Legal and Social

Below you will find extensive information on legal and social issues:

In the Webinar series by CSL Behring in cooperation with Alpha1 Germany The idea arose from the concept of combining our experience, resources, and knowledge in the context of social law; for this, we need your support and assistance. You can find out how this assistance can take place [here/below]. here.

Titelseite der Informationsbroschüre zur Beantragung Behindertenausweis bei Alpha-1.
Information brochure: Disability ID card

Information brochure: Disability ID card

June 1, 2026
Regulations regarding tourism taxes for severely disabled persons, "spa tax and similar charges"„

Regulations regarding tourism taxes for severely disabled persons, "spa tax and similar charges"„

February 12, 2026
Disability ID card with alpha-1 antitrypsin deficiency

Disability ID card with alpha-1 antitrypsin deficiency

January 4, 2026
Studienaufruf: Patienten mit seltenen Alpha1-Antitrypsin Varianten
Phases of drug approval

Phases of drug approval

January 8, 2024
Hilfe zum Einreichen eines Schwerbehindertenantrags für Menschen mit Alpha-1
Pooling our resources – achieving more together!

Pooling our resources – achieving more together!

October 13, 2023

ACHSE Information Sheet – Self-help helps each other

Topic: Which insurance policies are advisable to take out before/when I am diagnosed with a rare chronic disease?
What insurance policies can or should we take out for our children once they have been diagnosed?

Download the information sheet:

BPI Guide to Patient Rights

Essential information for patients, from diagnosis to aftercare. This reference book answers important questions about healthcare and patient rights.

Further information can be found in the free download of the publication.

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Social guide from CSL Behring

The guide "Living with Alpha1 antitrypsin deficiency“CSL Behring informs you about the medical, financial and legal aspects of an illness caused by Alpha1 antitrypsin deficiency.

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Patient information „Approval of long-term medical treatment needs”

If your doctor has diagnosed you with a severe functional or structural impairment requiring ongoing treatment for at least one year, approval will be granted through a simplified procedure.

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Information sheet on the co-payment regulations of statutory health insurance funds

Find further information from the Federal Ministry of Health here (as of 11/2022).

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