03 Preface

06 Service: Executive Board and Advisory Boards

08 Featured: Nicole Scherhag: My unusual path into medicine

PREVIEW:

09 Schedule preview 2024

10th Annual General Meeting and Information Day 2025

DOCUMENTED FOR YOU:

11th General Meeting 2024

13 Christine Stukan: New air, new life: How a lung transplant gave me back my quality of life

16 Dr. Heinz Steveling: Heterozygous carrier of the trait PiMZ

18 Dr. Arnim Geise: What can I expect as a relative/patient in the intensive care unit?

21 Dr. Malin Fromme: Alpha-1 Antitrypsin Deficiency: Understanding Liver Stress and Pulmonary Emphysema

23 Prof. Dr. Franziska Trudzinski: Imaging diagnostics in pulmonary emphysema

25 Dr. Paul Köbler: Alpha-1 and Psyche: Challenges and Coping Strategies

28 Dr. Andreas Hoheisel: Artificial Intelligence in Medicine

31 Michaela Frisch & Peter Kukry: Reporting for you: Information Day – Pulmonary Exercise

32 group leader meetings – what has happened so far

ALPHA1 ON THE ROAD:

33. Visit of the expert panel on the topic of innovations for people with rare diseases at the Tagesspiegel in Berlin

34 20 Years of Alpha1 Austria: A Celebration of Friendship and Cooperation

35 Brussels, a little adventure

ON A PERSONAL NOTE:

37 Lung Exercise & Memory Training

38th Patient Day in Heidelberg

39 Successful liver study: Insights from Aachen

40 2nd Kempten Alpha1 Patient Day: Exchange and Information

41 Membership statistics of our club

FROM THE SELF-HELP GROUPS:

42. Say no sometimes during a lung function test!

MISCELLANEOUS:

43 Alpha-1 antitrypsin deficiency in focus: Articles in WELT and STERN

44 Running makes you happy – participation in the Rare Disease Run 2025

ALPHA1 INTERNATIONAL:

44 The Alpha-1 Europe Alliance is establishing itself

FROM RESEARCH:

46 New publication: Lungs and psyche

47 Rare Diseases: 73% of patients with % experience misdiagnosis

48 New opportunities for early diagnoses: Survey on expanded newborn screening launched

LETTERS TO THE EDITOR:

49 And then there was rehab in Schönberg-Holm after all.

51 We did it again…