{"id":4896,"date":"2022-05-10T14:35:32","date_gmt":"2022-05-10T12:35:32","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=4896"},"modified":"2022-06-28T17:11:27","modified_gmt":"2022-06-28T15:11:27","slug":"studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten","title":{"rendered":"Study call for patients with rare alpha1-antitrypsin variants"},"content":{"rendered":"<div id=\"fws_6a8f43621e310\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Alpha1 study team Aachen<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Within the framework of the Alpha1 liver study at Aachen University Hospital, we are increasingly focusing on rare genotypes. Currently, data on these genotypes is very limited, which complicates patient counseling. To change this, we need to understand what happens to the rare Alpha1 variants within cells. To avoid invasive liver biopsies, we want to investigate the turnover of these variants in blood cells and use them as a window into the liver.<\/p>\n<p>On June 11, 2022, we are organizing a patient day at our clinic in Aachen as part of the Alpha-1 study, and we would be delighted to welcome you. Several presentations on Alpha-1 antitrypsin deficiency will be given, and we will also be offering the standard liver and lung examinations. In addition, we would appreciate it if you could provide us with a blood sample for the tests described above. A standard blood draw is sufficient for this.<\/p>\n<p>If you are interested in helping us better understand rare Alpha1 variants, we would be delighted if you registered for our patient day. You can find all the information on our website (<a href=\"https:\/\/www.ukaachen.de\/kliniken-institute\/alpha1-leberzentrum\/alpha1-antitrypsin-mangel-aatm\/versorgungsangebote\/aachener-alpha1-patiententag\/\" target=\"_blank\" rel=\"noopener\">Aachen Alpha1 Patient Day (ukaachen.de)<\/a>If you are unable to attend the patient day but would still like to support us, we would be happy to arrange an appointment with you by phone.<\/p>\n<p>If you have any further questions, please feel free to contact us at any time via email (<a href=\"mailto:alpha1@ukaachen.de\">alpha1@ukaachen.de<\/a>) or by phone (Alpha1 mobile: 0241- 80 36606) to our study team.<\/p>\n<p>Thank you very much for your support!<\/p>\n<p>Best regards<br \/>\nYour Alpha1 study team Aachen<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author: Alpha1 Study Team Aachen Within the framework of the Alpha1 liver study at Aachen University Hospital, we are increasingly focusing on rare genotypes. So far, the data situation is very limited, particularly regarding patient consultation...","protected":false},"author":1,"featured_media":4897,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,39],"tags":[],"class_list":["post-4896","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha-1-leber"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:published_time\" content=\"2022-05-10T12:35:32+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-06-28T15:11:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\"},\"author\":{\"name\":\"Redaktion Alpha1 Deutschland e.V.\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\"},\"headline\":\"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten\",\"datePublished\":\"2022-05-10T12:35:32+00:00\",\"dateModified\":\"2022-06-28T15:11:27+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\"},\"wordCount\":426,\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Studienaufruf-2.jpg\",\"articleSection\":[\"Allgemein\",\"Alpha-1 &amp; Leber\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\",\"name\":\"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Studienaufruf-2.jpg\",\"datePublished\":\"2022-05-10T12:35:32+00:00\",\"dateModified\":\"2022-06-28T15:11:27+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Studienaufruf-2.jpg\",\"contentUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Studienaufruf-2.jpg\",\"width\":1920,\"height\":1080,\"caption\":\"Studienaufruf: Patienten mit seltenen Alpha1-Antitrypsin Varianten\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Startseite\",\"item\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"name\":\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/alpha1-deutschland.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\",\"name\":\"Redaktion Alpha1 Deutschland e.V.\",\"sameAs\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"https:\\\/\\\/www.instagram.com\\\/alpha1deutschland\\\/\",\"https:\\\/\\\/www.linkedin.com\\\/in\\\/marion-wilkens-1b71b6a4\\\/?originalSubdomain=de\",\"https:\\\/\\\/www.youtube.com\\\/channel\\\/UCkcwpGZWn3cQIXp931xMqbA\"],\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/en\\\/author\\\/admin\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Study call for patients with rare Alpha1-antitrypsin variants - Your online portal for members and interested parties","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/alpha1-deutschland.org\/en\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\/","og_locale":"en_GB","og_type":"article","og_title":"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten - Ihr Online Portal f\u00fcr Mitglieder und Interessierte","og_url":"https:\/\/alpha1-deutschland.org\/en\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten\/","og_site_name":"Ihr Online Portal f\u00fcr Mitglieder und Interessierte","article_published_time":"2022-05-10T12:35:32+00:00","article_modified_time":"2022-06-28T15:11:27+00:00","og_image":[{"width":1920,"height":1080,"url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg","type":"image\/jpeg"}],"author":"Redaktion Alpha1 Deutschland e.V.","twitter_misc":{"Written by":"Redaktion Alpha1 Deutschland e.V.","Estimated reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#article","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten"},"author":{"name":"Redaktion Alpha1 Deutschland e.V.","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631"},"headline":"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten","datePublished":"2022-05-10T12:35:32+00:00","dateModified":"2022-06-28T15:11:27+00:00","mainEntityOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten"},"wordCount":426,"image":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg","articleSection":["Allgemein","Alpha-1 &amp; Leber"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten","url":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten","name":"Study call for patients with rare Alpha1-antitrypsin variants - Your online portal for members and interested parties","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage"},"image":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg","datePublished":"2022-05-10T12:35:32+00:00","dateModified":"2022-06-28T15:11:27+00:00","author":{"@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631"},"breadcrumb":{"@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#primaryimage","url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg","contentUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Studienaufruf-2.jpg","width":1920,"height":1080,"caption":"Studienaufruf: Patienten mit seltenen Alpha1-Antitrypsin Varianten"},{"@type":"BreadcrumbList","@id":"https:\/\/alpha1-deutschland.org\/studienaufruf-fuer-patienten-mit-seltenen-alpha1-antitrypsin-varianten#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Startseite","item":"https:\/\/alpha1-deutschland.org\/"},{"@type":"ListItem","position":2,"name":"Studienaufruf f\u00fcr Patienten mit seltenen Alpha1-Antitrypsin Varianten"}]},{"@type":"WebSite","@id":"https:\/\/alpha1-deutschland.org\/#website","url":"https:\/\/alpha1-deutschland.org\/","name":"Your online portal for members and interested parties","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/alpha1-deutschland.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Person","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631","name":"Editorial team Alpha1 Germany eV.","sameAs":["https:\/\/alpha1-deutschland.org\/","https:\/\/www.instagram.com\/alpha1deutschland\/","https:\/\/www.linkedin.com\/in\/marion-wilkens-1b71b6a4\/?originalSubdomain=de","https:\/\/www.youtube.com\/channel\/UCkcwpGZWn3cQIXp931xMqbA"],"url":"https:\/\/alpha1-deutschland.org\/en\/author\/admin"}]}},"_links":{"self":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4896","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/comments?post=4896"}],"version-history":[{"count":0,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/4896\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media\/4897"}],"wp:attachment":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media?parent=4896"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/categories?post=4896"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/tags?post=4896"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}