03 Preface

06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board

08 Introducing: Reinforcements for the Executive Board Team

08 Introducing: The German Lung Foundation e. V.

10 Featured: „Give Courage: Tell Your Story!“: Book published

ON A PERSONAL NOTE:

11. Good things come to those who wait… Alpha1 Information Day from

May 5th to 7th, 2023

12 Outlook for 2023

13 Gabi says goodbye to the board

14 The Patient Library (PB) and its accompanying booklets

DOCUMENTED FOR YOU:

15 online lung sports with Peddar

16 group leaders online meeting on 22.09.22

ALPHA1 ON THE ROAD:

18 Report from the 1st Alpha-1 Patient Day in Heidelberg

19th South German Patient Day in Stuttgart on October 8, 2022

ALPHA-1 & THE PSYCHE:

20 When the sofa beckons…

ALPHA-1 INTERNATIONAL & MISCELLANEOUS:

23 Remembrance

24 European Alpha-1 patient organizations on the way to an EU Alpha-1 Alliance

26 The sleep laboratory and its significance for AATM sufferers

28 DGP calls for an exemption for the production of propellant-driven metered-dose inhalers for inhaled medications until 2030

29 interesting facts about our respiratory system

FROM THE SELF-HELP GROUPS:

30 When the chairs remain empty…

FROM RESEARCH:

31 How is a protein formed?

33 Development of a PROMS for Alpha-1 Antitrypsin Deficiency

34 Gender-specific differences in COPD and alpha-1 antitrypsin deficiency

36 Alpha1-Antitrypsin Deficiency-Associated Liver Disease (AATD-LD): A Look into the Crystal Ball

36 Think about alpha-1 antitrypsin deficiency!

37 registries for children and adolescents with alpha-1 antitrypsin deficiency

LETTERS TO THE EDITOR:

Save 38 lives – donate blood plasma! Plasma connects us!

39 15 Years Plasma Service Dortmund

40 A word about finances

42 Imprint, Sponsors and Supporters