Alpha1 Journal

Special edition 04/2024

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Special edition 04/2024

Children and young people

This issue contains:

  • A highlight of 2023: The Alpha1 Children's and Youth Day in Bonn
  • The Alpha-1-KIDS app: The Alpha-1 Children's Center of the University Hospital Bonn is taking on the 'children's register'
  • Understanding Alpha-1: Educational resources for every age group

Download the journal as a PDF:

In this issue

03 Preface

04 Service: Executive Board and Scientific Advisory Boards

FEATURED:

06 Alpha1 Deutschland eV: Pioneering work for Alpha-1 patients and their families since 2001

08 Understanding Alpha1: Educational resources for every age group

DOCUMENTED FOR YOU:

11 From knowledge to fun: An insight into the Alpha1 Children's and Youth Day 2023

13 German Register for Children and Young People with AATM: The Alpha-1-KIDS App

15 Our Liver – Insights and Outlooks

17 Itching in advanced liver disease – new therapeutic options

18 Current projects of the Alpha-1 Children's Center Bonn

MISCELLANEOUS:

20 Literature on Alpha-1 Antitrypsin Deficiency in Children and Adolescents

21 Support needed!

IN CONCLUSION:

22 Inspiring creativity: Students set an example for lung health in the German Lung Foundation's competition

23 Imprint, Sponsors and Supporters

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