{"id":6781,"date":"2023-12-08T10:05:31","date_gmt":"2023-12-08T09:05:31","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6781"},"modified":"2025-08-19T10:14:05","modified_gmt":"2025-08-19T08:14:05","slug":"alpha1-journal-ausgabe-2-2023","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-ausgabe-2-2023","title":{"rendered":"Ausgabe 2\/2023"},"content":{"rendered":"<div id=\"fws_6a71bfbdbb3eb\"  data-column-margin=\"none\" data-midnight=\"dark\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div style=\"\" class=\"vc_col-sm-7 wpb_column column_container vc_column_container col padding-12-percent inherit_tablet inherit_phone\" data-using-bg=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"true\" data-bg-color=\"#91d8ff\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\" style=\"opacity: 1; background-color: #91d8ff;\"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a71bfbdbc110\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755590853812\" >\n\t<p><strong>Alpha1-Journal Ausgabe 2\/2023<\/strong><\/p>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a71bfbdbcc5a\" data-midnight=\"\" data-column-margin=\"none\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-bottom: 10px; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h1 ><br \/>\nGruppenleitertagung 2023 in Darmstadt - \u201eEin dynamischer Prozess\u201c<\/h1><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a71bfbdbd75b\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div style=\"margin-top: 5%; \" class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755590920679\" >\n\t<p>Lesen Sie in dieser Ausgabe:<\/p>\n<ul>\n<li>Alpha-1 Europe Alliance: Der Weg zur Gr\u00fcndung<\/li>\n<li>Meilenstein: Alpha1 begr\u00fc\u00dft 1.000. Mitglied<\/li>\n<li>COVID-Angst: Richtig erkennen und handeln<\/li>\n<li>Fazirsiran-Studie als Hoffnungstr\u00e4ger f\u00fcr Lebererkrankte<\/li>\n<li>PROMISE: Atemphysiotherapie ganz pers\u00f6nlich<\/li>\n<\/ul>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-5 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a71bfbdbe728\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap right\" data-max-width=\"110%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"grow-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023.jpg\" class=\"pp right\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1219\" width=\"930\" data-animation=\"grow-in\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023.jpg\" alt=\"Cover Alpha1-Journal 2\/2023\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023.jpg 930w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023-229x300.jpg 229w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023-781x1024.jpg 781w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2023-768x1007.jpg 768w\" sizes=\"auto, (max-width: 930px) 100vw, 930px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a71bfbdbfe90\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >Journal als PDF herunterladen:<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class='w3eden'><!-- WPDM Link Template: Default Template -->\n\n<div class=\"link-template-default card mb-2\">\n    <div class=\"card-body\">\n        <div class=\"media\">\n            <div class=\"mr-3 img-48\"><img decoding=\"async\" class=\"wpdm_icon\" alt=\"Icon\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/plugins\/download-manager\/assets\/file-type-icons\/pdf.svg\" \/><\/div>\n            <div class=\"media-body\">\n                <h3 class=\"package-title\"><a href='https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-2-23'>Alpha1-Journal 02\/23<\/a><\/h3>\n                <div class=\"text-muted text-small\"><i class=\"fas fa-copy\"><\/i> 1 file(s) <i class=\"fas fa-hdd ml-3\"><\/i> 33.57 MB<\/div>\n            <\/div>\n            <div class=\"ml-3\">\n                <a class='wpdm-download-link download-on-click btn btn-link btn-xs'  rel='nofollow' href='#' data-downloadurl=\"https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-2-23?wpdmdl=5737&refresh=6a71bfbdc26a01785839549\">Download<\/a>\n            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a71bfbde5d46\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >In dieser Ausgabe<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>03 Vorwort<\/p>\n<p>06 Service: