{"id":6671,"date":"2023-10-13T14:10:10","date_gmt":"2023-10-13T12:10:10","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6671"},"modified":"2025-05-13T14:18:09","modified_gmt":"2025-05-13T12:18:09","slug":"facebook-webinar-copd-alpha1","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/facebook-webinar-copd-alpha1","title":{"rendered":"New approaches: Live Facebook webinar"},"content":{"rendered":"<div id=\"fws_6a8e0b489f244\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Marion Wilkens, as appeared in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2023<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Beyond our political efforts to shorten the time to diagnosis, we are also actively committed to dialogue with people affected by COPD. We consider it particularly important to inform COPD patients that the causes of their disease are not solely due to smoking, but that genetic factors can also play a role. Tests for alpha-1 antitrypsin deficiency in COPD are usually rare \u2013 the number of undiagnosed cases is therefore all the higher.<\/p>\n<p>We estimate that around 20,000 people in Germany suffer from severe alpha-1 deficiency, but most currently only live with a diagnosis of COPD. How did we arrive at this high number?<br \/>\nAssuming that approximately 6.8 million people in Germany suffer from COPD, and according to our assumption...<br \/>\nIf there are 10 carriers of the % Alpha-1 deficiency, that would already correspond to 680,000 people. Even though most are fortunately only genetic carriers, a few with severe deficiency are hidden among them. Identifying this relatively small group is of enormous importance to us.<\/p>\n<p>To raise awareness, Grifols has chosen a new format: a live Facebook webinar entitled: \u201eCOPD: Smoke-induced or congenital? Your questions in the expert live chat\u201c.<\/p>\n<p>The event took place on November 30, 2023, at 6:00 PM. The webinar focused on COPD and AATD, addressing both the physical and emotional burdens, as chronic obstructive pulmonary disease and its genetic variant, the often-unknown alpha-1 antitrypsin deficiency (AATD), present daily challenges for all those affected. Symptoms such as shortness of breath, persistent cough, and phlegm production are constant companions.<\/p>\n<p>November is COPD and Alpha-1 Awareness Month, a good occasion for such a webinar. In this live Q&amp;A session, patients were able to ask their questions about the disease live in the chat to senior physician and expert Alexander Jerosch, under my moderation.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Marion Wilkens, as published in Alpha1-Journal 2\/2023. Beyond our political efforts to shorten the diagnosis time, we are also actively committed to dialogue with people affected by COPD. We believe...","protected":false},"author":1,"featured_media":6672,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,74],"tags":[],"class_list":["post-6671","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-veranstaltungsberichte"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>COPD &amp; Alpha-1-Antitrypsin-Mangel: Live-Webinar<\/title>\n<meta name=\"description\" content=\"COPD ist nicht immer rauchbedingt: Ein Webinar von Grifols kl\u00e4rt \u00fcber genetische Ursachen wie Alpha-1-Antitrypsin-Mangel auf.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/facebook-webinar-copd-alpha1\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"COPD &amp; Alpha-1-Antitrypsin-Mangel: Live-Webinar\" \/>\n<meta property=\"og:description\" content=\"COPD ist nicht immer rauchbedingt: Ein Webinar von Grifols kl\u00e4rt \u00fcber genetische Ursachen wie Alpha-1-Antitrypsin-Mangel auf.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/facebook-webinar-copd-alpha1\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:published_time\" content=\"2023-10-13T12:10:10+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-13T12:18:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1536\" \/>\n\t<meta property=\"og:image:height\" content=\"864\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1\"},\"author\":{\"name\":\"Redaktion Alpha1 Deutschland e.V.\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\"},\"headline\":\"Neue Wege: Live Facebook-Webinar\",\"datePublished\":\"2023-10-13T12:10:10+00:00\",\"dateModified\":\"2025-05-13T12:18:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1\"},\"wordCount\":503,\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Alpha1_Journal-2-23-Facebook-Webinar.jpg\",\"articleSection\":[\"Allgemein\",\"Alpha1-Journal\",\"Veranstaltungsberichte\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1\",\"name\":\"COPD & Alpha-1-Antitrypsin-Mangel: Live-Webinar\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Alpha1_Journal-2-23-Facebook-Webinar.jpg\",\"datePublished\":\"2023-10-13T12:10:10+00:00\",\"dateModified\":\"2025-05-13T12:18:09+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\"},\"description\":\"COPD ist nicht immer rauchbedingt: Ein Webinar von Grifols kl\u00e4rt \u00fcber genetische Ursachen wie Alpha-1-Antitrypsin-Mangel auf.