{"id":6530,"date":"2024-07-23T17:28:41","date_gmt":"2024-07-23T15:28:41","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6530"},"modified":"2025-04-23T17:39:53","modified_gmt":"2025-04-23T15:39:53","slug":"alpha-1-antitrypsin-mangel-im-fokus-beitraege-in-der-welt-und-im-stern-2","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha-1-antitrypsin-mangel-im-fokus-beitraege-in-der-welt-und-im-stern-2","title":{"rendered":"Alpha-1 antitrypsin deficiency in focus: articles in WELT and STERN"},"content":{"rendered":"<div id=\"fws_6a8d4ca67f72b\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Patrick Straub, agency ultrabold, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 1\/2024<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Our association is pleased that the topic of Alpha-1 Antitrypsin Deficiency has been addressed several times in both WELT and STERN.<\/p>\n<p>As part of the WELT campaign &quot;Allergies &amp; Respiratory System,&quot; Marion Wilkens shared her personal story and experiences with alpha-1 antitrypsin deficiency. In her article, she speaks openly about the challenges of her diagnosis and offers hope to others affected by the condition. She emphasizes the importance of mutual support, which provides crucial assistance to many people with alpha-1 deficiency. Marion sees it as one of her main tasks to promote and strengthen this exchange.<\/p>\n<p>\u201eBeing affected by a rare disease that is not visible makes it difficult to explain to others\u2026 Over time I have learned a lot about it and now know that it helps to share and talk about it,\u201c says Marion Wilkens.<\/p>\n<p>The article in STERN also highlights important aspects of the disease. Shortness of breath is a frequently searched keyword on the internet, often due to a lack of diagnosis. Many diseases have similar symptoms, which complicates diagnosis. Alpha-1 antitrypsin deficiency is a rare, genetically determined disorder that is often overlooked. Experts estimate that around 20,000 people in Germany live with a severe deficiency, but only 2,000 to 4,000 have been diagnosed. Diagnosis takes an average of 5-7 years.<\/p>\n<p>We are proud of the attention our work and our members&#039; stories have received, and hope they reach many more people. You can find the articles online here:<\/p>\n<p><a href=\"https:\/\/issuu.com\/mediaplanet-germany\/docs\/allergienundatemwege?fr=xKAE9_zU1NQ\" target=\"_blank\" rel=\"noopener\">Article Allergies &amp; Respiratory System<\/a><\/p>\n<p><a href=\"https:\/\/www.schmerzfrei-leben-info.de\/order\/448\" target=\"_blank\" rel=\"noopener\">Good air despite diseased lungs<\/a><\/p>\n<p><a href=\"https:\/\/www.gesunder-koerper.info\/luft-und-lunge\/verwechslungsgefahr-copd-oder-alpha-1-antitrypsin-mangel\/?_thumbnail_id=23520&amp;token=Fixeka\" target=\"_blank\" rel=\"noopener\">Risk of confusion: COPD or Alpha-1 Antitrypsin Deficiency?<\/a><\/p>\n<p><a href=\"https:\/\/www.inpactmedia.com\/medizin\/meine-gesundheit-06-24\/haeufig-unerkannt-alpha-1-antitrypsin-mangel\" target=\"_blank\" rel=\"noopener\">Often unrecognized: alpha-1 antitrypsin deficiency<\/a><\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8d4ca680e0b\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse.jpg\" class=\"pp\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1076\" width=\"2110\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse.jpg\" alt=\"Ausschnitte von vier Presseartikeln \u00fcber Alpha-1-Antitrypsin-Mangel\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse.jpg 2110w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse-300x153.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse-1024x522.jpg 1024w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse-768x392.jpg 768w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse-1536x783.jpg 1536w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Clippings-Presse-2048x1044.jpg 2048w\" sizes=\"auto, (max-width: 2110px) 100vw, 2110px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Patrick Straub, agency ultrabold, as published in Alpha1-Journal 1\/2024. Our association is pleased that the topic of Alpha-1 antitrypsin deficiency has been addressed several times in both WELT and STERN....","protected":false},"author":1,"featured_media":6532,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24],"tags":[],"class_list":["post-6530","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha-1 in WELT &amp; STERN \u2013 mehr Sichtbarkeit<\/title>\n<meta name=\"description\" content=\"Beitr\u00e4ge in WELT und STERN machen auf Alpha-1 aufmerksam: pers\u00f6nliche Erfahrungen, und Diagnoseprobleme.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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