{"id":6674,"date":"2023-05-13T14:18:34","date_gmt":"2023-05-13T12:18:34","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6674"},"modified":"2025-05-13T14:38:13","modified_gmt":"2025-05-13T12:38:13","slug":"alpha1-in-der-presse","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-in-der-presse","title":{"rendered":"A review of Alpha1 Germany&#039;s own and external press and media highlights from 2023"},"content":{"rendered":"<div id=\"fws_6a8f1fc96db9d\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Marion Wilkens, as appeared in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2023<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Our YouTube channel is growing; the highlight video from our anniversary celebration is definitely worth watching, and the plasma video is also very interesting and has skyrocketed in views. Practical and everyday resources are, of course, essential for a patient organization. You&#039;ll find the three new videos from 2023 at the end of this article.<\/p>\n<p>Externally, it was a very special success that we were allowed to be part of a nationwide campaign \u201eAir and Lungs\u201c, which was launched on September 26, 2023 by Mediaplanet in the nationwide full circulation of the newspaper DIE WELT + E-Paper as an independent special publication.<\/p>\n<p>The clickable PDF is available in the online kiosk Yumpu (at least 450,000 guaranteed impressions). All editorial content and articles can also be found at www.gesunder-koerper.info. In this campaign, Marion Wilkens writes about genetically determined COPD and its possible causes. One of these is \u2013 as we all know \u2013 alpha-1 antitrypsin deficiency.<\/p>\n<p>A story on TV was particularly moving: that of \u015eilan, who grew up in a socially disadvantaged neighborhood and set out to become a doctor. It&#039;s a touching story with fascinating insights. And the best part: a small part of the documentary was filmed at our patient day in Bad Wildungen, as \u015eilan is part of the UK Aachen team. The nearly 30-minute WDR program is still available in their media library under the title: &quot;I&#039;m Becoming a Doctor \u2013 Made in Marxloh (S03\/E03)&quot;.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f1fc96f20d\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"divider-wrap\" data-alignment=\"center\"><div style=\"margin-top: 25px; width: 20%; height: 2px; margin-bottom: 25px;\" data-width=\"20%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-small-border\"><\/div><\/div><p style=\"font-size: 30px;color: #004267;line-height: 2;text-align: center\" class=\"vc_custom_heading vc_do_custom_heading\" ><a href=\"https:\/\/www.youtube.com\/@alpha1deutschlande.v.\" target=\"_blank\" title=\"@alpha1deutschlande.v.\">Visit our YouTube channel<\/a><\/p><div class=\"divider-wrap\" data-alignment=\"center\"><div style=\"margin-top: 25px; width: 20%; height: 2px; margin-bottom: 25px;\" data-width=\"20%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-small-border\"><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f1fc9705f7\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>For many years now, we have enjoyed a partnership with the patient library (circulation over 30,000). It&#039;s not just a matter of mutually including magazines and brochures; a friendship has developed that allows us to significantly increase our awareness and visibility. For example, in the first issue of 2023, we were able to write the editorial on the topic of &quot;People Talking,&quot; publish an article about our planned anniversary and our history, and share patient stories from some of our members.<\/p>\n<p>In the second issue, we reported extensively on the anniversary, and in the third, the 40th issue of Atemwege und Lunge (Respiratory Tract and Lungs), we thanked many stakeholders, including our chairwoman: &quot;Marion Wilkens, Chairwoman of Alpha1 Deutschland e. V., is a virtuoso, tireless networker who repeatedly succeeds in creating a &#039;we&#039; from individuals and also in raising awareness for neglected topics.&quot;\u201e<\/p>\n<p>Furthermore, the article &quot;Identical Symptoms... Different Underlying Diseases&quot; was published, providing important information on when to consider an alpha-1 deficiency. The fourth issue was not yet available at the time of publication, but one thing is certain: Alpha-1 will be included again. Not familiar with the issues yet? No problem, you can find them on our website under Useful Information\/COPD.<\/p>\n<p>We&#039;re continuing to explore new avenues! As mentioned on page 10, we&#039;re now on Instagram. We&#039;ve published over 65 posts on Facebook, LinkedIn, and Instagram.