{"id":6147,"date":"2024-10-18T17:04:50","date_gmt":"2024-10-18T15:04:50","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6147"},"modified":"2024-10-18T17:06:09","modified_gmt":"2024-10-18T15:06:09","slug":"alpha-1-antitrypsin-mangel-im-fokus-beitraege-in-der-welt-und-im-stern","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha-1-antitrypsin-mangel-im-fokus-beitraege-in-der-welt-und-im-stern","title":{"rendered":"Alpha-1 antitrypsin deficiency in focus: articles in WELT and STERN"},"content":{"rendered":"<div id=\"fws_6aab084d605c5\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Alpha1 Deutschland eV, as published in the Alpha1 Journal 1-2024.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Our association is pleased that the topic of alpha-1 antitrypsin deficiency has been featured several times in both WELT and STERN. As part of WELT&#039;s &quot;Allergies &amp; Respiratory System&quot; campaign, Marion Wilkens shared her personal story and experiences with alpha-1 antitrypsin deficiency. In her article, she speaks openly about the challenges of her diagnosis and offers hope to other affected individuals. She emphasizes the importance of mutual support, which provides crucial assistance to many people with alpha-1 deficiency. Marion sees it as one of her main tasks to promote and strengthen this exchange. &quot;Being affected by a rare, invisible disease makes it difficult to explain to others\u2026 Over time, I have learned a lot about it and now know that it helps to share experiences and talk about it,&quot; says Marion Wilkens. The article in STERN also highlights important aspects of the disease. Shortness of breath is a frequently searched term on the internet, often due to a lack of diagnosis. Many diseases have similar symptoms, which complicates diagnosis. Alpha-1 antitrypsin deficiency is a rare, genetic disorder that is often overlooked. Experts estimate that around 20,000 people in Germany live with a severe deficiency, but only 2,000 to 4,000 are diagnosed. Diagnosis takes an average of 5-7 years. We are proud of the attention our work and our members&#039; stories have received and hope they reach many more people. Here are two of the articles online:<\/p>\n<p><a href=\"https:\/\/issuu.com\/mediaplanet-germany\/docs\/allergienundatemwege\" target=\"_blank\" rel=\"noopener\">Download the issue on Allergies &amp; Respiratory Systems<\/a><\/p>\n<p><a href=\"https:\/\/www.schmerzfrei-leben-info.de\/order\/448\" target=\"_blank\" rel=\"noopener\">Download the issue GOOD AIR despite diseased lungs<\/a><\/p>\n<p>Download the issue on air and lungs<\/p>\n<p><a href=\"https:\/\/www.inpactmedia.com\/medizin\/meine-gesundheit-06-24\/haeufig-unerkannt-alpha-1-antitrypsin-mangel\" target=\"_blank\" rel=\"noopener\">Download the issue &quot;My Health&quot;<\/a><\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6aab084d61c8f\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"5%\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: calc(100vw * 0.05); padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"402\" width=\"907\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-in-den-Medien.jpg\" alt=\"Alpha1 in den Medien\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-in-den-Medien.jpg 907w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-in-den-Medien-300x133.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-in-den-Medien-768x340.jpg 768w\" sizes=\"auto, (max-width: 907px) 100vw, 907px\" \/>\n          <\/div>\n        <\/div>\n        \n      <\/div>\n    <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author: Alpha1 Germany e.V., as published in the Alpha1 Journal 1-2024. Our association is pleased that the topic of Alpha-1 antitrypsin deficiency has been addressed several times in both WELT and STERN. Within the framework of...","protected":false},"author":1,"featured_media":6149,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24],"tags":[],"class_list":["post-6147","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha-1-Antitrypsin-Mangel im Fokus: Beitr\u00e4ge in der WELT und im STERN - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/alpha-1-antitrypsin-mangel-im-fokus-beitraege-in-der-welt-und-im-stern\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alpha-1-Antitrypsin-Mangel im Fokus: Beitr\u00e4ge in der WELT und im STERN - 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