News from the fields of politics, committees, and associations

Below you will find the latest articles on the topic of “Politics, Committees, Associations”:

EU petition on the SoHO Regulation – Update March and April 2024

EU petition on the SoHO Regulation – Update March and April 2024

March 26, 2024
Symbolbild: Stellungnahme
Testing for alpha-1 antitrypsin deficiency (AATD) is an essential part of COPD diagnostics.

Testing for alpha-1 antitrypsin deficiency (AATD) is an essential part of COPD diagnostics.

March 4, 2024
Einbeziehung von AATM-Screening in nationale COPD-Leitlinien
From initiative to recognition: The path to including AATM screening in national COPD guidelines

From initiative to recognition: The path to including AATM screening in national COPD guidelines

October 13, 2023
Blutplasma SoHO Verordnung Alpha1 Petition
EU petition on the SoHO regulation

EU petition on the SoHO regulation

September 19, 2023
Symbolbild: Leitlinienantrag Alpha-1 Leitlinie
What do guidelines and disease management programs (DMPs) mean for the patient?

What do guidelines and disease management programs (DMPs) mean for the patient?

August 23, 2018

Politics, committees, associations

European Reference Networks (ERN)

What are ERNs? “European Reference Networks (ERNs) are virtual networks of healthcare providers across Europe. Their aim is to address complex or rare diseases or health problems that require highly specialized treatment and the pooling of knowledge and resources. ERN coordinators convene a virtual advisory board of specialists from various fields to review a patient's diagnosis and treatment. They utilize a dedicated IT platform and telemedicine tools. In this way, only the medical expertise travels, not the patients, who can remain at home in their familiar surroundings.„ (Source: ERN information brochure)

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