{"id":6815,"date":"2019-12-14T14:30:16","date_gmt":"2019-12-14T13:30:16","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=6815"},"modified":"2025-09-08T14:34:56","modified_gmt":"2025-09-08T12:34:56","slug":"alpha1-journal-2-2019","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-2-2019","title":{"rendered":"Alpha1 Journal 2\/2019"},"content":{"rendered":"<div id=\"fws_6a8f42dece0de\"  data-column-margin=\"none\" data-midnight=\"dark\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div style=\"\" class=\"vc_col-sm-7 wpb_column column_container vc_column_container col padding-12-percent inherit_tablet inherit_phone\" data-using-bg=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"true\" data-bg-color=\"#91d8ff\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\" style=\"opacity: 1; background-color: #91d8ff;\"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8f42decee01\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1757334689569\" >\n\t<p><strong>Alpha1 Journal Issue 2\/2019<\/strong><\/p>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8f42decf939\" data-midnight=\"\" data-column-margin=\"none\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-bottom: 10px; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h1 >Our group leader meeting in Leipzig<\/h1><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6a8f42ded0397\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div style=\"margin-top: 5%; \" class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1757334760729\" >\n\t<p>This issue contains:<\/p>\n<ul>\n<li>Reflex respiratory therapy for pulmonary emphysema<\/li>\n<li>Smart patients ask their doctor or pharmacist<\/li>\n<li>Survey results: Alpha-1 &amp; Cancer<\/li>\n<li>The chronicle of the self-help group Saxony &amp; Saxony-Anhalt<\/li>\n<li>Alpha1 on the move: Hattingen, Hamburg, Frankfurt &amp; Co.<\/li>\n<\/ul>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-5 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6a8f42ded1284\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap right\" data-max-width=\"110%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"grow-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019.jpg\" class=\"pp right\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1219\" width=\"930\" data-animation=\"grow-in\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019.jpg\" alt=\"Cover Alpha1-Journal 2\/2019\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019.jpg 930w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019-229x300.jpg 229w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019-781x1024.jpg 781w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-2-2019-768x1007.jpg 768w\" sizes=\"auto, (max-width: 930px) 100vw, 930px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f42ded2c22\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >Download the journal as a PDF:<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class='w3eden wpdm_package_shortcode'><!-- WPDM Link Template: Default Template -->\n\n<div class=\"link-template-default card mb-2\">\n    <div class=\"card-body\">\n        <div class=\"media\">\n            <div class=\"mr-3 img-48\"><img decoding=\"async\" class=\"wpdm_icon\" alt=\"Icon\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/plugins\/download-manager\/assets\/file-type-icons\/pdf.svg\" \/><\/div>\n            <div class=\"media-body\">\n                <h3 class=\"package-title\"><a href='https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-02-19'>Alpha1 Journal 02\/19<\/a><\/h3>\n                <div class=\"text-muted text-small\"><i class=\"fas fa-copy\"><\/i> 1 file(s) <i class=\"fas fa-hdd ml-3\"><\/i> 14.29 MB<\/div>\n            <\/div>\n            <div class=\"ml-3\">\n                <a class='wpdm-download-link download-on-click btn btn-link btn-xs'  rel='nofollow' href='#' data-downloadurl=\"https:\/\/alpha1-deutschland.org\/en\/download\/alpha1-journal-02-19?wpdmdl=4831&refresh=6a8f42ded560e1787773662\">Download<\/a>\n            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6a8f42dedd698\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >In this issue<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>Foreword 03<\/p>\n<p>Service: Board of Directors, contact telephone, advisory board, scientific advisory board 06<\/p>\n<p>Featured: Patient Library: Patient Journal Respiratory Tract and Lungs 08<\/p>\n<h3>Documented for you<\/h3>\n<p>Impressions from the group leader meeting in Leipzig: 3 days of a &quot;full program&quot; 09<\/p>\n<p>Plasma donation process 12<\/p>\n<p>Our group leader meeting: Internal topics and call for entries 13<\/p>\n<p>Patient history: The long lead-up to substitution therapy 14<\/p>\n<h3>Miscellaneous:<\/h3>\n<p>Introduction: The Pulmonary Exercise Handbook 16<\/p>\n<p>Reflexive respiratory therapy (RAT) for pulmonary emphysema 16<\/p>\n<p>Enjoy candlelight even with A1ATM \u2013 here&#039;s a better way 19<\/p>\n<p>Announcements: Information Day 2020, Children &amp; Youth Day 2020, Anniversary 2021<\/p>\n<p>Alpha-1 &amp; the psyche: Smart patients ask their doctor or pharmacist 22<\/p>\n<h3>A note from us:<\/h3>\n<p>GDPR in our club 24<\/p>\n<p>Survey results: Alpha-1 and cancer 25<\/p>\n<p>Do people with alpha-1 antitrypsin deficiency have a lower susceptibility to developing cancer? 26<\/p>\n<h3>From the self-help groups (SHG)<\/h3>\n<p>Self-help group leaders are finding it difficult to find successors, according to reports from many groups \u2013 but not in ours! 27<\/p>\n<p>The severely disabled person&#039;s ID card offers many advantages 28<\/p>\n<p>July 2019: Camino de Santiago hike from Cologne to Trier 29<\/p>\n<p>Patient event CSL Behring on September 21, 2019 30<\/p>\n<p>The chronicle of the SHG Saxony and Saxony-Anhalt 31<\/p>\n<p>Remembrance 33<\/p>\n<p>Alpha Kids &amp; Alpha Teens: The Children&#039;s Network 34<\/p>\n<h3>Letters to the editor<\/h3>\n<p>Impressions from the patient hiking day \u201eMy breath, my path\u201c 34<\/p>\n<p>My breath, my path in L\u00fcneburg 35<\/p>\n<p>My rehab in 2019 in Sch\u00f6nau 36<\/p>\n<h3>Alpha1 on the move<\/h3>\n<p>12th Lung Symposium in Hattingen \u2013 we were there! 37<\/p>\n<p>Presentation of the SHG Hamburg at the information mile in Altona 38<\/p>\n<p>Alpha1 workshop in Frankfurt November 4, 2019 38<\/p>\n<p>Annual closing meeting of the SHG Hamburg 39<\/p>\n<p>Alpha1 On the Road 40<\/p>\n<p>Report on the experiences of the TIGEM Alpha-1 Research Conference 42<\/p>\n<p>A word about finances 43<\/p>\n<p>Advertising in Alpha1 Journal 45<\/p>\n<p>Thanks to all sponsors and Imprint 46<\/p>\n<p>Declaration of accession 47<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Alpha1 Journal Issue 2\/2019 Our group leader meeting in Leipzig Read in this issue: Reflexive breathing therapy for pulmonary emphysema Smart patients ask their doctor or pharmacist Survey results: Alpha-1 &amp; Cancer The...","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-6815","post","type-post","status-publish","format-standard","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha1-Journal 2\/2019 - Ihr Online Portal f\u00fcr 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