{"id":6575,"date":"2023-10-28T11:51:12","date_gmt":"2023-10-28T09:51:12","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6575"},"modified":"2025-04-28T11:52:13","modified_gmt":"2025-04-28T09:52:13","slug":"vorwort-alpha1-journal-2-23","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/vorwort-alpha1-journal-2-23","title":{"rendered":"Foreword Alpha1-Journal 2\/23"},"content":{"rendered":"<div id=\"fws_6a8db849ddf30\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p><strong>Marion Wilkens, Alpha1 Germany eV, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2023<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 12.5px; height: 5px; margin-bottom: 12.5px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Dear Alphas, dear family members and dear Alpha1 enthusiasts,<\/p>\n<p>There&#039;s already something else to celebrate, barely after the anniversary festivities have ended. We&#039;ve achieved one of our goals:<br \/>\nThe association has 1,000 members! That&#039;s 1,000 strong voices, 1,000 helpers in spreading information, and 1,000 hearts beating for Alpha1 Germany, because the association is us, all of us!<br \/>\nAccording to one commonly used classification, companies with ten to 499 employees are considered medium-sized \u2013 our organization already has 1,000 people working on alpha-1 antitrypsin deficiency. Okay, the second classification is based on annual revenue, and we definitely need to work on that.<\/p>\n<p>Sometimes it really does feel like we&#039;re a company with all the trimmings: legal, marketing, and finance departments, accounting and administration, basic research and product development, management, and various committees. We have all of that, too; it&#039;s just called something different. You&#039;ll find our terminology throughout the many pages of our journal; for example, we call our Treasurer (page 48), Social-<br \/>\nMedia Helper (page 10), Hotline Voice (page 10), Member Data Administrator, European Representative, or simply Board of Directors and Advisory Board (found everywhere). It&#039;s not just in the terminology that we differ significantly from a company \u2013 even if that&#039;s sometimes forgotten \u2013 we are all volunteers and dedicated to our work.<br \/>\nWe manage everything alongside our jobs, families, households, and personal lives. We always give our best, but sometimes we simply can&#039;t do any more. Our journal accurately reflects our experiences, what we initiate, and what we accomplish within our patient organization.<\/p>\n<p>Enjoy reading and please be patient if something doesn&#039;t happen immediately. We all can.<br \/>\nWe proudly conclude the year and look back with satisfaction \u2013 although, of course, planning for 2024 is already underway (page 11), and we look forward to seeing you at one or more events. Have a wonderful start to the new year, stay healthy and active.<\/p>\n<p>Her<br \/>\nPS: Why not send someone some New Year&#039;s greetings using the enclosed postcard?.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"AutorIn Marion Wilkens, Alpha1 Deutschland e.V., so erschienen im Alpha1-Journal 2\/2023. Liebe Alphas, liebe Angeh\u00f6rige und liebe Alpha1-Interessierte, es gibt schon wieder etwas zu feiern, kaum, dass das Jubil\u00e4umsfest vorbei...","protected":false},"author":1,"featured_media":6583,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,93],"tags":[],"class_list":["post-6575","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-vorwort"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Vorwort Journal 2\/23 \u2013 Alpha1 im R\u00fcckblick<\/title>\n<meta name=\"description\" content=\"Marion Wilkens blickt auf ein engagiertes Jahr 2023 f\u00fcr Alpha1 Deutschland zur\u00fcck und gibt einen Ausblick auf das kommende Jahr 2023.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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