{"id":6535,"date":"2024-04-29T17:45:45","date_gmt":"2024-04-29T15:45:45","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6535"},"modified":"2025-04-23T17:52:18","modified_gmt":"2025-04-23T15:52:18","slug":"die-alpha-1-europe-alliance-etabliert-sich","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/die-alpha-1-europe-alliance-etabliert-sich","title":{"rendered":"The Alpha-1 Europe Alliance is establishing itself"},"content":{"rendered":"<div id=\"fws_6a909d215eddd\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Dr.-Ing. Heinz Stutzenberger, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 1\/2024<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Following the successful completion of the first General Assembly of the Alpha-1 Europe Alliance (see our report in the Alpha-1 Journal 2\/2023), the board and member representatives have commenced their work. Especially in the initial phase of the young organization&#039;s existence, the coordination effort is considerable, which is why the board meets twice a month to make necessary decisions and monitor the progress of the resulting activities. A members&#039; meeting is held once a month; all these events take place online. Strategic decisions were made and important activities were initiated during the first meetings.<\/p>\n<ul>\n<li>The projects to be carried out in the current calendar year have been defined, including an awareness campaign (more on this below), an Alliance launch event in Brussels for the autumn, and various training events throughout the year.<\/li>\n<li>From the multitude of possible memberships in European umbrella organizations, a systematic evaluation was used to determine which ones the Alliance would adopt and who would represent the Alliance in each case.<\/li>\n<li>Initial considerations regarding the appointment of advisory boards have been made.<\/li>\n<li>The website has been significantly expanded compared to the basic version from the founding phase; see [link\/reference] <a href=\"https:\/\/alpha1europe.org\/\" target=\"_blank\" rel=\"noopener\">www.alpha1europe.org<\/a><\/li>\n<\/ul>\n<p>Since many of the aforementioned activities are not feasible without financial resources, a working group was formed to take care of raising funds, and it did so with considerable success: in addition to the companies CSL Behring and Grifols, which have long supported Alpha-1 associations, the pharmaceutical companies Mereo and Takeda were secured as sponsors, thus securing a significant portion of the activities for the first fiscal year.<\/p>\n<p>My personal activities have also focused primarily on European policy, where the aim is to assess the impact of the recently adopted regulation on substances of human origin (SoHO) and \u2013 where possible \u2013 to influence it in the interests of recipients of blood plasma-based products. Another key focus is the inclusion of alpha-1 antitrypsin on the list of critical medicines at the European Medicines Agency (EMA).<\/p>\n<p>The Alliance has already implemented its first major project: a campaign for European Alpha-1 Awareness Day, which takes place annually on April 25th and aims to raise public awareness of Alpha-1 antitrypsin deficiency and its various manifestations. A significant number of posts with engaging graphics and informative short texts were published on the Alliance&#039;s channels. These were translated into twelve different languages. A total of 19 European Alpha-1 associations or support groups took up the initiative, and our sister organization, the American Alpha-1 Foundation, also shared our posts.<\/p>\n<p>Overall, the Alpha-1-Europe Alliance has established itself quickly and solidly in its first few months; many companies and organizations are seeking contact, so the few active volunteers are already facing serious scheduling difficulties. We will continue to report regularly on the Alliance&#039;s further activities.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a909d216058d\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1307\" width=\"642\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-3.jpg\" alt=\"Kampagne zum europ\u00e4ischen Alpha- 1-Awareness-Tag\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-3.jpg 642w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-3-147x300.jpg 147w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-3-503x1024.jpg 503w\" sizes=\"auto, (max-width: 642px) 100vw, 642px\" \/>\n          <\/div>\n        <\/div>\n        \n      <\/div>\n    <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1307\" width=\"642\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-2.jpg\" alt=\"Kampagne zum europ\u00e4ischen Alpha- 1-Awareness-Tag\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-2.jpg 642w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-2-147x300.jpg 147w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-2-503x1024.jpg 503w\" sizes=\"auto, (max-width: 642px) 100vw, 642px\" \/>\n          <\/div>\n        <\/div>\n        \n      <\/div>\n    <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1307\" width=\"642\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-1.jpg\" alt=\"Kampagne zum europ\u00e4ischen Alpha- 1-Awareness-Tag\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-1.jpg 642w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-1-147x300.jpg 147w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha-1-Awareness-Tag-1-503x1024.jpg 503w\" sizes=\"auto, (max-width: 642px) 100vw, 642px\" \/>\n          <\/div>\n        <\/div>\n        \n      <\/div>\n    <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author: Dr.-Ing. Heinz Stutzenberger, as published in Alpha1 Journal 1\/2024. Following the successful completion of the first General Assembly of the Alpha-1 Europe Alliance (see our report in Alpha-1 Journal 2\/2023), the board and...","protected":false},"author":1,"featured_media":5989,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,95,24],"tags":[],"class_list":["post-6535","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha-1-europe-alliance","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha-1 Europe Alliance \u2013 Erfolgreicher Start<\/title>\n<meta name=\"description\" content=\"Die Alpha-1 Europe Alliance nimmt Fahrt auf: Mit Awareness-Kampagne, F\u00f6rdermitteln und politischer Arbeit st\u00e4rkt sie die Stimme von Alpha-1.\" \/>\n<meta name=\"robots\" content=\"index, follow, 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