{"id":6557,"date":"2024-09-02T10:22:04","date_gmt":"2024-09-02T08:22:04","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6557"},"modified":"2025-04-24T10:29:20","modified_gmt":"2025-04-24T08:29:20","slug":"fit-und-vernetzt-alpha1","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/fit-und-vernetzt-alpha1","title":{"rendered":"Fit and connected: Alpha1 Germany wins award for exercise and exchange"},"content":{"rendered":"<div id=\"fws_6a8d48c3c0093\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Frieda Wilkens, as appeared in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2024<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Besides providing fundamental and essential knowledge about Alpha-1 Antitrypsin Deficiency, networking among affected individuals is of paramount importance to us as an association. However, since our Alpha1 members are scattered throughout Germany, personal exchange on disease-related topics is sometimes quite challenging. The pandemic has shown us that platforms like Zoom or Teams can create a forum to facilitate this exchange despite geographical distance. The importance of such options is evident in the high demand for the pulmonary exercise classes with Peddar (Peter Kukry). Free classes are offered every Friday for Alpha1 members to help incorporate more movement into their daily routines. I probably don&#039;t need to explain how crucial sufficient daily exercise and proper breathing are, especially for those with Alpha-1 Antitrypsin Deficiency. Furthermore, the class offers the opportunity to meet others in similar situations and share the joy of exercise. With the additional offering of memory training on Tuesday evenings, you&#039;ll also stay mentally sharp, a skill that is far too often underestimated.<\/p>\n<p>Because we, as an association, want to continue offering you the opportunity for such training and are convinced of its importance, we applied for the 2024 sponsorship award from the Pharmaceutical Companies of Hesse\/Rhineland-Palatinate\/Saarland (Pharmaceutical Companies Hessen\/Rhineland-Palatinate\/Saarland e.V.). The Pharmaceutical Companies Fund awards an annual prize for volunteer work and self-help initiatives. This year&#039;s competition focused on the theme of &quot;Helping People Help Themselves,&quot; which prompted us to submit our &quot;Fit in Body and Mind&quot; project. As a result, we were invited to the award ceremony on November 4, 2024, at the VCI House (German Chemical Industry Association) in Frankfurt am Main. Peddar and Marion Wilkens, accompanied by Jutta Stewart and myself, had the honor of accepting the third-place prize. The associated prize money of \u20ac3,000 will be used for the future promotion of pulmonary exercise and memory training.<\/p>\n<p>Our afternoon in Frankfurt was not only a resounding success from the club&#039;s perspective, but also filled with many personal and moving stories. We had the opportunity to talk with the first and second place winners over a meal. The second-place winner&#039;s project focused on raising awareness about female genital mutilation (FGM). For the club, fostering exchange among affected women and the resulting understanding is a central concern. It is also crucial to discuss such topics more openly and ensure greater dissemination of information. Incredibly, approximately 74,000 women and girls in Germany alone live with the permanent pain associated with FGM. Also present was a student who, as part of her thesis, created a film project that addresses the taboo surrounding FGM. The presentation of this project was incredibly moving and definitely gave us food for thought.<\/p>\n<p>The project of the German Hemophilia Society, presented by Mr. Drebing, was deservedly awarded first place. The society offers a two-week summer camp at Lake Edersee every year for children aged eight to fifteen. The aim is for the children to learn how to administer injections (intravenously) independently, which fosters greater self-confidence and autonomy. Hemophilia is a hereditary clotting disorder that, due to its sex-linked recessive inheritance pattern, predominantly affects males. The importance of medical care for those with this condition was clearly demonstrated to us that day. This makes supporting such a project all the more crucial.<\/p>\n<p>In conclusion, the award ceremony and especially the subsequent discussions were not only very pleasant, but also particularly impressive and moving. Hearing about the work and achievements of other self-help groups makes us even more motivated to look ahead to our future projects.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8d48c3c1801\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"none\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"581\" width=\"1000\" data-animation=\"none\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Preisverleihung.jpg\" alt=\"Preisverleihung beim F\u00f6rderpreis f\u00fcr Bewegung und Austausch\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Preisverleihung.jpg 1000w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Preisverleihung-300x174.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Preisverleihung-768x446.jpg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/>\n          <\/div>\n        <\/div>\n        \n      <\/div>\n    <\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8d48c3c2fc5\"  data-column-margin=\"default\" data-midnight=\"light\"  class=\"wpb_row vc_row-fluid vc_row has-row-bg-color  right_padding_30px left_padding_30px\"  style=\"padding-top: 30px; padding-bottom: 30px; --row-bg-color: #004267;\"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop using-bg-color\"  style=\"background-color: #004267; \"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 light left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h2>Exclusive for all Alpha1 members<\/h2>\n<p><strong>Weekly online lung exercise group:<\/strong><\/p>\n<p>Stay active! <a href=\"https:\/\/alpha1-deutschland.org\/en\/woechentliche-online-lungensportgruppe\/\">Our online sessions strengthen the lungs and promote fitness \u2013 from the comfort of your own home.<\/a><\/p>\n<p><strong>Memory training with Beate:<\/strong><\/p>\n<p><a href=\"https:\/\/alpha1-deutschland.org\/en\/gedaechtnistraining-mit-beate-exklusiv-fuer-alpha1-mitglieder\/\">Train your memory and increase your concentration<\/a> \u2013 developed specifically for our members. Learn more and get involved now!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Frieda Wilkens, published in Alpha1-Journal 2\/2024. Besides the fundamental and necessary knowledge about alpha-1 antitrypsin deficiency, networking among those affected is of particular importance to us as an association...","protected":false},"author":1,"featured_media":6559,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,89],"tags":[],"class_list":["post-6557","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-spenden"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha1 erh\u00e4lt F\u00f6rderpreis 2024 \u2013 Bewegung &amp; Austausch<\/title>\n<meta name=\"description\" content=\"F\u00fcr das Projekt \u201eFit in K\u00f6rper und Geist\u201c wurde Alpha1 Deutschland mit dem F\u00f6rderpreis 2024 ausgezeichnet.\" \/>\n<meta name=\"robots\" content=\"index, follow, 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