Alpha1 Journal

Issue 2/2020

By November 22, 2020#!30Mon, 08 Sep 2025 14:20:32 +0200+02:003230#30Mon, 08 Sep 2025 14:20:32 +0200+02:00-2Europe/Berlin3030Europe/Berlin202530 08pm30pm-30Mon, 08 Sep 2025 14:20:32 +0200+02:002Europe/Berlin3030Europe/Berlin2025302025Mon, 08 Sep 2025 14:20:32 +0200202209pmMonday=0#!30Mon, 08 Sep 2025 14:20:32 +0200+02:00Europe/Berlin9#September 8th, 2025#!30Mon, 08 Sep 2025 14:20:32 +0200+02:003230#/30Mon, 08 Sep 2025 14:20:32 +0200+02:00-2Europe/Berlin3030Europe/Berlin202530#!30Mon, 08 Sep 2025 14:20:32 +0200+02:00Europe/Berlin9#No Comments2 min read

Alpha1 Journal Issue 2/2020

Our motto for the anniversary year 2021: Together we are strong!

This issue contains:

  • Which vaccinations make sense for Alphas now?
  • Alpha-1 & the psyche: „Those who are lonely have it good…“
  • A journey through the lab test jungle
  • Virtual group leader meeting
  • Virtual Children and Youth Day

Download the journal as a PDF:

In this issue

Foreword 03

Service: Board of Directors, contact telephone, advisory board, scientific advisory board 06

Introducing Madline Mack in event management at Alpha 1 Germany! 08

Miscellaneous: Which vaccinations make sense for Alphas now 09

Alpha-1 & the psyche: „Those who are lonely have it good…“ 11

Miscellaneous:

GOT, GPT, rGT – A journey through the lab value jungle 14

Let's go! 16

Alpha-1 Panniculitis: Bringing People Together 17

A note from us: Save the date: Annual General Meeting, Children and Youth Day and big anniversary 2021 18

Documented for you:

The first virtual group leader meeting of 2020: Content, impressions and experience reports 19

Venturing into new paths – the 2020 group leader meeting 19

Group Leader Meeting 2.0 on August 29, 2020 21

First virtual Children's and Youth Day on October 31, 2020 22

Miscellaneous: The electronic patient record (ePA) is coming in 2023.

A personal note: Covid-19, sewing masks, YouTube and more. 25

Commemoration 27

From the self-help groups:

AlphaCare Nutrition Seminar on October 9, 2020: Everything new in May 28

Miscellaneous: "America first"—if that also applies to plasma, then good night! 29

Advertisement: New brochure and webinar for Alpha-1 patients 31

Letters to the editor:

My experiences with the maremed® MK500 marine climate device from Beurer 32

Swimming with oxygen? It's possible! 33

Alpha-1 antitrypsin deficiency, COPD and a lung transplant – Ten years full of suffering, fear and hope 34

A word about finances 36

Advertising in Alpha1 Journal 37

Thanks to all sponsors and Imprint 38

Declaration of accession 39

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