Author
Marion Wilkens, Alpha1 Germany eV, as published in Alpha1 Journal 2/2024.
A look back – A year full of commitment and community
Dear readers,
The year is drawing to a close, and it's time to look back together on the past months. For our patient organization, it has been a year full of challenges, but also full of precious moments that have shown us how strong our community is.
We have launched important projects that benefit our members and all those affected. From educational initiatives and events to new projects for improved care – every step has been driven by the goal of putting your needs first. We are particularly proud of the numerous opportunities we have created to connect with you, whether at our many patient days, virtual meetings, or in personal conversations (see page 14).
Together with our advisory board member Nicole Scherhag and the group leaders, we have developed the "Rehabilitation" project, among other things. The result is a guide that will be available to you shortly. We have also prepared new videos (Expectoration, page 13) and podcasts (Haema, page 22) for a cozy winter evening.
Beyond all the activities, it was particularly moving for us to see how much cohesion and solidarity exists in our community. Your stories, your experiences, and your commitment have inspired and motivated us to give our best every day.
We have ambitious plans for the coming year: new projects, increased awareness, and even stronger networking to further advance the concerns of all those affected. We look forward to embarking on this journey together with you. The motto for the coming year is: Yes to health – yes to better care – yes to Alpha1 Germany e.V.
When it comes to health, the word "exercise" often comes up. Are you one of those people who start the year with good intentions, perhaps to get more exercise? Then be sure to join us for the Rare Disease Run (page 11). You don't have to jog; let others run and simply choose a walking route for yourself. That's what I'll do, and I'm happy to be doing something good for our patient organization in such an uncomplicated and healthy way...
I wish you and your families a good start to the new year and above all health, confidence and many beautiful moments.
Yours sincerely, Marion Wilkens
