{"id":7244,"date":"2026-06-24T15:53:30","date_gmt":"2026-06-24T13:53:30","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=7244"},"modified":"2026-06-24T16:08:07","modified_gmt":"2026-06-24T14:08:07","slug":"kinder-und-jugendseminar-infotag26","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/kinder-und-jugendseminar-infotag26","title":{"rendered":"Children&#039;s and youth seminar at the Alpha1 information day 2026"},"content":{"rendered":"<div id=\"fws_6aa7a75ac6240\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"vc_separator wpb_content_element vc_separator_align_center vc_sep_width_100 vc_sep_border_width_5 vc_sep_pos_align_center vc_sep_color_grey wpb_content_element vc_separator-has-text\" ><span class=\"vc_sep_holder vc_sep_holder_l\"><span class=\"vc_sep_line\"><\/span><\/span><h4>Author<\/h4><span class=\"vc_sep_holder vc_sep_holder_r\"><span class=\"vc_sep_line\"><\/span><\/span>\n<\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p style=\"font-weight: 400;\"><strong>Alpha1 Germany e. V.<\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 25px; height: 5px; margin-bottom: 25px;\" data-width=\"100%\" data-animate=\"\" data-animation-delay=\"\" data-color=\"default\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h2><span style=\"color: #004267;\">Children and young people with Alpha-1: Watch the presentation now on YouTube<\/span><\/h2>\n<p class=\"PDq2pG_selectionAnchorContainer\" data-start=\"81\" data-end=\"299\">What does alpha-1 antitrypsin deficiency actually mean for children and adolescents? What happens in the body? And what can families do to cope well with the condition? These were precisely the questions addressed at the <strong data-start=\"336\" data-end=\"359\">Alpha1 Information Day 2026<\/strong> in the seminar <strong data-start=\"371\" data-end=\"430\">\u201eChildren and adolescents with alpha-1 antitrypsin deficiency\u201c <\/strong>with Dr. Eva-Doreen Pfister and Dr. Marie Korell.<\/p>\n<p class=\"PDq2pG_selectionAnchorContainer\" data-start=\"81\" data-end=\"299\">Alpha1 Germany e. V. has long been committed to providing reliable information, guidance, and support to young people affected by the condition and their families. It is particularly important to explain the illness to children and adolescents in an understandable way \u2013 without causing fear.<\/p>\n<p data-start=\"758\" data-end=\"1194\">The two speakers <strong data-start=\"25\" data-end=\"67\">Priv.-Doz. Dr. med. Eva Doreen Pfister<\/strong> and <strong data-start=\"72\" data-end=\"97\">Dr. med. Marie Korell<\/strong> The team from the Department of Pediatric Gastroenterology and Hepatology at Hannover Medical School achieved precisely that in their presentation: They took the participants of the information day \u2013 children and adolescents of different ages as well as their parents and families \u2013 on a vivid journey through the body. In a way that was easy for children to understand, they explained the normal function of alpha-1 antitrypsin, what happens when there is a deficiency, and why the disease can primarily affect the liver and later also the lungs.<\/p>\n<p data-start=\"1196\" data-end=\"1472\">In addition to the medical fundamentals, the discussion also covered very practical questions: What role does a healthy lifestyle play? Which examinations are important? What treatment options are already available? And what new therapeutic approaches might play a role in the future?<\/p>\n<p data-start=\"1474\" data-end=\"1848\">Another important focus was the<a href=\"https:\/\/alpha1kids.de\/start\" target=\"_blank\" rel=\"noopener\"> <strong data-start=\"1517\" data-end=\"1542\">Alpha-1-KIDS Registry<\/strong><\/a>. The aim is to help better understand alpha-1 antitrypsin deficiency in children and adolescents, gather experience, and further improve long-term care. The speakers emphasized the importance of every registration. Only together, and through real cases, can we gain more knowledge about the disease and thus help other affected families.<\/p>\n<p data-start=\"1850\" data-end=\"2024\">Anyone who couldn&#039;t attend the information day or would like to watch the presentation again at their leisure can now find the recording on our Alpha1 YouTube channel!<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6aa7a75ac7cb6\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: 50px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"height: 30px;\" class=\"divider\"><\/div><\/div>\n\t<div class=\"wpb_video_widget wpb_content_element vc_clearfix   vc_video-aspect-ratio-169 vc_video-el-width-100 vc_video-align-left\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t\t<div class=\"wpb_video_wrapper\"> <div class=\"brlbs-cmpnt-container brlbs-cmpnt-content-blocker brlbs-cmpnt-with-individual-styles\" data-borlabs-cookie-content-blocker-id=\"default\" data-borlabs-cookie-content=\"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\"><div class=\"brlbs-cmpnt-cb-preset-a\"> <p class=\"brlbs-cmpnt-cb-description\">You are currently viewing a placeholder content from <strong>default<\/strong>. To access the actual content, click the button below. Please note that doing so will share data with third-party providers.<\/p> <div class=\"brlbs-cmpnt-cb-buttons\"> <a class=\"brlbs-cmpnt-cb-btn\" href=\"#\" data-borlabs-cookie-unblock role=\"button\">Unblock content<\/a> <a class=\"brlbs-cmpnt-cb-btn\" href=\"#\" data-borlabs-cookie-accept-service role=\"button\" style=\"display: none\">Accept required service and unblock content<\/a> <\/div> <a class=\"brlbs-cmpnt-cb-provider-toggle\" href=\"#\" data-borlabs-cookie-show-provider-information role=\"button\">More information<\/a> <\/div><\/div><\/div>\n\t\t<\/div>\n\t<\/div>\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Author: Alpha1 Germany e. V. Children and adolescents with Alpha-1: Watch the lecture now on YouTube. What does Alpha-1 antitrypsin deficiency actually mean for children and adolescents? What happens in the body? 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