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In this issue
03 Preface
06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board
08 Introducing: A new digital approach with the virtual liver support group
ON A PERSONAL NOTE:
09 Virtual General Meeting 2022 & Preview 2022
10 Due to current events
11. Good things come to those who wait… and turn out really great!
DOCUMENTED FOR YOU:
12 group leader meetings 2021: Reunions are a joy – even digitally!
12 First treatment option for alpha-1 antitrypsin deficiency-associated liver disease on the horizon
14th Successful Alpha-1 Patient Day in Stuttgart under Corona conditions
15 Quitting smoking – just do it?!
18 New testing procedure in the Alpha-1 laboratory Marburg
20 Alpha1 Germany congratulates HAEMA
Report 21 side effects
ON A PERSONAL NOTE:
22 Together for a patient-centered future
23rd Virtual Information Day 2021
ALPHA-1 & THE PSYCHE:
24 Strengthening health literacy
ALPHA1 ON THE ROAD & MISCELLANEOUS:
28 A word on digitalization in healthcare
29 Commemoration
30. Attending the group leader conference in Austria, in Austrian: Leaders' Meeting
31 Bowtech® – the original Bowen Technique®
32 Alpha1 Germany at DATS
33 study participants sought: Trainability in Alpha-1
FROM THE SELF-HELP GROUPS:
34 News from our self-help groups
FROM RESEARCH:
35 Alpha-1 Antitrypsin: Current Research Findings
36 The ESTRELLA clinical trial
37 The long road to Alpha-1 drugs
38 Registry work for patients with alpha-1 antitrypsin deficiency
38 Re-organization of the Child Alpha-1 Registry
39 Alpha1 Podcast Series: New episodes – mark your calendars now!
40 A word about finances
42 Imprint, Sponsors and Supporters