Vorstand und Beir\u00e4te<\/p>\n<p>08 Vorgestellt: Frau Prof. Dr. med. Trudzinski Unterst\u00fctzung des wissenschaftlichen Beirats<\/p>\n<h3>IN EIGENER SACHE:<\/h3>\n<p>09 Alpha1 Kinder und Jugendtag 2023<\/p>\n<p>10 Petra Objartel: Die neue Stimme von Alpha1<\/p>\n<p>10 Alpha1 jetzt bei Instagram<\/p>\n<p>11 Mitgliederversammlung und Infotag 2024<\/p>\n<p>12 Meilenstein: Alpha1 begr\u00fc\u00dft 1.000. Mitglied<\/p>\n<h3>TITEL-THEMA:<\/h3>\n<p>13 Gruppenleitertagung vom 13. bis 15.10.2023 in Darmstadt<\/p>\n<p>14 Kommentarsammlung<\/p>\n<p>15 Gastbericht von Johann Frankl<\/p>\n<p>16 Versicherung im Ehrenamt<\/p>\n<h3>F\u00dcR SIE DOKUMENTIERT:<\/h3>\n<p>17 Alpha-1 Europe Alliance: Der Weg zur Gr\u00fcndung<\/p>\n<p>19 SoHO-Verordnung und Petition<\/p>\n<p>20 Neugeborenenscreening ACHSE<\/p>\n<p>22 Rehabilitation: Eine Einf\u00fchrung<\/p>\n<h3>LESERBRIEFE:<\/h3>\n<p>23 Von Reha-Pl\u00e4nen und Beh\u00f6rdenchaos: Mein Kampf gegen die Systemm\u00fchlen<\/p>\n<p>24 Meine Reha in der Ostseeklinik in Prerow<\/p>\n<p>25 Warum Ged\u00e4chtnistraining genauso wichtig ist wie Muskeltraining<\/p>\n<h3>ALPHA1 UND DIE PSYCHE:<\/h3>\n<p>27 COVID-Angst: richtig erkennen und handeln<\/p>\n<p>29 Gedenken<\/p>\n<h3>ALPHA1 UNTERWEGS:<\/h3>\n<p>30 Patiententag in Essen im neuen Gewand<\/p>\n<p>31 1. Kemptener Alpha1-Patiententag<\/p>\n<p>32 2. S\u00fcddeutscher Alpha-1-Antitrypsin-Patiententag<\/p>\n<p>33 Alpha1 Deutschland auf dem 4. Tag zu Organspende und Transplantation<\/p>\n<p>34 Wiederer\u00f6ffnung des Spendenzentrums Haema in Brandenburg<\/p>\n<p>35 Alpha1 Europe Alliance in Barcelona<\/p>\n<h3>VERSCHIEDENES:<\/h3>\n<p>37 Webinar-Reihe: Alles, was (Sozial)Recht ist!<\/p>\n<p>38 Aufruf zur Sammlung von GdB-Antr\u00e4gen<\/p>\n<p>38 Live Facebook-Webinar<\/p>\n<p>39 Alpha1 in der Presse<\/p>\n<p>40 Der Weg zur Einbeziehung von AATM-Screenings<\/p>\n<h3>AUS DER FORSCHUNG:<\/h3>\n<p>41 Grifols ALTA AWARD<\/p>\n<p>41 Dritte Phase der Fazirsiran-Studie<\/p>\n<p>42 Hepatitis A- und B-Impfung<\/p>\n<p>44 PROMISE: Die pers\u00f6nliche Trainings- und Atemphysiotherapie f\u00fcr Alpha-1-PatientInnen<\/p>\n<h3>LESERBRIEFE:<\/h3>\n<p>46 Therapie von zu Hause mit Pneumo Factory<\/p>\n<p>48 Ein Wort zu den Finanzen<\/p>\n<p>49 Impressum, F\u00f6rderer und Unterst\u00fctzer<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Alpha1-Journal Ausgabe 2\/2023 Gruppenleitertagung 2023 in Darmstadt - \u201eEin dynamischer Prozess\u201c Lesen Sie in dieser Ausgabe: Alpha-1 Europe Alliance: Der Weg zur Gr\u00fcndung Meilenstein: Alpha1 begr\u00fc\u00dft 1.000. Mitglied COVID-Angst: Richtig...","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-6781","post","type-post","status-publish","format-standard","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Ausgabe 2\/2023 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-ausgabe-2-2023\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ausgabe 2\/2023 - Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"og:url\" content=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-ausgabe-2-2023\/\" \/>\n<meta property=\"og:site_name\" content=\"Ihr Online Portal f\u00fcr Mitglieder und Interessierte\" \/>\n<meta property=\"article:published_time\" content=\"2023-12-08T09:05:31+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-08-19T08:14:05+00:00\" \/>\n<meta name=\"author\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Redaktion Alpha1 Deutschland e.V.\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/alpha1-journal-ausgabe-2-2023#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/alpha1-journal-ausgabe-2-2023\"},\"author\":{\"name\":\"Redaktion Alpha1 Deutschland e.V.\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/#\\\/schema\\\/person\\\/bbeaebe048b6117849fb55f50616d631\"},\"headline\":\"Ausgabe 2\\\/2023\",\"datePublished\":\"2023-12-08T09:05:31+00:00\",\"dateModified\":\"2025-08-19T08:14:05+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/alpha1-journal-ausgabe-2-2023\"},\"wordCount\":1629,\"articleSection\":[\"Alpha1-Journal\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/alpha1-deutschland.org\\\/alpha1-journal-ausgabe-2-2023\",\"url\":\"https:\\\/\\\/alpha1-deutschland.org\\\/alpha1-journal-ausgabe-2-2023\",\"name\":\"Ausgabe 2\\\/2023 - 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