Flippingbook

03 Preface
06 Service: Board of Directors & Advisory Board
10 25 Years of Alpha1 Germany e. V. – Strong together for people with Alpha-1

FEATURED:

12 The Decade of the Lungs: For Lung Health in Germany
14. Introduction of our two new scientific advisory boards

ON OUR OWN BEHALF

15 Upcoming Dates
16 Alpha-1 History Videos: When Medical History Comes Alive
20 From the German board to Europe: Thank you, Heinz Stutzenberger
21 Journal, now only DIGITAL
22 New guide: The path to a severely disabled person's ID card – explained in an easy-to-understand way
23 Running together for Alpha-1 – A look back at the Rare Diseases Run 2026

DOCUMENTED FOR YOU:

25 Giving and receiving help: A special information day
27. Lecture by Dr. Marc Lepiorz: The Knowledge Quiz: General Information and More about Alpha-1
31 Lecture by Markus Baltensperger: Singing as Therapy
33 Prof. Dr. Pavel Strnad: Perspectives: Alpha1 and the liver
36 Current News Items – from new therapies to click rates and AI to chatbots
38 children and adolescents with Alpha-1 Antitrypsin Deficiency (AATD)
43 Personal experiences: The mere thought takes her breath away
44 Lungs and psyche: The psyche breathes along with
49 Air to live
52 What the Abyss Teaches Us About Life

HELP FOR RELATIVES:

54 Support for relatives of people with alpha-1 antitrypsin deficiency

ALPHA1 ON THE ROAD:

56 Alpha1 Germany at the DGP Congress in Munich
58 New COPD guideline: Important step for the early detection of alpha-1 antitrypsin deficiency
59th DGIM Congress 2026 in Wiesbaden – Internal Medicine in Transition
60th World Bronchiectasis Conference 2026 in Hanover – ten years of international exchange for better care
61 My Day in Front of the Camera
63 COPD research in transition: Individualized diagnosis and treatment

FROM ALPHAS FOR ALPHAS:

64 Alpha1 Germany e. V. in conversation: Who are you beyond the diagnosis, Sabine?
67 Learn self-management – INSEA gives courage for everyday life

MISCELLANEOUS:

68 Courageously speaking about bullying – Sandra Böhmer in the Alpha-Cast

FROM THE Self-Help Groups:

69 The 4th Patient Day at the Thorax Clinic Heidelberg
71st AlphaCare Regional Day in cooperation with Alpha1 Germany and the SHG Region Trier
72nd Patient Day in Regensburg – Knowledge, exchange and a special setting
74 IRMA in Hamburg
75 Further information from the self-help groups

ALPHA1 INTERNATIONAL:

76 Alpha1 Germany traveling in Europe
79 highlights from the work of the Alpha-1 Europe Alliance in the first half of 2026
81 Memory Exercise

FROM RESEARCH:

82 Continuing education (for doctors) up to date – Knowledge about Alpha-1 now also available as a podcast
83 Your experience is needed!

LETTERS TO THE EDITOR:

84