{"id":6623,"date":"2023-10-30T16:22:53","date_gmt":"2023-10-30T15:22:53","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6623"},"modified":"2025-04-30T17:24:03","modified_gmt":"2025-04-30T15:24:03","slug":"eindruecke-gruppenleitertreffen-darmstadt-2","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/eindruecke-gruppenleitertreffen-darmstadt-2","title":{"rendered":"Impressions from the group leader conference of Alpha1 Germany e. V."},"content":{"rendered":"
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Author<\/h4><\/span><\/span>\n<\/div>\n
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Roland B\u00fchner, as appeared in Alpha1 Journal 2\/2023<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n

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The group leader conference held from October 13th to 15th, 2023 in Darmstadt was themed \u201eA dynamic process\u201c<\/span><\/h2>\n

It was a successful working meeting held in a very nice conference hotel with ideal meeting rooms and the presence of almost all group leaders and their deputies. Partners were also welcome, as they bring a different perspective to the discussion. The well-structured agenda, with its sensible timing, included sufficient breaks for respite. The internal workshop was complemented by an excellent presentation on "Insurance for Volunteers" by Dr. Stiehr, which was also perfectly timed (after a very intensive work session on Friday evening and Saturday morning).<\/p>\n

The three-day format (Friday afternoon\/evening, all day Saturday, and Sunday morning) worked very well, as it allowed us to start working on Friday evening, thus ensuring optimal use of the available time. The revised format (compared to previous management meetings) was a complete success. The novelty: the board and the management team worked separately on Friday evening and Saturday morning. One group held a board meeting, while the other brainstormed and developed projects. Within a short time, four working groups were formed, each focusing on a different topic. These groups were selected from a pool of nine ideas that had been jointly developed and distributed beforehand.<\/p>\n

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  • Alpha-1 antitrypsin deficiency and public perception\/presentation\/acceptance<\/li>\n
  • Alpha-1 antitrypsin deficiency and substitution\/augmentation therapy<\/li>\n
  • Alpha-1 antitrypsin deficiency and rehabilitation<\/li>\n
  • Alpha-1 antitrypsin deficiency and severe disability<\/li>\n<\/ul>\n

    An incredibly constructive and highly focused working environment developed within the individual groups (mostly four people). On Saturday, the results and ideas of the four groups were presented to the entire team, consisting of the board and group leaders. This approach, or rather this format, proved very effective and should be continued in the future. The shared dinners on Friday and Saturday, as well as the relaxed get-togethers, also fostered team spirit and a sense of community.<\/p>\n

    Important NOTE:<\/strong> The board members and the group leaders or deputy group leaders all do their "jobs" on a voluntary basis and have limited time (some are still fully engaged in their professional lives and other volunteer activities). Therefore, such a weekend can initially only spark ideas and get things started. It's a dynamic process that began this weekend, and we now need to fill it with action and action.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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    Voices and mood of our group leaders<\/span><\/h2>\n<\/div>\n\n\n\n
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    \u201c<\/div>

    \u2022 The sense of "we" was strengthened.
    \n\u2022 We met many GLs in person for the first time \u2013 great people!
    \n\u2022 A new understanding of the work in self-help groups was created.
    \n\u2022 Fruitful group work, the results of which form a first basis for new content.
    \n\u2022 Working on an equal footing. <\/span><\/p>Vicky & Peter H\u00fcbner<\/span><\/span><\/blockquote>

    \u201c<\/div>

    A fantastic working meeting in a modified format with a challenging agenda, highly engaged management and board members, goal-oriented work, and excellent presentations in a great and professional atmosphere that greatly fostered a sense of community and team spirit. All participants can be proud of this achievement, and it should serve as motivation for future work on the board or as group leaders. This meeting should also serve as a source of inspiration for new or future group leaders. <\/span><\/p>Roland B\u00fchner<\/span><\/span><\/blockquote>

    \u201c<\/div>

    Surprising, spontaneous dynamics, effective formation of small working groups, efficiency, convincing results and presentations. Add to that the joy of meeting old acquaintances and getting to know new ones, updates on board work \u2013 an extremely demanding weekend, but a satisfying feeling. <\/span><\/p>Heike Isensee<\/span><\/span><\/blockquote>

    \u201c<\/div>

    It was wonderful to see everyone again in person, to laugh, talk, and exchange ideas. The workshops were a lot of fun, and we learned quite a few new things. It was a busy weekend full of impressions and experiences that I can share with my own support group, but also with plenty of opportunities for personal interaction. I was thinking of stepping down from my volunteer work, but now I'm motivated to continue helping others. <\/span><\/p>Sandra B\u00f6hmer<\/span><\/span><\/blockquote>

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    \u2022 Group work in small groups
    \n\u2022 The selection of topics for the conference
    \n\u2022 The exchange of information in between
    \n\u2022 Just to see each other again <\/span><\/p>Carsten B\u00fcch<\/span><\/span><\/blockquote>

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    Hello, it was a very interesting and informative weekend. With some people, it would have been better to let them finish speaking. And you don't always have to criticize everything. Just be curious, free, and open to new things. I hope that what we all worked out can be understood and put into practice. <\/span><\/p>Uwe Deter<\/span><\/span><\/blockquote>

    \u201c<\/div>

    It was a sunny meeting in many respects. Firstly, it was wonderful to see each other again in person and catch up, and secondly, the weather gods blessed us with a warm Friday, allowing us to continue our discussions on the terrace after dinner with a chilled drink. We accomplished a great deal over the two days, enough to make our heads spin. Overall, a very productive meeting. <\/span><\/p>Marion Deter<\/span><\/span><\/blockquote>

    \u201c<\/div>

    \u2022 Very interesting topics
    \n\u2022 The good & pleasant atmosphere
    \namong each other
    \n\u2022 Very lively conversations
    \n\u2022 Finally seeing each other face to face again
    \nto converse face to face
    \n\u2022 Cozy get-together
    \nWarm greetings from M\u00fcnsterland <\/span><\/p>Heinz Dohmen<\/span><\/span><\/blockquote><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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    Impressions from the working groups<\/span><\/h2>\n<\/div>\n\n\n\n
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