{"id":5157,"date":"2022-08-29T11:21:49","date_gmt":"2022-08-29T09:21:49","guid":{"rendered":"https:\/\/www.alpha1-deutschland.org\/?p=5157"},"modified":"2022-08-29T11:21:49","modified_gmt":"2022-08-29T09:21:49","slug":"neue-beobachtungsstudie-von-csl-behring-fuer-patienten-in-heimselbsttherapie","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/neue-beobachtungsstudie-von-csl-behring-fuer-patienten-in-heimselbsttherapie","title":{"rendered":"New observational study by CSL Behring for patients in home self-therapy"},"content":{"rendered":"<div id=\"fws_6a8d99b9e6b8c\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>CSL Behring<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Do you suffer from alpha-1 antitrypsin deficiency (AATD) and are currently self-administering CSL Behring alpha-1 antitrypsin, or have you discussed with your doctor that you will soon be self-administering this medication?<\/p>\n<p>Then you are cordially invited to participate in this patient survey as part of an observational study!<\/p>\n<p>The aim of this survey is to gather further insights into the use of CSL Behring&#039;s Alpha-1 Antitrypsin in home\/self-treatment directly from you as a user. How well do you manage with the application? What impact does home\/self-treatment have on your daily life and quality of life? Which aspects are less important to you, and which are particularly important?<\/p>\n<p>Your participation in this patient survey will not provide you with any personal benefit beyond the benefits of the treatment. However, your experiences will help to continuously optimize home\/self-treatment for you and future patients, and to better tailor it to the needs of users.<br \/>\nIf you participate in the study, you would be asked to complete specific questionnaires at 4-6 regular intervals over a period of 12-15 months. The questionnaires can be completed digitally using your smartphone, tablet, or laptop\/PC.<\/p>\n<p>The scientific director of the study is Prof. Rembert Koczulla (Sch\u00f6n Clinic in Sch\u00f6nau).<\/p>\n<p><strong>If you are interested in participating in this observational study, please contact Alpha1 Germany, who will be happy to send you a study flyer. This flyer contains further information about the study as well as an individual QR code that you can use to register for participation.<\/strong><\/p>\n<p>Thank you very much for your interest!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author: CSL Behring. You suffer from alpha-1 antitrypsin deficiency (AATD) and are currently self-administering CSL Behring alpha-1 antitrypsin, or have discussed with your doctor that you will soon be taking this medication...","protected":false},"author":1,"featured_media":5158,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,40],"tags":[],"class_list":["post-5157","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-forschung-und-studien"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Neue Beobachtungsstudie von CSL Behring f\u00fcr Patienten in Heimselbsttherapie - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/neue-beobachtungsstudie-von-csl-behring-fuer-patienten-in-heimselbsttherapie\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Neue Beobachtungsstudie von CSL Behring f\u00fcr Patienten in Heimselbsttherapie - 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