The se-atlas – Healthcare Atlas for People with Rare Diseases – was developed as part of the National Action Plan for People with Rare Diseases. Initially, the se-atlas was funded by the Federal Ministry of Health for a four-year period.
Since then, the web-based information platform se-atlas has provided an overview of care options for people with rare diseases in Germany. The various care facilities and self-help organizations for rare diseases are visualized both in an interactive map view and in list form.
The care atlas is aimed equally at those affected, relatives, doctors, non-medical staff and interested parties.
Source: Taken from the se-atlas homepage
For us, the centers that have made alpha-1 antitrypsin deficiency their focus are important; these can be found at:
