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Oral health-related quality of life in people with rare diseases
Dr. Marcel Hanisch, head of the "Rare Diseases with Oral Involvement" clinic at the University Hospital of Münster, requests your participation in the study on "Oral Health-Related Quality of Life in People with Rare Diseases." The questionnaire and information sheet can be downloaded below. Alternatively, the questionnaire can be downloaded from http://romse.org/home/wp-content/uploads/2016/08/Fragebogen.pdf. Please send the completed questionnaire to seltene.erkrankungen@gmail.com or by mail to: Waldeyerstr. 30, 48149 Münster, Germany, Attn: Dr. Marcel Hanisch.
[/cmsms_text][/cmsms_column][/cmsms_row][cmsms_row data_padding_bottom=“50″ data_padding_top=“0″ data_overlay_opacity=“50″ data_color_overlay=“#000000″ data_bg_parallax_ratio=“0.5″ data_bg_size=“cover“ data_bg_attachment=“scroll“ data_bg_repeat=“no-repeat“ data_bg_position=“top center“ data_bg_color=“#ffffff“ data_color=“default“ data_padding_right=“3″ data_padding_left=“3″ data_width=“boxed“][cmsms_column data_width=“1/1″][cmsms_notice type=“cmsms_notice_custom“ bg_color=“#ffffff“ bd_color=“#137db0″ color=“#164765″ icon=“cmsms-icon-info-circled“ animation=“fadeInUp“ animation_delay=“0″]- Learn more about „hidden“ Alpha-1 patients on „Alpha-1 Antitrypsin Deficiency – Am I at Risk?“
- Learn more about the detection of alpha-1 antitrypsin deficiency – How can I get tested?„
- Learn more about the therapy of Alpha-1 patients on „Treatment options for Alpha-1 patients“
- Living with Alpha-1: Everyday tips!