{"id":5921,"date":"2024-02-16T16:28:09","date_gmt":"2024-02-16T15:28:09","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=5921"},"modified":"2025-09-11T17:08:47","modified_gmt":"2025-09-11T15:08:47","slug":"die-neue-selee-app-macht-betroffene-zu-forschern","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/die-neue-selee-app-macht-betroffene-zu-forschern","title":{"rendered":"The new SelEe app turns those affected into researchers."},"content":{"rendered":"<div id=\"fws_6a8dde1c10834\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Marion Wilkens, Chairwoman of Alpha1 Germany eV.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>The Institute for Medical Informatics at Goethe University Frankfurt, located at Frankfurt University Hospital, and Hof University of Applied Sciences have jointly released an app as part of the project \u201eSelEe - Researching rare diseases through citizen science\u201c.<\/p>\n<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-5921-1\" width=\"1080\" height=\"608\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/SelEe-Werbevideo.mp4?_=1\" \/><a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/SelEe-Werbevideo.mp4\">https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/SelEe-Werbevideo.mp4<\/a><\/video><\/div>\n<p>The app was developed as a digital diary and companion in collaboration with people affected by rare diseases. Health data such as symptoms, sleep, diet, and physical activity can be recorded and analyzed as needed. The app can be downloaded for free from the Apple and Google Play stores.<\/p>\n<p>The app complies with current legal and ethical frameworks and has been reviewed by experts. The project is funded by the Federal Ministry of Education and Research.<\/p>\n<p>Further information about the SelEe app can be found in the articles at the following links:<\/p>\n<ul>\n<li>\u00a0<a href=\"https:\/\/www.achse-online.de\/de\/Aktuelles\/2023\/0622-SelEe-App-gelauncht-digitales-Tagebuch-fuer-Mensch.php\">SelEe app launched: digital diary for people with rare diseases | ACHSE eV (achse-online.de)<\/a><\/li>\n<li><a href=\"https:\/\/mfa-heute.de\/2023\/07\/selee-seltene-krankheiten-per-app-erfassen\/\">SelEe \u2013 Recording rare diseases via app \u2013 MFA-heute.de<\/a><\/li>\n<\/ul>\n<p>The data entered into the app is used for research purposes, which must be confirmed again during registration. It&#039;s not intuitive to use, so we strongly recommend watching the explanatory videos!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"AutorIn Marion Wilkens, 1. Vorsitzende Alpha1 Deutschland e.V. Das Institut f\u00fcr Medizininformatik der Goethe Universit\u00e4t Frankfurt am Universit\u00e4tsklinikum Frankfurt und die Hochschule Hof haben gemeinsam im Rahmen des Projektes \u201eSelEe...","protected":false},"author":1,"featured_media":5923,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,90],"tags":[],"class_list":["post-5921","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-digitalisierung"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Die neue SelEe-App macht Betroffene zu Forschern - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/die-neue-selee-app-macht-betroffene-zu-forschern\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Die neue SelEe-App macht Betroffene zu Forschern - 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