{"id":6635,"date":"2025-04-30T17:31:47","date_gmt":"2025-04-30T15:31:47","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6635"},"modified":"2025-04-30T17:31:47","modified_gmt":"2025-04-30T15:31:47","slug":"gastbericht-gruppenleitertreffen-frankl","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/gastbericht-gruppenleitertreffen-frankl","title":{"rendered":"Guest report by Johann Frankl on the group leader meeting of Alpha1 Germany"},"content":{"rendered":"<div id=\"fws_6a8f2c44a2738\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Hans Frankl, SHG, Styria, Austria, as published in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2023<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>I, Johann Frankl, leader of the self-help group in Styria, Austria, was delighted to accept the invitation from our partner organization Alpha 1 Germany to the annual group leader meeting in Darmstadt. The aims were to exchange our experiences and develop perspectives for future projects in our respective self-help groups.<\/p>\n<p>Even the preparation for the flight required consultation with my pulmonologist, as I, being an infrequent flyer, was unfamiliar with the process. Today, I can confidently say that even for lung patients (without oxygen requirements), flying should not be a problem after consultation with their respective doctor and, if necessary, with the airlines.<br \/>\nUntil then, I only knew Marion Wilkens, the chairwoman of the German patient organization. I went to the meeting with a touch of apprehension. Even before the introductions, I received a warm welcome from like-minded individuals. Thank you for that. I was also able to actively contribute to the discussions on cross-border topics and participate in the subsequent, very interesting discussions. The points developed were divided into four groups for better organization and later presentation. The results of each group were discussed again in plenary session on day two and then presented to the entire board of Alpha1 Germany.<\/p>\n<p>In summary, I can take away from the event that the topics and working methods are reflected in the self-help groups. Within the team and the board, the positive atmosphere and dynamic were clearly palpable, above all the shared desire to make a difference. Our goal is for patients with respiratory and liver problems to be tested for Alpha-1. As like-minded individuals, we want to be points of contact, guides, and companions for those diagnosed with Alpha-1 on their journey.<\/p>\n<p>I would like to take this opportunity to thank you once again for the invitation and the good cooperation with the group leaders and the board of Alpha1 Germany, true to the motto: Never stop starting \u2013 never start stopping.<\/p>\n<p>Stay healthy and take care. Looking forward to seeing you again, best regards.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Hans Frankl, Self-Help Group, Styria, Austria, as published in Alpha1 Journal 2\/2023. I, Johann Frankl, leader of the Self-Help Group in Styria, Austria, was delighted to accept the invitation from our partner organization Alpha 1 Germany to...","protected":false},"author":1,"featured_media":6621,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,29],"tags":[],"class_list":["post-6635","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-gruppenleitertreffen"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Erfahrungsbericht von Johann Frankl zum Gruppenleitertreffen<\/title>\n<meta name=\"description\" content=\"Johann Frankl, SHG-Leiter Stmk., berichtet vom l\u00e4nder\u00fcbergreifenden Alpha1-Gruppenleitertreffen in Darmstadt.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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