Alpha1 Journal Issue 2/2025
It's not just Annkatrin Siegl who's conquering the summit – together we're forging new paths.
This issue contains:
- Patient days in Hamburg and Kempten
- Alpha-1 project wins funding award 2025
- Everything about AI: What can ChatGPT and similar technologies really do?
- Call to action: Mental health at Alpha-1: Your voice counts!
In this issue
03 Preface
06 Service: Executive Board and Advisory Boards
07 Introducing: Scientific Advisory Board
FEATURED:
08 What exactly is social media? Annkatrin Siegl in conversation with Gabi Niethammer
ON A PERSONAL NOTE:
10 Upcoming Dates
10 Our information day – planned with passion, made for you
11 Digitally connected – our online offers for you
13 The self-help groups, the association and the members
15 group leader meetings of the Alpha1 self-help groups
16 Leading together, growing together – an overview of our group leader meeting
17th group leader meeting of Alpha1 Germany in Frankfurt
19th Rare Diseases Run 2026 – Registration is already open!
20 Bronchiectasis and its association with Alpha-1 Antitrypsin Deficiency (AATD)
DOCUMENTED FOR YOU:
21 Making-Of: The video about the Alpha-1 story
ALPHA1 ON THE ROAD:
24 3rd Alpha1 Patient Day in Kempten in the Allgäu
25th Hamburg Patient Day at the Asklepios Clinic Barmbek
27 4th South German Patient Day on October 18, 2025 in Stuttgart
28 Alpha-1s en route to the ERS Congress
ALPHA-1 IN CHILDREN:
30 There's still more to come
ALPHA-1 AND THE PSYCHE:
31 „Winter anxiety“ and „winter blues“: How to take the terrors out of the dark season
MISCELLANEOUS:
36 Memory training exercises by Beate Hoyer
38 Understanding Artificial Intelligence – what ChatGPT & Co. (currently) can really do
41 We remember our deceased members
FROM THE Self-Help Groups:
Bringing 42 people together: The idea of outpatient rehabilitation
ALPHA1 INTERNATIONAL:
44 DNA and RNA interventions for the treatment of alpha-1 antitrypsin deficiency
47 Two years of Alpha-1 Europe Alliance
FROM RESEARCH:
49 Kata® – the digital tool for more precise and effective inhalation therapy
53 New research on Alpha-1: Congratulations to Dr. Andreas Hoheisel for the 2025 research award!
LETTERS TO THE EDITOR:
55 Kazoo
56 Book presentation: Swedish Coffee Klatch
58 Wonderful Weeks by the Sea