<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f1fc97146c\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 50px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h2><span style=\"color: #004267;\">Highlights from the Alpha1 YouTube channel<\/span><\/h2>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"height: 10px;\" class=\"divider\"><\/div><\/div>\n\t<div class=\"wpb_gallery wpb_content_element clearfix\">\n\t\t<div class=\"wpb_wrapper\"><div class=\"wpb_gallery_slidesflickity_static_height_style\" data-onclick=\"link_no\" data-interval=\"5\"><style>.wpb_gallery_slidesflickity_static_height_style .nectar-flickity.instace-6a8f1fc972851:not(.masonry) .flickity-slider .cell img {\n      height: 500px;\n    }\n    @media only screen and (max-width: 1300px) {\n      .wpb_gallery_slidesflickity_static_height_style .nectar-flickity.instace-6a8f1fc972851:not(.masonry) .flickity-slider .cell img {\n        height: 400px;\n      }\n    }\n    @media only screen and (max-width: 1000px) {\n      .wpb_gallery_slidesflickity_static_height_style .nectar-flickity.instace-6a8f1fc972851:not(.masonry) .flickity-slider .cell img {\n        height: 350px;\n      }\n    }\n    @media only screen and (max-width: 690px) {\n      .wpb_gallery_slidesflickity_static_height_style .nectar-flickity.instace-6a8f1fc972851:not(.masonry) .flickity-slider .cell img {\n        height: 300px;\n      }\n    }<\/style><div class=\"nectar-flickity not-initialized instace-6a8f1fc972851\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Image gallery\"  data-touch-icon-color=\"default\" data-drag-scale=\"\" data-overflow=\"hidden\" data-wrap=\"wrap\" data-spacing=\"default\" data-shadow=\"none\" data-autoplay=\"\" data-autoplay-dur=\"\" data-free-scroll=\"\" data-controls=\"pagination\"><div class=\"flickity-viewport\"> <div class=\"flickity-slider\"><div class=\"cell\" data-lazy=\"false\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"580\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-1-1024x580.jpg\" class=\"skip-lazy nectar-lazy attachment-large\" alt=\"\" title=\"Alpha1-Alpha1-YouTube-1\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-1-1024x580.jpg 1024w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-1-300x170.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-1-768x435.jpg 768w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-1.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/div><div class=\"cell\" data-lazy=\"false\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"580\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-Kanal-3-1024x580.jpg\" class=\"skip-lazy nectar-lazy attachment-large\" alt=\"\" title=\"Alpha1-Alpha1-YouTube-Channel-3\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-Kanal-3-1024x580.jpg 1024w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-Kanal-3-300x170.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-Kanal-3-768x435.jpg 768w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha1-YouTube-Kanal-3.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/div><div class=\"cell\" data-lazy=\"false\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"580\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha-YouTube-2-1024x580.jpg\" class=\"skip-lazy nectar-lazy attachment-large\" alt=\"\" title=\"Alpha1-Alpha-YouTube-2\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha-YouTube-2-1024x580.jpg 1024w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha-YouTube-2-300x170.jpg 300w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha-YouTube-2-768x435.jpg 768w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Alpha-YouTube-2.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/div><\/div><\/div><\/div><\/div>\n\t\t<\/div> \n\t<\/div> \n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f1fc97466c\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>And in November, we are planning our first Facebook Live webinar together with Grifols (see post on the left). The webinar series by CSL Behring (page 37), in cooperation with us and with the active participation of our members, has also been a great success. We have given many presentations about our patient organization and about living with the disease (at patient days, in webinars, at pharmaceutical meetings, and also internationally).<br \/>\nWhatever we do, it&#039;s not enough to raise awareness of our condition and find everyone in Germany who lives with or has to live with Alpha-1 Antitrypsin Deficiency. We need you to spread the word and tell your story. Share your story with us. Write down everything that comes to mind. Everyone has a storyteller inside them, and that&#039;s the only way we can make our cause known!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"AutorIn Marion Wilkens, so erschienen im Alpha1-Journal 2\/2023. Unser YouTube-Kanal w\u00e4chst, unbedingt sehenswert ist das auf unserem Jubil\u00e4um entstandene Highlight-Video, aber auch das Plasma-Video ist sehr interessant und schie\u00dft bei...","protected":false},"author":1,"featured_media":6678,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,21,7],"tags":[],"class_list":["post-6674","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-newsletter","category-presse"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha-1 in den Medien: YouTube, TV &amp; Kampagnen<\/title>\n<meta name=\"description\" content=\"Videos auf YouTube, TV-Berichte, gro\u00dfe Kampagnen oder Artikel in der Patienten-Bibliothek \u2013 so wird Alpha1 Deutschland e.V. \u00f6ffentlich sichtbar.\" \/>\n<meta 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