Alpha1 Journal Issue 2/2020
Our motto for the anniversary year 2021: Together we are strong!
This issue contains:
- Which vaccinations make sense for Alphas now?
- Alpha-1 & the psyche: „Those who are lonely have it good…“
- A journey through the lab test jungle
- Virtual group leader meeting
- Virtual Children and Youth Day
Download the journal as a PDF:
In this issue
Foreword 03
Service: Board of Directors, contact telephone, advisory board, scientific advisory board 06
Introducing Madline Mack in event management at Alpha 1 Germany! 08
Miscellaneous: Which vaccinations make sense for Alphas now 09
Alpha-1 & the psyche: „Those who are lonely have it good…“ 11
Miscellaneous:
GOT, GPT, rGT – A journey through the lab value jungle 14
Let's go! 16
Alpha-1 Panniculitis: Bringing People Together 17
A note from us: Save the date: Annual General Meeting, Children and Youth Day and big anniversary 2021 18
Documented for you:
The first virtual group leader meeting of 2020: Content, impressions and experience reports 19
Venturing into new paths – the 2020 group leader meeting 19
Group Leader Meeting 2.0 on August 29, 2020 21
First virtual Children's and Youth Day on October 31, 2020 22
Miscellaneous: The electronic patient record (ePA) is coming in 2023.
A personal note: Covid-19, sewing masks, YouTube and more. 25
Commemoration 27
From the self-help groups:
AlphaCare Nutrition Seminar on October 9, 2020: Everything new in May 28
Miscellaneous: "America first"—if that also applies to plasma, then good night! 29
Advertisement: New brochure and webinar for Alpha-1 patients 31
Letters to the editor:
My experiences with the maremed® MK500 marine climate device from Beurer 32
Swimming with oxygen? It's possible! 33
Alpha-1 antitrypsin deficiency, COPD and a lung transplant – Ten years full of suffering, fear and hope 34
A word about finances 36
Advertising in Alpha1 Journal 37
Thanks to all sponsors and Imprint 38
Declaration of accession 39