{"id":6767,"date":"2024-08-18T16:06:47","date_gmt":"2024-08-18T14:06:47","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6767"},"modified":"2025-08-18T16:55:36","modified_gmt":"2025-08-18T14:55:36","slug":"alpha1-journal-2-2024","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-2-2024","title":{"rendered":"Issue 2\/2024"},"content":{"rendered":"<div id=\"fws_6a8d4801484e3\"  data-column-margin=\"none\" data-midnight=\"dark\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div style=\"\" class=\"vc_col-sm-7 wpb_column column_container vc_column_container col padding-12-percent inherit_tablet inherit_phone\" data-using-bg=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"true\" data-bg-color=\"#91d8ff\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\" style=\"opacity: 1; background-color: #91d8ff;\"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8d48014923b\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755525345815\" >\n\t<p><strong>Alpha1 Journal Issue 2\/2024<\/strong><\/p>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8d480149d70\" data-midnight=\"\" data-column-margin=\"none\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-bottom: 10px; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h1 >From movement to encounters: Group leader meeting 2024 and a year full of highlights!<\/h1><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8d48014a7d7\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div style=\"margin-top: 5%; \" class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755525157451\" >\n\t<p>This issue contains:<\/p>\n<ul>\n<li>RARE DISEASES RUN 2025<\/li>\n<li>Alpha1 wins sponsorship award<\/li>\n<li>Constriction, fear, shortness of breath: Three unwelcome companions<\/li>\n<li>New study on liver involvement in Alpha-1<\/li>\n<li>One year of Alpha-1 Europe Alliance<\/li>\n<\/ul>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-5 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8d48014b6e0\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap right\" data-max-width=\"110%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"grow-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1.jpg\" class=\"pp right\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1219\" width=\"930\" data-animation=\"grow-in\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1.jpg\" alt=\"Cover Alpha1-Journal 2-2024\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1.jpg 930w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1-229x300.jpg 229w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1-781x1024.jpg 781w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2024-1-768x1007.jpg 768w\" sizes=\"auto, (max-width: 930px) 100vw, 930px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8d48014cde5\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >Download the journal as a PDF:<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class='w3eden wpdm_package_shortcode'><!-- WPDM Link Template: Default Template -->\n\n<div class=\"link-template-default card mb-2\">\n    <div class=\"card-body\">\n        <div class=\"media\">\n            <div class=\"mr-3 img-48\"><img decoding=\"async\" class=\"wpdm_icon\" alt=\"Icon\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/plugins\/download-manager\/assets\/file-type-icons\/pdf.svg\" \/><\/div>\n            <div class=\"media-body\">\n                <h3 class=\"package-title\"><a href='https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-02-24'>Alpha1 Journal 02\/24<\/a><\/h3>\n                <div class=\"text-muted text-small\"><i class=\"fas fa-copy\"><\/i> 1 file(s) <i class=\"fas fa-hdd ml-3\"><\/i> 23.38 MB<\/div>\n            <\/div>\n            <div class=\"ml-3\">\n                <a class='wpdm-download-link download-on-click btn btn-link btn-xs'  rel='nofollow' href='#' data-downloadurl=\"https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-02-24?wpdmdl=6264&refresh=6a8d48014f51c1787643905\">Download<\/a>\n            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8d480157407\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >In this issue<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>03 Preface<\/p>\n<p>06 Service: Executive Board and Advisory Boards<\/p>\n<p>08 Introducing: Scientific reinforcement on the advisory board<\/p>\n<h3>PREVIEW:<\/h3>\n<p>09 Schedule preview 2025<\/p>\n<p>10th Annual General Meeting and Information Day 2025<\/p>\n<h3>ON A PERSONAL NOTE:<\/h3>\n<p>11 RARE DISEASES RUN 2025 \u2013 registration is now open!<\/p>\n<p>12 Fit and connected: Alpha1 Germany wins award for exercise and exchange<\/p>\n<p>13 Effective Helps for Mucus Problems \u2013 New video now online!<\/p>\n<p>14 patient days and self-help groups: Insights and developments<\/p>\n<h3>DOCUMENTED FOR YOU:<\/h3>\n<p>15 Report on the group leader meeting of Alpha1 Germany<\/p>\n<p>17 impressions from the group leader meeting by Hans Frank, Alpha1 Austria eV.<\/p>\n<h3>ALPHA1 ON THE ROAD:<\/h3>\n<p>18 The 3rd South German Alpha1 Patient Day in Stuttgart \u2013 another great event<\/p>\n<p>19 Alpha1 Germany attends the ERS Congress<\/p>\n<p>22 plasma donations for patients with alpha-1 deficiency: Lifesaving help from society<\/p>\n<h3>ALPHA-1 AND THE PSYCHE:<\/h3>\n<p>23. Constriction, fear, shortness of breath: Three unwelcome companions<\/p>\n<h3>MISCELLANEOUS:<\/h3>\n<p>26th page of mourning<\/p>\n<p>27 Mental Fitness \u2013 Memory Training for Everyday Life<\/p>\n<p>28 Congratulations on AlphaCare&#039;s 10th anniversary!<\/p>\n<h3>ALPHA1 INTERNATIONAL:<\/h3>\n<p>29 The Alpha-1 Europe Alliance celebrates its 1st birthday<\/p>\n<h3>FROM RESEARCH:<\/h3>\n<p>32 New study on liver involvement in alpha1-antitrypsin deficiency published<\/p>\n<p>33 What is gender medicine?<\/p>\n<h3>LETTERS TO THE EDITOR:<\/h3>\n<p>35 My experiences with the SERVOX Air Pro nebulizer<\/p>\n<p>36 A word about finances\u2026<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Alpha1-Journal Ausgabe 2\/2024 Von Bewegung bis Begegnung: Gruppenleitertreffen 2024 und ein Jahr voller Highlights! Lesen Sie in dieser Ausgabe: RARE DISEASES RUN 2025 Alpha1 gewinnt F\u00f6rderpreis Enge, Angst, Atemnot: Drei...","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-6767","post","type-post","status-publish","format-standard","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Ausgabe 2\/2024 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-2-2024\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ausgabe 2\/2024 - 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