{"id":5796,"date":"2024-01-22T11:36:38","date_gmt":"2024-01-22T10:36:38","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=5796"},"modified":"2024-01-24T11:47:18","modified_gmt":"2024-01-24T10:47:18","slug":"umfrage-ergebnisse-zur-lebensqualitaet-von-lungenpatienten-waehrend-der-covid-19-pandemie","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/umfrage-ergebnisse-zur-lebensqualitaet-von-lungenpatienten-waehrend-der-covid-19-pandemie","title":{"rendered":"Survey results on the quality of life of lung patients during the COVID-19 pandemic"},"content":{"rendered":"<div id=\"fws_6a8fc2ca2797d\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Marion Wilkens, Alpha1 Germany eV, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 1\/2022<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Together with the research panel (JamesLindCare), we conducted a survey on the quality of life of Alpha-1 patients during the pandemic. Thirty-four patients participated in 2021\/2022; 21 completed the survey in full and are subsequently counted as 100 percent. Although this data can only provide a small insight into the experiences of people with lung diseases, specifically Alpha-1 patients, it nevertheless reflects the trends of nationwide surveys on quality of life during pandemics (see the survey by the Robert Koch Institute).<\/p>\n<h2><span style=\"color: #004267;\">The results are as follows:<\/span><\/h2>\n<p>Our daily lives were significantly impacted by the Covid-19 pandemic, even after we had fully vaccinated. Alpha-1 patients are familiar with this, as many withdrew from public life, behaved cautiously, and protected themselves as best as possible.<\/p>\n<p>The results in detail for the predominantly 41-60 year old (67 %) and predominantly male participants (62 %):<\/p>\n<ul>\n<li>With the exception of three individuals, all were diagnosed with alpha-1 antitrypsin deficiency (86 %)<\/li>\n<li>100 of the respondents had been vaccinated at least twice.<\/li>\n<li>In the first year of the pandemic, the health status of 43 % remained unchanged, in 10 % it deteriorated significantly, in 33 % it deteriorated somewhat, and in 14 % it even improved slightly.<\/li>\n<li>43 patients with % reported having no exacerbation in the past year: five had impaired lung function, seven had increasing shortness of breath, and five also had increased coughing\/mucus production (multiple responses were possible here).<\/li>\n<li>More than half of the lung patients were afraid of contracting the disease (57 %), 38 % were worried that the lung disease would worsen.<\/li>\n<li>Last year, 95 people with type 1 diabetes visited their family doctor for various reasons, but only 81 visited their pulmonologist (who underwent, among other things, a lung function test). 24 people with type 1 diabetes received hospital treatment.<\/li>\n<li>29 people with % visited their family doctor more often than before the pandemic, 10 people with % visited less often.<\/li>\n<li>19 people with type 1 T3 visited their pulmonologist more often than before the pandemic, 14 people with type 1 T3 visited less often.<\/li>\n<li>52 people with type 1 diabetes felt protected by the vaccination and dared to go out in public again, 14 people with type 1 diabetes were unsure and 33 people with type 1 diabetes felt unprotected.<\/li>\n<li>71 % were afraid of further mutations of the coronavirus.<\/li>\n<li>57 % attended all appointments at the hospital, 24 % avoided hospital visits despite acute problems, and 19 % only postponed scheduled appointments.<\/li>\n<li>19 % say they have fears about the future<\/li>\n<\/ul>\n<p>Similar results and additional information on therapy adherence were obtained from a survey conducted by the company Grifols among AlphaCare patients, which will be published shortly in the journal Pneumologie.<\/p>\n<p>Thank you for your participation, which made it possible to present these interesting figures. We also encourage you to continue participating in surveys relevant to Alpha, which we will feature on our homepage banners. Thank you again for your future cooperation!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8fc2ca291a6\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"2%\" data-bottom-percent=\"2%\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: calc(100vw * 0.02); padding-bottom: calc(100vw * 0.02); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Impfstatus.jpg\" class=\"pp\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1080\" width=\"1012\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Impfstatus.jpg\" alt=\"Informationsgrafik: Impfstatus der Befragten\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Impfstatus.jpg 1012w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Impfstatus-281x300.jpg 281w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Impfstatus-960x1024.jpg 960w, 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class=\"pp\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1080\" width=\"1012\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Veraenderung-Gesundheit.jpg\" alt=\"Informationsgrafik: Ver\u00e4nderung des Gesundheitszustandes\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Veraenderung-Gesundheit.jpg 1012w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Veraenderung-Gesundheit-281x300.jpg 281w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Veraenderung-Gesundheit-960x1024.jpg 960w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Veraenderung-Gesundheit-768x820.jpg 768w\" sizes=\"auto, (max-width: 1012px) 100vw, 1012px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung.jpg\" class=\"pp\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1080\" width=\"1012\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung.jpg\" alt=\"Informationsgrafik: Sicherheitsgef\u00fchl durch Impfung\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung.jpg 1012w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung-281x300.jpg 281w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung-960x1024.jpg 960w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Grafik-Sicherheit-Impfung-768x820.jpg 768w\" sizes=\"auto, (max-width: 1012px) 100vw, 1012px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Marion Wilkens, Alpha1 Germany e.V., as published in the Alpha1 Journal 1\/2022. Together with the research panel (JamesLindCare), we conducted a survey on the quality of life of Alpha-1 patients during the pandemic...","protected":false},"author":1,"featured_media":5800,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,61],"tags":[],"class_list":["post-5796","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-corona"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Umfrage-Ergebnisse: Lebensqualit\u00e4t w\u00e4hrend COVID-19<\/title>\n<meta name=\"description\" content=\"Unsere Umfrage zeigt, wie es Alpha-1-Patienten hinsichtlich der Lebensqualit\u00e4t w\u00e4hrend der Pandemie ergangen ist.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link 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