Alpha1 Journal

Alpha1 Journal 1/2020

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Alpha1 Journal Issue 1/2020

Main topic: Alpha-1 & Corona

This issue contains:

  • Annual & Activity Report 2020
  • Our new website
  • News from the self-help groups
  • What happens to my sample in the lab?
  • Promoting health with the help of nature

Download the journal as a PDF:

In this issue

Foreword 03

Service: Board of Directors, contact telephone, advisory board, scientific advisory board 06

Introducing: Scientific reinforcement in the advisory board 08

A note from us:

Cancellation of Children's and Youth Day 2020 09

Annual and Activity Report 2019 10

The year 2020 12

Documented for you:

Call for liver examination 13

A note from us:

Alpha1's website in numbers 14

Our new website: Why, what for, and how come? 15

Survey on COVID-19 infection in individuals with alpha-1 antitrypsin deficiency 16

Our Alpha1 newsletter – subscribe now! 18

Commemoration 19

From the self-help groups:

News from the self-help group SHG-Münsterland 20

Virtual meeting of the SHG Alpha-1 Berlin-Brandenburg 20

AlphaCare Regional Days together with SHG Stuttgart 21

Kids & Teens: Corona at Alpha1 Kids and Teens 22

Miscellaneous:

News from the Alpha1 team at the RWTH Aachen University Hospital 23

Respiration – Shortness of breath – Emergency management at Alpha-1 24

Short paper „Integration of physical activity and respiratory physiotherapy into the Kata® inhalation app for patients with Alpha-1“ 28

Alpha-1 & the psyche: „Best practice“ in Corona times: a thought experiment for Alphas 30

Miscellaneous:

Rehabilitation in times of COVID-19 32

Thoughts on face masks 34

„What happens to my sample in the lab?“ 35

Letters to the editor:

Letter to the editor: Promoting health with the help of nature 36

My first experiences with the LOT 37

Masks for a good cause 38

Alpha1 On the Road: Brief report on the visit to Health Forum 39

A word about finances 40

Advertising in Alpha1 Journal 41

Thanks to all sponsors and Imprint 42

Declaration of accession 43

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