{"id":5857,"date":"2020-01-26T16:04:45","date_gmt":"2020-01-26T15:04:45","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=5857"},"modified":"2024-01-26T16:08:41","modified_gmt":"2024-01-26T15:08:41","slug":"vorwort-alpha1-journal-1-2020","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/vorwort-alpha1-journal-1-2020","title":{"rendered":"Foreword Alpha1 Journal 1\/2020"},"content":{"rendered":"<div id=\"fws_6a8fa25fa5a37\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Marion Wilkens, Alpha1 Germany eV, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 1\/2020<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Dear readers, Alphas and family members,<\/p>\n<p>What a strange time! We would have loved to see you all again, instead of just writing to you, as on page 10. But we all know it&#039;s better to avoid large gatherings right now. It is expected that<br \/>\nThere won&#039;t be many meetings this year where people with lung and\/or liver diseases can get together. We&#039;ll make up for everything in the anniversary year of 2021 and are really looking forward to seeing each other again then, healthy and with many personal experiences to share.<\/p>\n<p>Personally, I reacted to the coronavirus crisis in several stages: I started with optimism: &quot;Oh, this won&#039;t knock me down.&quot; Then came the worries about many of our Alphas, who have severe lung damage and some even heard their doctors say things like, &quot;If you get infected, you won&#039;t survive.&quot; The images from Italy, Spain, and many other countries couldn&#039;t completely dispel my optimism, and I also began to worry\u2014for myself, too.<\/p>\n<p>As so often happens, searching for information and evaluating it proved helpful. Together, we at Alpha1 Germany tried to share our knowledge through our newsletters (see page 13) and asked our experts many questions. We&#039;ve never had so many concerned callers or so many consultations. Often, these were people who had known for years that they were an Alpha but had never addressed it \u2013 and they were often young.<\/p>\n<p>Every crisis also has its positive aspects, and we&#039;d like to mention one here: The Alpha1 world has grown closer! We&#039;ve had many exchanges with our colleagues from other countries, and the improved collaboration is also noticeable among the doctors. Exchanging and sharing information is so important \u2013 now more than ever.<\/p>\n<p>Once again, we would like to thank the many doctors, researchers and experts who are committed to helping us, are always available for us and answer our questions.<\/p>\n<p>We hope that even without the speakers&#039; reports from the information day, we have compiled interesting content for you that you can now read in this issue. Actually, we&#039;re not entirely without reports! Thanks to Mr. Greulich, there&#039;s a great presentation about general information, new developments, and rare mutations in AATM available to listen to on our YouTube channel, Alpha-1-Deutschland. Feel free to check it out; it&#039;s worth it!<\/p>\n<p>Her<\/p>\n<p>Marion Wilkens<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Marion Wilkens, Alpha1 Germany e.V., as published in the Alpha1 Journal 1\/2020. Dear readers, Alphas and their families, what a strange time! 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