{"id":6787,"date":"2022-05-21T10:47:58","date_gmt":"2022-05-21T08:47:58","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6787"},"modified":"2025-08-19T10:52:17","modified_gmt":"2025-08-19T08:52:17","slug":"alpha1-journal-ausgabe-1-2022","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-ausgabe-1-2022","title":{"rendered":"Issue 1\/2022"},"content":{"rendered":"<div id=\"fws_6a8f35ec7807b\"  data-column-margin=\"none\" data-midnight=\"dark\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div style=\"\" class=\"vc_col-sm-7 wpb_column column_container vc_column_container col padding-12-percent inherit_tablet inherit_phone\" data-using-bg=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"true\" data-bg-color=\"#91d8ff\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\" style=\"opacity: 1; background-color: #91d8ff;\"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8f35ec7945c\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755593308888\" >\n\t<p><strong>Alpha1 Journal Issue 1\/2022<\/strong><\/p>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8f35ec79f96\" data-midnight=\"\" data-column-margin=\"none\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-bottom: 10px; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h1 >Focus: Virtual General Meeting &amp; Group Leader Meeting 2022<\/h1><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8f35ec7a9fb\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div style=\"margin-top: 5%; \" class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1755593351155\" >\n\t<p>This issue contains:<\/p>\n<ul>\n<li>New group leadership of the SHG Franken<\/li>\n<li>Pulmonary rehabilitation \u2013 review &amp; outlook<\/li>\n<li>Newborn screening<\/li>\n<li>Drug trials &amp; drug approval<\/li>\n<li>Useful information about assistive devices<\/li>\n<\/ul>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-5 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8f35ec7b927\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap right\" data-max-width=\"110%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"grow-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022.jpg\" class=\"pp right\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1219\" width=\"930\" data-animation=\"grow-in\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022.jpg\" alt=\"Cover Alpha1-Journal 1\/2022\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022.jpg 930w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022-229x300.jpg 229w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022-781x1024.jpg 781w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2022-768x1007.jpg 768w\" sizes=\"auto, (max-width: 930px) 100vw, 930px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f35ec7d869\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >Download the journal as a PDF:<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class='w3eden wpdm_package_shortcode'><!-- WPDM Link Template: Default Template -->\n\n<div class=\"link-template-default card mb-2\">\n    <div class=\"card-body\">\n        <div class=\"media\">\n            <div class=\"mr-3 img-48\"><img decoding=\"async\" class=\"wpdm_icon\" alt=\"Icon\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/plugins\/download-manager\/assets\/file-type-icons\/pdf.svg\" \/><\/div>\n            <div class=\"media-body\">\n                <h3 class=\"package-title\"><a href='https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-01-22'>Alpha1 Journal 01\/22<\/a><\/h3>\n                <div class=\"text-muted text-small\"><i class=\"fas fa-copy\"><\/i> 1 file(s) <i class=\"fas fa-hdd ml-3\"><\/i> 8.18 MB<\/div>\n            <\/div>\n            <div class=\"ml-3\">\n                <a class='wpdm-download-link download-on-click btn btn-link btn-xs'  rel='nofollow' href='#' data-downloadurl=\"https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-01-22?wpdmdl=5447&refresh=6a8f35ec8315d1787770348\">Download<\/a>\n            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f35ec8d058\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >In this issue<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>03 Preface<\/p>\n<p>06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board<\/p>\n<p>08 Introducing: Roland B\u00fchner \u2013 New group leader of the SHG Franken<\/p>\n<h3>ON A PERSONAL NOTE:<\/h3>\n<p>10 22 years of Alpha1 \u2013 We&#039;re celebrating this milestone with an information day and a festival<\/p>\n<p>11 Save the date: Events in 2022<\/p>\n<h3>DOCUMENTED FOR YOU:<\/h3>\n<p>12th Online General Meeting 2022<\/p>\n<p>14 Virtual group leader meeting as a workshop,<\/p>\n<p>March 19, 2022 \u2013 via Zoom<\/p>\n<h3>ALPHA-1 &amp; THE PSYCHE:<\/h3>\n<p>18. Shortness of breath anxiety before physical activity: What role does avoidance play? Should patients with shortness of breath anxiety always avoid avoidance \u2013 or is it better to avoid it \u201adeliberately\u2018?<\/p>\n<h3>ALPHA1 ON THE ROAD &amp; MISCELLANEOUS:<\/h3>\n<p>20 Commemoration<\/p>\n<p>21 Attendance at the Alpha1 Austria members&#039; meeting and information day<\/p>\n<p>22 Alpha1 On the Road \u2013 the DGP<\/p>\n<p>23rd Patient Day in Aachen<\/p>\n<p>24th Action Week for Inclusion \u2013 we were there!<\/p>\n<p>Relieving 24 ailments without medication: Breathing therapy and breathing exercises with aids. What&#039;s the difference and why do both make sense?<\/p>\n<p>27 Survey results on the quality of life of lung patients during the COVID-19 pandemic<\/p>\n<p>28 Pulmonary exercise \u2013 Review (basics and the last two years) and outlook (further development)<\/p>\n<p>31 Newborn screening<\/p>\n<p>33 Participation in studies within the framework of evidence-based medicine<\/p>\n<p>35 phases of drug approval<\/p>\n<p>38 Digitization \u2013 a brief overview<\/p>\n<p>39 things worth knowing about assistive devices<\/p>\n<h3>FROM THE SELF-HELP GROUPS:<\/h3>\n<p>42 Overcoming crises with splashes of color \u2013 and how our throat robs us of fitness \u2013 a CSL event in Mainz<\/p>\n<h3>FROM RESEARCH:<\/h3>\n<p>43 Wanted: Pi*ZZ test subjects<\/p>\n<p>43 Register EARCO<\/p>\n<h3>LETTERS TO THE EDITOR:<\/h3>\n<p>44 Report on the Pulse Oximeter Ring<\/p>\n<p>44 My path to becoming a pulmonary exercise trainer<\/p>\n<p>45 Borkum \u2013 Always worth a rehab stay<\/p>\n<p>47 Alpha1 rehabilitation in Germany \u2013 My status assessment<\/p>\n<p>48 A word about finances<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Alpha1 Journal Issue 1\/2022 Focus: Virtual General Meeting &amp; Group Leader Meeting 2022 In this issue: New group leadership of the SHG Franken Lung Exercise \u2013 Review &amp; Outlook Newborn screening Drug trials &amp; drug approval Interesting facts...","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-6787","post","type-post","status-publish","format-standard","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - 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