On September 24, 2022, members and interested parties met for the first time at Rohrbacher Schl\u00f6sschen on the grounds of the Thorax Clinic in Heidelberg for the 1st Alpha-1 Patient Day.<\/p>\n
After an initial get-together over coffee and tea, the event started around 9:45 a.m. in the well-attended hall with a welcome and introduction of the patient organization Alpha1 Deutschland eV by the chairwoman, Ms. Marion Wilkens.<\/p>\n
Afterwards, I, Carsten B\u00fcch, introduced myself to the visitors and speakers as the new group leader of the Rhine-Neckar-Odenwald region.<\/p>\n
This was followed by a presentation from the host, Dr. Franziska Trudzinski, on the topic "Diagnosis AATM - What happens next?", which was followed by Dr. Nicole Theissig's presentation on the topic "Why should I, as a patient, participate in a study?".<\/p>\n
After a small refreshment with butter pretzels and sweet pastries, we listen to the lecture by Dr. Maria Ada Presotto entitled "How do I get fit for autumn?".<\/p>\n
Together we then ended the official part around 1 p.m. with thanks to the speakers and to CSL Behring, represented by Dr. Burmeister and Dr. K\u00f6gler, who made the patient day possible.<\/p>\n
During the subsequent lunch, experiences and contact details could be exchanged.<\/p>\n
Numerous participants also decided to be back again on October 8th in Stuttgart for the patient day, which will include liver fibroscan.<\/p>\n
At the end of the day, one thing was already clear:<\/p>\n
Sequel follows \u2026.<\/p>\n
Yours truly, Carsten B\u00fcch<\/p>\n
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