{"id":7123,"date":"2025-11-16T11:27:06","date_gmt":"2025-11-16T10:27:06","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=7123"},"modified":"2026-04-20T15:21:31","modified_gmt":"2026-04-20T13:21:31","slug":"social-media-interview","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/social-media-interview","title":{"rendered":"What exactly is social media? Annkatrin Siegl in conversation with Gabi Niethammer"},"content":{"rendered":"<div id=\"fws_6a8d8f13c71bc\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Gabi Niethammer, as appeared in <a href=\"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal\/\">Alpha1 Journal 2\/2025<\/a>.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h2><span style=\"color: #004267;\">What exactly is social media? Annkatrin Siegl in conversation with Gabi Niethammer <\/span><\/h2>\n<p>Social media \u2013 this term has been circulating in our ever-accelerating world for years. But what exactly is it? Alpha1 Germany is fortunate enough to have found someone who will support us with this complex topic. But have we really found them?<\/p>\n<p>Here is their story:<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: Hello Annkatrin, how lovely that we&#039;re talking on the phone and that you&#039;re introducing yourself. How did you come to join our club?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> My family lives in a small town in Baden-W\u00fcrttemberg. For the past ten years, my mother suffered from severe liver problems, the cause of which could not be diagnosed. What particularly affected me was that she was constantly blamed \u2013 even though she had lived a very healthy life and didn&#039;t drink or smoke. This spring, my mother passed away at only 64 years old. The homozygous alpha-1 antitrypsin deficiency had only been discovered 14 months earlier. So much struggle, pain, and sadness! So much wasted time \u2013 time that could have been used to pursue targeted therapy and fight the true cause, the genetic defect. I work in marketing and PR, so raising awareness and informing the public is part of my daily work. To cope with my mother&#039;s death, I began searching for organizations that deal with AATM and came across the Alpha1 Foundation in America and the Alpha1 Europe Alliance. They then referred me to Alpha1 Germany.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: Now, the special thing is that you live in London. Can you tell us a little bit about it?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> Ten years ago, I moved to London for my master&#039;s degree and stayed. Now I&#039;m 35 and I love it here so much that I don&#039;t plan on moving back to Germany anytime soon. I mainly work in the music industry, which is very exciting and varied, but often means working late into the evening due to artists&#039; performances.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: What do you do for Alpha1 Germany?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> About three months ago, I took on the topic of social media, in particular the development of Instagram and LinkedIn for the club.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: I&#039;m going to admit I&#039;m completely clueless. Can you shed some light on what these two platforms are all about, especially for the club?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> LinkedIn is a more professional platform where doctors, medical companies, and researchers can find information about Alpha-1 and link to it on their own sites. I would say that it&#039;s primarily used by adults; private exchanges are rare. Instagram offers the opportunity for direct exchange among patients and is also suitable for teenagers. Linking to private content is possible. Success on both platforms can be measured analytically, and I&#039;m pleased that Alpha1 Germany already has 300 followers (regularly interested users) on Instagram, with each post receiving 15\u201330 likes. What&#039;s special is that we achieve this organically and authentically, without spending any money. The challenge on Instagram is to present the content in bite-sized pieces and simple language to maintain the readers&#039; attention. We do this, for example, with our monthly post &quot;Alpha-1 Knowledge,&quot; where we convey essential basic knowledge concisely and clearly.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: Thank you! Now I understand the purpose of the two platforms and their differences much better, and I&#039;m excited to see how they develop. It&#039;s great that you regularly choose, write, and post content in your free time. Speaking of free time\u2014what do you enjoy doing?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> I do a lot of hiking and boxing, I also enjoy reading and love video games. After my mother&#039;s death, I finally did something I had planned for three years but hadn&#039;t been able to do because of her illness: I climbed Kilimanjaro and had my picture taken at the summit with the logos of Alpha1 Germany and the Alpha1 Europe Alliance. As a carrier of the genetic defect, I wanted to show that it&#039;s possible to reach for the stars, which seem very close at 5,895 meters.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: Uaohh! Dear Annkatrin, what do you wish for in your voluntary work for Alpha1 Germany?<\/strong><\/span><\/p>\n<p><span style=\"color: #ff6600;\">Annkatrin:<\/span> Due to a lack of knowledge, my mother did not receive proper treatment. To prevent this from happening again and again, my greatest wish is to educate as many people as possible about this genetic defect \u2013 both those affected and medical professionals. To achieve this, my goal is to double our reach within a year, and to make this happen, I ask you all to support the association and me by sending me content, be it patient stories, personal accounts, or letters to the editor.<\/p>\n<p><span style=\"color: #003366;\"><strong>Gabi: I gladly join this appeal and thank you very much for your time and the very nice conversation.<\/strong><\/span><\/p>\n<h2><\/h2>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author Gabi Niethammer, as published in Alpha1-Journal 2\/2025. What exactly is social media? Annkatrin Siegl in conversation with Gabi Niethammer. Social media \u2013 this term has been circulating for years...","protected":false},"author":1,"featured_media":7124,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,24,94],"tags":[],"class_list":["post-7123","post","type-post","status-publish","format-standard","has-post-thumbnail","category-allgemein","category-alpha1-journal","category-vorgestellt"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Alpha1 &amp; Social Media<\/title>\n<meta name=\"description\" content=\"Interview \u00fcber Social Media bei Alpha1 Deutschland: Wie Instagram &amp; LinkedIn Aufkl\u00e4rung f\u00f6rdern kann und warum Engagement entscheidend ist.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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