Videos & Podcasts
The Alpha1 Germany YouTube channel
In addition to explanatory videos, you'll also find helpful tips and new weekly exercises on our YouTube channel, so you can easily integrate lung exercise into your daily routine. Take a look!
The Alpha1 Germany Podcast
Alpha1 Germany is now available as an audio resource! With the "Alpha1 – Listen Up" podcast, you can conveniently listen to fascinating information about Alpha-1 antitrypsin deficiency. The first episode is already online and takes you on a captivating journey through the history of Alpha-1 antitrypsin deficiency.
In upcoming episodes, we plan to gradually expand the podcast and offer people with Alpha-1, their families, and anyone interested a central hub for information, experiences, and exchange. Look forward to conversations with those affected, experts, current findings from medicine and research, and practical tips for everyday life with Alpha-1.
General podcasts on Alpha-1 Antitrypsin Deficiency:
Alpha-1 antitrypsin deficiency explained in a collaboration between More Air and CHiesi
Episode 10 of ATEM – the podcast on pneumological topics by Chiesi
Episode 9 of ATEM – the podcast on pneumological topics by Chiesi
AlphaCast – the podcast about Alpha-1 antitrypsin deficiency from Grifols Deutschland GmbH
Podcasts from CSL Behing and Alpha1 Deutschland eV:
As pioneers in the German-speaking world, we've partnered with CSL Behring to launch an Alpha1 podcast series. Listen to Gabi Niethammer's voice as she talks about Alpha1 Germany and the condition, and recharge your batteries with the sports podcast featuring Michaela Frisch. It's worth checking back often, as we regularly add more exciting podcasts.
Episode 1: Alpha1 Germany introduces itself
Alpha-1 antitrypsin deficiency is one of the most common inherited diseases, yet it remains largely unknown. Those affected lack a protective protein that prevents the destruction of lung tissue. This genetic defect is often mistaken for COPD because the symptoms are virtually identical. The patient organization Alpha1 Germany is committed to raising awareness of this metabolic disorder. It sees itself as a link between patients, doctors, and researchers. Learn more about the patient organization in the podcast, how it can help you manage your life with alpha-1 antitrypsin deficiency, and how you, as an affected individual, can connect and share experiences.
Episode 2: Leisure and sports for Alpha1 patients
For patients with chronic lung diseases, including those with alpha-1 antitrypsin deficiency, regular exercise, adapted to the specific condition, plays a crucial role in a healthy lifestyle. This podcast explores suitable hobbies and physical activities for people with alpha-1 antitrypsin deficiency, where to find pulmonary exercise groups, and how regular exercise can positively impact their well-being.
Episode 3: Alpha1 and Psyche: Coping with the Illness
For patients recently diagnosed with alpha-1 antitrypsin deficiency, the news is initially a shock. For many, it represents a significant psychological burden. A variety of anxieties often arise, either immediately or over time, requiring psychological support. In this podcast episode, you'll learn what those affected can do when dealing with doctors or making decisions – and how treatment can be tailored to the needs of individuals with alpha-1 deficiency.
Episode 4: Alpha-1 Antitrypsin Deficiency Therapy and Self-Treatment
An important therapeutic component in Alpha-1 antitrypsinAlpha-1 antitrypsin deficiency requires weekly intravenous replacement therapy. A patient with this condition discusses the importance of self-treatment at home. Learn about the interplay between doctor, patient, and family in this podcast.
Episode 5: Alpha 1 and Psyche – Communication Part 1: Silence is not always golden – how good communication can succeed
In this part of the podcast, Dr. Tempel, a physician specializing in psychopneumology, discusses communication within the patient-relative relationship, which can be challenging at times due to illness. Dr. Tempel draws on specific communication strategies and sensitively addresses both perspectives/roles of the patient and their relative.
Episode 6: Alpha 1 and Psyche – Communication Part 2: Silence is not always golden – how good communication can succeed
In this podcast, continuing her series on communication, Ms. Tempel focuses on conversations involving other groups of people, beyond the typical family-patient relationship. She also addresses communicatively challenging situations, explaining them with examples and offering solutions. As a physician specializing in psychopneumology, Ms. Tempel provides practical guidance in these two communication chapters, enabling listeners to navigate even the most demanding situations.
Episode 7: Alpha 1 and Psyche – The Power of Resilience
In this podcast episode, Dr. Tempel, a physician specializing in psychopneumology, discusses the frequently mentioned topic of resilience. But what exactly is it? And how can someone with a chronic illness utilize this mental resilience in their life? Dr. Tempel answers all these questions and more in this podcast. She also talks about the importance of self-efficacy and demonstrates how various tools can be used to overcome future crises.
Episode 8: Lungs & Liver
In this podcast episode, Professor Dr. Strnad and his colleague Ms. Amzou from the Alpha 1 Liver Center in Aachen explain the liver changes that can occur in adults with alpha-1 antitrypsin deficiency. Professor Strnad's research team focuses on the liver health of alpha-1 patients and provides them with support and guidance. The team of experts also offers helpful lifestyle tips and information on risk factors, enabling patients to identify these in their daily lives and minimize risks.
Episode 9: Alpha 1 & Children
In this podcast episode, Dr. Kardorff, a pediatrician specializing in pediatric gastroenterology, focuses on the youngest Alpha 1 patients. In children, the disease presents very differently than in adults. Therefore, affected families require special attention and information. Parents, in particular, often have many long-term questions about the effects and consequences of the disease for their child and other family members. Dr. Kardorff explains the most important aspects of the disease and discusses which sensible steps and examinations may be necessary for the youngest patients to minimize risks and alleviate some of their concerns.
Episode 10: Our daily bread? Nutrition in Alpha-1 Antitrypsin Deficiency
In this episode, Dr. Erikson discusses nutrition and its specific implications for alpha-1 antitrypsin deficiency. What should those affected and their families know? What should be considered? Dr. Erikson illustrates this with practical, everyday examples and highlights the influencing factors. The role of nutrition is multifaceted, particularly on a personal level, which Dr. Erikson addresses and integrates into her advice. She discusses, among other things, calorie intake in relation to body weight and its effects on muscle mass, shopping tips, the use of stimulants, and much more. Dr. Erikson demonstrates numerous ways in which the condition can be positively influenced through diet without sacrificing the enjoyment of food.
Subscribe now:
You can listen to and subscribe to our podcast on all major platforms:
