{"id":4878,"date":"2022-04-14T17:35:35","date_gmt":"2022-04-14T15:35:35","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=4878"},"modified":"2024-04-02T13:39:35","modified_gmt":"2024-04-02T11:39:35","slug":"02-2022-vom-singen-corona-und-ostern","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/02-2022-vom-singen-corona-und-ostern","title":{"rendered":"02\/2022: On singing, Corona and Easter"},"content":{"rendered":"
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Alpha1 Germany eV.<\/b><\/p>\n<\/div>\n\n\n\n

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We cordially invite you to this year's general meeting of Alpha1 Germany e.V. on April 29, 2022 at 6 p.m. \u2013 hopefully for the last time online in the form of a Zoom conference (exclusively digital). Those interested in participating in the online conference should register by April 21, 2022 via the following email address: mgv22@alpha1-deutschland.org<\/a>. You will then receive your login details.<\/p>\n

Not yet a member? You can find the application form and the statutes here. here<\/a>.<\/p>\n

Following the general meeting, Dr. Alexander Rupp, head of the Alpha1 Center in Stuttgart and head of the Pneumological Practice in the Center (PIZ), will speak about the specific treatment of Alpha-1, COPD and asthma <\/strong>He will give a presentation and is available to answer questions, which may be submitted in advance.<\/p>\n

Why is membership important? You can find most of the information on our website or in our newsletter anyway. Your membership strengthens us and our work. A patient organization for a rare disease certainly receives more attention when its membership exceeds 1,000; that's our goal, and we need you to achieve it!<\/p>\n<\/div>\n\n\n\n

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Singing for lungs and mind<\/span><\/h2>\n<\/div>\n\n\n\n
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Spring is fast approaching, are your emotions also on a rollercoaster ride? Sometimes spring fatigue overwhelms us, and then suddenly they're there: spring fever, complete with a song on our lips. Ms. Tempel explains what this emotional carousel can do to you on her [website\/platform name]. Homepage<\/a>Try entering the search term "\u201eSing<\/a>\u201cOne. Did you know that this area has been scientifically researched? More importantly, it's fun and, simply put, it trains your lungs!\u201d<\/p>\n

The Easter tip at the end of the newsletter also helps against spring fatigue.<\/p>\n<\/div>\n\n\n\n

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Heavy food prepared simply<\/span><\/h2>\n

No, we're not talking about food. We're talking about palliative care. Our first thought is usually the end of the illness \u2013 death. It's not something we like to think about. Yet, two experts, Dr. De Zeeuw and Dr. Delis, do just that in the Boehringer Ingelheim podcast. on Spotify<\/a>\u00a0or Apple Podcasts<\/a>.<\/p>\n

Absolutely worth listening to and not at all heavy going!<\/p>\n<\/div>\n\n\n\n

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Substitution in the home environment\u00a0<\/span><\/h2>\n

Many patients are waiting for news about how substitution therapy at home will continue. Unfortunately, we don't have good news on this; or rather, we have... no<\/strong> News. As of March 31, 2022, the Grifols home infusion program has been discontinued, supply shortages at CSL Behring are ongoing, and we are no longer the country with the best possible supply. The USA has taken an important step with the Introduction of a John W. Walsh Home Infusion Act<\/a> We've done it! Unfortunately, we're not quite there yet. Of course, we'll let you know if there are any updates.<\/p>\n<\/div>\n\n\n\n

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News about Corona<\/span><\/h2>\n<\/div>\n\n\n\n
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The measures to contain the coronavirus are being relaxed or even lifted. This leads to legitimate questions: How should one behave now? Has my personal risk increased? What should I continue to do to protect myself? Many people continue to wear masks, and increased hygiene measures should now be part of everyday life \u2013 not just during the coronavirus pandemic.<\/p>\n

You can find out what our member J\u00fcrgen Frischmann thinks about this in his interview with t-online.<\/a><\/p>\n

We should continue to encourage friends and acquaintances to get vaccinated, as this remains the best protection against severe cases \u2013 even for us Alphas. There are now many reports from Alpha-1 patients who have recovered from a Covid-19 infection. Fortunately, the initial assumption that our risk is elevated, but that an infection does not automatically lead to a severe case, is proving true.<\/p>\n

Some individuals have already received their fourth vaccination. The Standing Committee on Vaccination (STIKO) recommends a second booster vaccination for people aged 70 and over, residents and those receiving care in nursing facilities, people with immunodeficiency aged five and over, and staff in medical and nursing facilities. For high-risk groups, the second booster vaccination should be administered no sooner than three months after the first booster vaccination with an mRNA vaccine. Staff in medical and nursing facilities should receive the second booster vaccination no sooner than six months later. People who have had a SARS-CoV-2 infection after the first booster vaccination are not recommended to receive a further booster vaccination.<\/a><\/p>\n

However, it's advisable to wait and see for children without immunodeficiency. Currently, experts in Germany see no reason to administer the second booster vaccination to children and adolescents (and if they do, it should be with a significantly longer interval than for adults).
\nFrom a training session on Covid-19 in children, we would like to share the following quotes with you:<\/p>\n