{"id":5878,"date":"2017-05-11T17:00:07","date_gmt":"2017-05-11T15:00:07","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=5878"},"modified":"2024-02-07T17:03:25","modified_gmt":"2024-02-07T16:03:25","slug":"vorwort-alpha1-journal-1-2017","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/vorwort-alpha1-journal-1-2017","title":{"rendered":"Foreword Alpha1-Journal 1\/2017"},"content":{"rendered":"<div id=\"fws_6aa898722de2c\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p><strong>Marion Wilkens, Alpha1 Germany eV, as published in\u00a0<a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 1\/2017<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Dear readers, Alphas and family members,<\/p>\n<p>Do you also love doing puzzles? Do you also puzzle until your eyes close at night? What makes puzzles so exciting? Is it the puzzle itself or the joy of seeing the finished picture?<\/p>\n<p>We chose &quot;Alpha1 \u2013 Our Puzzle&quot; as the theme for 2017 because more and more pieces are falling into place when we look at Alpha-1 deficiency. It&#039;s not always the lungs that are affected; often it&#039;s the liver, sometimes even both. The deficiency impacts our heart, which has to work much harder. Our mental health is also affected, and sometimes that of our loved ones as well. Do people with Alpha-1 deficiency suffer more from bronchiectasis or a hyperactive bronchial system? What about the skin, what about the muscles \u2013 are they all functioning &quot;normally&quot;?<\/p>\n<p>Looking at our &quot;Alpha 1 puzzle,&quot; I see that we&#039;ve only just created a framework; many pieces don&#039;t yet fit into our picture. Many more pieces are lined up next to each puzzle piece. We make a little progress each time, but every now and then we turn a piece over in our hands for hours until we figure out where it belongs.<\/p>\n<p>Have you ever done a jigsaw puzzle with several friends? Everyone has a different technique, a different perspective, and you make much faster progress than alone.<\/p>\n<p>This is how we see our work within the association: Many different people (doctors, patients, members, relatives, and supporters of Alpha 1 Germany) are piecing together the puzzle to complete the picture of &quot;alpha-1 antitrypsin deficiency.&quot; It takes patience and optimism so that the puzzle can ultimately be completed and we can be satisfied.<\/p>\n<p>It&#039;s a long road ahead, one we&#039;d like to travel with all of you who also believe that the picture can one day be completed\u2026<\/p>\n<p>Yours sincerely, Marion Wilkens<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Marion Wilkens, Alpha1 Germany e.V., as published in the Alpha1 Journal 1\/2017. Dear readers, Alphas and their families, do you also enjoy doing puzzles? Do you also puzzle until your eyes close at night? 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