Alpha1 Journal

Issue 2/2021

By November 15, 2021#!31Tue, 19 Aug 2025 13:57:26 +0200+02:002631#31Tue, 19 Aug 2025 13:57:26 +0200+02:00-1Europe/Berlin3131Europe/Berlin202531 19pm31pm-31Tue, 19 Aug 2025 13:57:26 +0200+02:001Europe/Berlin3131Europe/Berlin2025312025Tue, 19 Aug 2025 13:57:26 +0200571578pmTuesday=0#!31Tue, Aug 19, 2025 1:57:26 p.m +0200+02:00Europe/Berlin8#August 19th, 2025#!31Tue, 19 Aug 2025 13:57:26 +0200+02:002631#/31Tue, 19 Aug 2025 13:57:26 +0200+02:00-1Europe/Berlin3131Europe/Berlin202531#!31Tue, 19 Aug 2025 13:57:26 +0200+02:00Europe/Berlin8#No Comments2 min read

Alpha1 Journal Issue 2/2021

Focus: Research, testing, therapy

This issue contains:

  • The virtual SHG Liver
  • Quitting smoking – just do it?!
  • Why reporting side effects is important
  • Strengthening health literacy
  • The original Bowen Technique®
  • The long road to Alpha-1 drugs

Download the journal as a PDF:

In this issue

03 Preface

06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board

08 Introducing: A new digital approach with the virtual liver support group

ON A PERSONAL NOTE:

09 Virtual General Meeting 2022 & Preview 2022

10 Due to current events

11. Good things come to those who wait… and turn out really great!

DOCUMENTED FOR YOU:

12 group leader meetings 2021: Reunions are a joy – even digitally!

12 First treatment option for alpha-1 antitrypsin deficiency-associated liver disease on the horizon

14th Successful Alpha-1 Patient Day in Stuttgart under Corona conditions

15 Quitting smoking – just do it?!

18 New testing procedure in the Alpha-1 laboratory Marburg

20 Alpha1 Germany congratulates HAEMA

Report 21 side effects

ON A PERSONAL NOTE:

22 Together for a patient-centered future

23rd Virtual Information Day 2021

ALPHA-1 & THE PSYCHE:

24 Strengthening health literacy

ALPHA1 ON THE ROAD & MISCELLANEOUS:

28 A word on digitalization in healthcare

29 Commemoration

30. Attending the group leader conference in Austria, in Austrian: Leaders' Meeting

31 Bowtech® – the original Bowen Technique®

32 Alpha1 Germany at DATS

33 study participants sought: Trainability in Alpha-1

FROM THE SELF-HELP GROUPS:

34 News from our self-help groups

FROM RESEARCH:

35 Alpha-1 Antitrypsin: Current Research Findings

36 The ESTRELLA clinical trial

37 The long road to Alpha-1 drugs

38 Registry work for patients with alpha-1 antitrypsin deficiency

38 Re-organization of the Child Alpha-1 Registry

39 Alpha1 Podcast Series: New episodes – mark your calendars now!

40 A word about finances

42 Imprint, Sponsors and Supporters

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