{"id":7416,"date":"2026-09-30T17:35:11","date_gmt":"2026-09-30T15:35:11","guid":{"rendered":"https:\/\/alpha1-deutschland.org\/?p=7416"},"modified":"2026-09-30T17:36:11","modified_gmt":"2026-09-30T15:36:11","slug":"alpha1-journal-ausgabe-1-2026","status":"publish","type":"post","link":"https:\/\/alpha1-deutschland.org\/en\/alpha1-journal-ausgabe-1-2026","title":{"rendered":"Alpha1 Journal: Issue 1\/2026"},"content":{"rendered":"<div id=\"fws_6ac02e5f1b04d\"  data-column-margin=\"none\" data-midnight=\"dark\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div style=\"\" class=\"vc_col-sm-7 wpb_column column_container vc_column_container col padding-12-percent inherit_tablet inherit_phone flex_gap_desktop_10px\" data-using-bg=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"true\" data-bg-color=\"#91d8ff\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\" style=\"opacity: 1; background-color: #91d8ff;\"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6ac02e5f1bd38\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1790781214477\" >\n\t<p><strong>Alpha1 Journal Issue 1\/2026<\/strong><\/p>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6ac02e5f1c81c\" data-midnight=\"\" data-column-margin=\"none\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-bottom: 10px; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h1 >From a small group of affected individuals to the largest Alpha-1 patient organization in Europe \u2013 25 years of Alpha1 Germany<\/h1><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_6ac02e5f1d2b7\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div style=\"margin-top: 5%; \" class=\"vc_col-sm-12 vc_col-lg-11 vc_col-md-11 vc_col-xs-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element  vc_custom_1790781373509\" >\n\t<p>This issue contains:<\/p>\n<ul>\n<li>New COPD guideline: Alpha-1 test recommended for all COPD patients<\/li>\n<li>Information Day 2026: 25 Years of Community, Knowledge and Mutual Help<\/li>\n<li>Alpha-1 History Video: When Medical History Comes Alive<\/li>\n<li>From Heidelberg to Regensburg: Alpha-1 knowledge on site<\/li>\n<\/ul>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-5 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_6ac02e5f1e1e1\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap right\" data-max-width=\"110%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"grow-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <a href=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026.jpg\" class=\"pp right\" title=\"\">\n              <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"1219\" width=\"878\" data-animation=\"grow-in\" src=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026.jpg\" alt=\"Cover digitales Alpha-1-Journal 1\/2026\" srcset=\"https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026.jpg 878w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026-216x300.jpg 216w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026-738x1024.jpg 738w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026-768x1066.jpg 768w, https:\/\/alpha1-deutschland.org\/wp-content\/uploads\/Alpha1-Journal-1-2026-9x12.jpg 9w\" sizes=\"auto, (max-width: 878px) 100vw, 878px\" \/>\n            <\/a>\n          <\/div>\n        <\/div>\n         \n      <\/div>\n      <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6ac02e5f1fcfd\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<h2><span style=\"color: #004267;\">Flippingbook<\/span><\/h2>\n<\/div>\n\n\n\n\n\t<div class=\"wpb_raw_code wpb_raw_html wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a href=\"https:\/\/online.flippingbook.com\/view\/828765999\/\" class=\"fbo-embed\" data-fbo-id=\"0499b5aef2\" data-fbo-ratio=\"3:2\" data-fbo-lightbox=\"yes\" data-fbo-width=\"100%\" data-fbo-height=\"auto\" data-fbo-version=\"1\" style=\"max-width: 100%\">Alpha1 Journal Issue 1 | 2026<\/a><script async defer src=\"https:\/\/online.flippingbook.com\/EmbedScriptUrl.aspx?m=redir&hid=828765999\"><\/script>\n\t\t<\/div>\n\t<\/div>\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_6ac02e5f20d40\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone flex_gap_desktop_10px\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"none\" data-animation-type=\"line-reveal-by-space\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><h2 >In this issue<\/h2><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<p>03 Preface<br \/>\n06 Service: Board of Directors &amp; Advisory Board<br \/>\n10 25 Years of Alpha1 Germany e. V. \u2013 Strong together for people with Alpha-1<\/p>\n<h3>FEATURED:<\/h3>\n<p>12 The Decade of the Lungs: For Lung Health in Germany<br \/>\n14. Introduction of our two new scientific advisory boards<\/p>\n<h3>ON OUR OWN BEHALF<\/h3>\n<p>15 Upcoming Dates<br \/>\n16 Alpha-1 History Videos: When Medical History Comes Alive<br \/>\n20 From the German board to Europe: Thank you, Heinz Stutzenberger<br \/>\n21 Journal, now only DIGITAL<br \/>\n22 New guide: The path to a severely disabled person&#039;s ID card \u2013 explained in an easy-to-understand way<br \/>\n23 Running together for Alpha-1 \u2013 A look back at the Rare Diseases Run 2026<\/p>\n<h3>DOCUMENTED FOR YOU:<\/h3>\n<p>25 Giving and receiving help: A special information day<br \/>\n27. Lecture by Dr. Marc Lepiorz: The Knowledge Quiz: General Information and More about Alpha-1<br \/>\n31 Lecture by Markus Baltensperger: Singing as Therapy<br \/>\n33 Prof. Dr. Pavel Strnad: Perspectives: Alpha1 and the liver<br \/>\n36 Current News Items \u2013 from new therapies to click rates and AI to chatbots<br \/>\n38 children and adolescents with Alpha-1 Antitrypsin Deficiency (AATD)<br \/>\n43 Personal experiences: The mere thought takes her breath away<br \/>\n44 Lungs and psyche: The psyche breathes along with<br \/>\n49 Air to live<br \/>\n52 What the Abyss Teaches Us About Life<\/p>\n<h3>HELP FOR RELATIVES:<\/h3>\n<p>54 Support for relatives of people with alpha-1 antitrypsin deficiency<\/p>\n<h3>ALPHA1 ON THE ROAD:<\/h3>\n<p>56 Alpha1 Germany at the DGP Congress in Munich<br \/>\n58 New COPD guideline: Important step for the early detection of alpha-1 antitrypsin deficiency<br \/>\n59th DGIM Congress 2026 in Wiesbaden \u2013 Internal Medicine in Transition<br \/>\n60th World Bronchiectasis Conference 2026 in Hanover \u2013 ten years of international exchange for better care<br \/>\n61 My Day in Front of the Camera<br \/>\n63 COPD research in transition: Individualized diagnosis and treatment<\/p>\n<h3>FROM ALPHAS FOR ALPHAS:<\/h3>\n<p>64 Alpha1 Germany e. V. in conversation: Who are you beyond the diagnosis, Sabine?<br \/>\n67 Learn self-management \u2013 INSEA gives courage for everyday life<\/p>\n<h3>MISCELLANEOUS:<\/h3>\n<p>68 Courageously speaking about bullying \u2013 Sandra B\u00f6hmer in the Alpha-Cast<\/p>\n<h3>FROM THE Self-Help Groups:<\/h3>\n<p>69 The 4th Patient Day at the Thorax Clinic Heidelberg<br \/>\n71st AlphaCare Regional Day in cooperation with Alpha1 Germany and the SHG Region Trier<br \/>\n72nd Patient Day in Regensburg \u2013 Knowledge, exchange and a special setting<br \/>\n74 IRMA in Hamburg<br \/>\n75 Further information from the self-help groups<\/p>\n<h3>ALPHA1 INTERNATIONAL:<\/h3>\n<p>76 Alpha1 Germany traveling in Europe<br \/>\n79 highlights from the work of the Alpha-1 Europe Alliance in the first half of 2026<br \/>\n81 Memory Exercise<\/p>\n<h3>FROM RESEARCH:<\/h3>\n<p>82 Continuing education (for doctors) up to date \u2013 Knowledge about Alpha-1 now also available as a podcast<br \/>\n83 Your experience is needed!<\/p>\n<h3>LETTERS TO THE EDITOR:<\/h3>\n<p>84<\/p>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Alpha1 Journal Issue 1\/2026 From a small group of affected individuals to the largest Alpha-1 patient organization in Europe \u2013 25 years of Alpha1 Germany Read in this issue: New COPD guideline: Alpha-1 test recommended for all COPD patients Information Day 2026: 25...","protected":false},"author":1,"featured_media":6795,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-7416","post","type-post","status-publish","format-standard","has-post-thumbnail","category-alpha1-journal"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - 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