Sports in Germany (AG Lungensport in Deutschland e. V.), and the eHealth Working Group of the German Respiratory League's Supporting Association (F\u00f6rderverein der Deutschen Atemwegsliga e. V.), we at Alpha1 Germany discussed the advantages and disadvantages of telemedicine concepts and the implementation of video consultations in an online workshop in April 2021. The results were published in the Pulmonology (Thieme Publishing)<\/a> published.<\/p>\n<\/div>\n\n\n\n

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There are new podcasts since our last newsletter:<\/span><\/h2>\n<\/div>\n\n\n\n
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Episode 6: Alpha-1 and Psyche \u2013 Communication Part 2: Silence is not always golden \u2013 how good communication can succeed<\/h3>\n

In this podcast, continuing her series on communication, Ms. Tempel focuses on conversations involving other groups of people, beyond the typical family-patient relationship. She also addresses communicatively challenging situations, explaining them with examples and offering solutions. As a physician specializing in psychopneumology, Ms. Tempel provides practical guidance in these two communication chapters, enabling listeners to navigate even the most demanding situations.<\/p>\n

Episode 7: Alpha-1 and Psyche \u2013 The Power of Resilience<\/h3>\n

In this podcast episode, Ms. Tempel discusses the frequently mentioned topic of resilience. But what exactly is it? And how can someone with a chronic illness utilize this mental resilience in their life? Ms. Tempel answers all these questions and more in this podcast. She also talks about the importance of self-efficacy and shows how various tools can be used to overcome future crises.<\/p>\n

Episode 8: Lungs & Liver<\/h3>\n

In this podcast episode, Professor Strnad and his colleague Ms. Amzou from the Alpha-1 Liver Center in Aachen explain the liver changes that can occur in adults with alpha-1 antitrypsin deficiency. Professor Strnad's research team focuses on the liver health of alpha-1 patients and provides them with support and guidance. The team of experts also offers helpful lifestyle tips and information on risk factors, enabling patients to identify these in their daily lives and minimize risks.<\/p>\n

The podcasts are a joint project of Alpha1 Deutschland eV and CSL Behring.<\/p>\n<\/div>\n\n\n\n

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\u201e"A communication guide for Alpha-1 caregivers"\u201c<\/span><\/h2>\n<\/div>\n\n\n\n
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Are you already familiar with our new brochure \u201eA Communication Guide for Alpha-1 Caregivers\u201c?<\/p>\n

This new brochure was created in collaboration with Ms. Tempel and can be found at our website<\/a>\u00a0It can be downloaded. A wonderful tool for everyone who cares for us so lovingly. Thank you to Ms. Tempel and all our caregivers!<\/p>\n<\/div>\n\n\n\n

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In short<\/span><\/h2>\n<\/div>\n\n\n\n
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The coronavirus pandemic still hasn't let go, but spring is coming, and with it, falling infection rates. We want to look to the future with optimism: In a webinar at the end of January 2022, the American Alpha1 Foundation reported that, according to a survey in the Alphanet registry, 1,189 Alphas had been infected with the coronavirus, while 6,672 had not. This means that 12 of those registered there were infected.<\/p>\n