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#primaryimage\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Alpha1_Journal-2-23-Facebook-Webinar.jpg\",\"contentUrl\":\"https:\\\/\\\/alpha1-deutschland.org\\\/wp-content\\\/uploads\\\/Alpha1_Journal-2-23-Facebook-Webinar.jpg\",\"width\":1536,\"height\":864,\"caption\":\"Facebook Webinar\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/facebook-webinar-copd-alpha1#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Startseite\",\"item\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Neue Wege: Live Facebook-Webinar\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#website\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"name\":\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/alpha1-deutschland.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\",\"name\":\"Redaktion Alpha1 Deutschland e.V.\",\"sameAs\":[\"https:\\\/\\\/alpha1-deutschland.org\\\/\",\"https:\\\/\\\/www.instagram.com\\\/alpha1deutschland\\\/\",\"https:\\\/\\\/www.linkedin.com\\\/in\\\/marion-wilkens-1b71b6a4\\\/?originalSubdomain=de\",\"https:\\\/\\\/www.youtube.com\\\/channel\\\/UCkcwpGZWn3cQIXp931xMqbA\"],\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/en\\\/author\\\/admin\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"COPD &amp; Alpha-1 Antitrypsin Deficiency: Live Webinar","description":"COPD is not always caused by smoking: A webinar from Grifols explains genetic causes such as alpha-1 antitrypsin deficiency.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/alpha1-deutschland.org\/en\/facebook-webinar-copd-alpha1\/","og_locale":"en_GB","og_type":"article","og_title":"COPD & Alpha-1-Antitrypsin-Mangel: Live-Webinar","og_description":"COPD ist nicht immer rauchbedingt: Ein Webinar von Grifols kl\u00e4rt \u00fcber genetische Ursachen wie Alpha-1-Antitrypsin-Mangel auf.","og_url":"https:\/\/alpha1-deutschland.org\/en\/facebook-webinar-copd-alpha1\/","og_site_name":"Ihr Online Portal f\u00fcr Mitglieder und Interessierte","article_published_time":"2023-10-13T12:10:10+00:00","article_modified_time":"2025-05-13T12:18:09+00:00","og_image":[{"width":1536,"height":864,"url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg","type":"image\/jpeg"}],"author":"Redaktion Alpha1 Deutschland e.V.","twitter_misc":{"Written by":"Redaktion Alpha1 Deutschland e.V.","Estimated reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#article","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1"},"author":{"name":"Redaktion Alpha1 Deutschland e.V.","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631"},"headline":"Neue Wege: Live Facebook-Webinar","datePublished":"2023-10-13T12:10:10+00:00","dateModified":"2025-05-13T12:18:09+00:00","mainEntityOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1"},"wordCount":503,"image":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg","articleSection":["Allgemein","Alpha1-Journal","Veranstaltungsberichte"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1","url":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1","name":"COPD &amp; Alpha-1 Antitrypsin Deficiency: Live Webinar","isPartOf":{"@id":"https:\/\/alpha1-deutschland.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#primaryimage"},"image":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#primaryimage"},"thumbnailUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg","datePublished":"2023-10-13T12:10:10+00:00","dateModified":"2025-05-13T12:18:09+00:00","author":{"@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631"},"description":"COPD is not always caused by smoking: A webinar from Grifols explains genetic causes such as alpha-1 antitrypsin deficiency.","breadcrumb":{"@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#primaryimage","url":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg","contentUrl":"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1_Journal-2-23-Facebook-Webinar.jpg","width":1536,"height":864,"caption":"Facebook Webinar"},{"@type":"BreadcrumbList","@id":"https:\/\/alpha1-deutschland.org\/facebook-webinar-copd-alpha1#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Startseite","item":"https:\/\/alpha1-deutschland.org\/"},{"@type":"ListItem","position":2,"name":"Neue Wege: Live Facebook-Webinar"}]},{"@type":"WebSite","@id":"https:\/\/alpha1-deutschland.org\/#website","url":"https:\/\/alpha1-deutschland.org\/","name":"Your online portal for members and interested parties","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/alpha1-deutschland.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Person","@id":"https:\/\/alpha1-deutschland.org\/#\/schema\/person\/bbeaebe048b6117849fb55f50616d631","name":"Editorial team Alpha1 Germany eV.","sameAs":["https:\/\/alpha1-deutschland.org\/","https:\/\/www.instagram.com\/alpha1deutschland\/","https:\/\/www.linkedin.com\/in\/marion-wilkens-1b71b6a4\/?originalSubdomain=de","https:\/\/www.youtube.com\/channel\/UCkcwpGZWn3cQIXp931xMqbA"],"url":"https:\/\/alpha1-deutschland.org\/en\/author\/admin"}]}},"_links":{"self":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/6671","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/comments?post=6671"}],"version-history":[{"count":0,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/posts\/6671\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media\/6672"}],"wp:attachment":[{"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/media?parent=6671"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/categories?post=6671"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/alpha1-deutschland.org\/en\/wp-json\/wp\/v2\/tags?post=6671"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}