Crossing borders: How the Alpha-1 Europe Alliance creates a common voice in Europe

„"Together we are stronger" is an important motto of those active in patient self-help groups, referring to the pooling of resources within their own association, but also in cooperation with other organizations. Consequently, Alpha1 Germany is active in many higher-level bodies, including at the European level. It is therefore no surprise that Alpha1 Germany supported the idea of a merger of European Alpha1 associations early on, and was subsequently one of the driving forces that purposefully promoted the establishment of an umbrella organization.

The „Alpha-1 Europe Alliance“, based in Brussels, has been in existence since October 17, 2023.

There, our 2nd Chairman, Heinz Stutzenberger, who is also 2nd Chairman (Vice-President) of the Alpha-1 Europe Alliance, represents our interests, and our Chairwoman Marion Wilkens is also active in several committees.

Allianz also has an online presence, for example with a website, at LinkedIn and at X (formerly Twitter). All these appearances are in English, as this is the official language within the alliance. The alliance sees itself as a point of contact for associations and organizations that deal with or are relevant to Alpha-1 antitrypsin deficiency. It also represents affected individuals in countries where there is no national Alpha-1 organization.

Below you will find the latest articles from the Alpha-1 Europe Alliance:

Gruppenbild der aktiven Teilnehmer am Alpha-1 Awareness Month Event im Europaparlament in Brüssel
Two years of Alpha-1 Europe Alliance

Two years of Alpha-1 Europe Alliance

September 13, 2025
Logo Alpha-1 Europe Alliance
The Alpha-1 Europe Alliance is celebrating its 1st birthday.

The Alpha-1 Europe Alliance is celebrating its 1st birthday.

October 18, 2024
Europa Fahne mit Alpha1 Deutschland Logo
Brussels, a little adventure

Brussels, a little adventure

June 15, 2024
Laptop mit Webseite der Alpha-1-Alliance
The Alpha-1 Europe Alliance is establishing itself

The Alpha-1 Europe Alliance is establishing itself

April 29, 2024
Gruppenbild Alpha-1 Europe Alliance
The Alpha-1 Europe Alliance visits Grifols in Barcelona

The Alpha-1 Europe Alliance visits Grifols in Barcelona

February 18, 2024
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