{"id":6080,"date":"2024-07-09T12:45:10","date_gmt":"2024-07-09T10:45:10","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6080"},"modified":"2025-09-11T17:13:23","modified_gmt":"2025-09-11T15:13:23","slug":"forschungsprojekt-new-lives-neugeborenen-screening","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/forschungsprojekt-new-lives-neugeborenen-screening","title":{"rendered":"Research project \u201eNew Lives\u201c \u2013 Newborn screening"},"content":{"rendered":"<p style=\"font-weight: 400;\">An online survey on &quot;Genetic Newborn Screening&quot; is currently underway, which may also be of interest to parents and expectant parents with a family history of alpha-1 deficiency. The survey is supported by both the Achse and the Children&#039;s Network, and we also support the project.<\/p>\n<p style=\"font-weight: 400;\">The well-known newborn screening is a voluntary blood test performed on infants just a few days old to screen for a number of pre-defined diseases. This survey explores the potential expansion of this test through so-called &quot;genomic&quot; testing after birth. This genomic newborn screening (gNBS) could detect significantly more congenital diseases early on, as it would allow for the simultaneous analysis of a large number of genes.<\/p>\n<p style=\"font-weight: 400;\">The survey is part of a research project funded by the BMBF (Federal Ministry of Education and Research). <a href=\"https:\/\/www.klinikum.uni-heidelberg.de\/new-lives-genomic-newborn-screening-programs\">NEW_LIVES<\/a>, which is conducted at the universities of Heidelberg and Mannheim.<\/p>\n<p style=\"font-weight: 400;\">The aim of the project is to assess whether a gNBS (growth-friendly baby school) is a viable option for Germany. In the online survey, the project team is interested in the attitudes and wishes of expectant parents and parents with at least one child under 8 years old. The results of the survey will be incorporated into a project statement.<\/p>\n<ul>\n<li>Target group: Expectant parents or parents with at least one child under 8 years old<\/li>\n<li>Duration: approx. 30 minutes<\/li>\n<li>Compensation: 10 euros per person, or couples can receive a total of 25 euros.<\/li>\n<\/ul>\n<p style=\"font-weight: 400;\">Participation via a laptop\/PC is recommended, as the questionnaire&#039;s display is not optimized for mobile phone use.<\/p>","protected":false},"excerpt":{"rendered":"<p>An online survey on the topic of &quot;Genetic Newborn Screening&quot; is currently underway, which may also be of interest to parents and expectant parents with a family history of alpha-1 deficiency. The survey is being conducted by\u2026<\/p>","protected":false},"author":6,"featured_media":6081,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,42,40,45,44],"tags":[],"class_list":["post-6080","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-aus-der-forschung","category-forschung-und-studien","category-jugendliche","category-kinder"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Forschungsprojekt &quot;New Lives&quot; - Neugeborenen-Screening - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/forschungsprojekt-new-lives-neugeborenen-screening\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Forschungsprojekt &quot;New Lives&quot; - Neugeborenen-Screening - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"og:description\" content=\"Zurzeit findet eine Online-Befragung zum Thema \u201eGenomisches Neugeborenenscreening\u201c statt, die auch f\u00fcr Eltern und werdende Eltern, in deren Familie ein Alpha-1-Mangel vorliegt, interessant sein kann. 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